Doctors & patients are saying about 'A-Fib.com'...


"A-Fib.com is a great web site for patients, that is unequaled by anything else out there."

Dr. Douglas L. Packer, MD, FHRS, Mayo Clinic, Rochester, MN

"Jill and I put you and your work in our prayers every night. What you do to help people through this [A-Fib] process is really incredible."

Jill and Steve Douglas, East Troy, WI 

“I really appreciate all the information on your website as it allows me to be a better informed patient and to know what questions to ask my EP. 

Faye Spencer, Boise, ID, April 2017

“I think your site has helped a lot of patients.”

Dr. Hugh G. Calkins, MD  Johns Hopkins,
Baltimore, MD


Doctors & patients are saying about 'Beat Your A-Fib'...


"If I had [your book] 10 years ago, it would have saved me 8 years of hell.”

Roy Salmon, Patient, A-Fib Free,
Adelaide, Australia

"This book is incredibly complete and easy-to-understand for anybody. I certainly recommend it for patients who want to know more about atrial fibrillation than what they will learn from doctors...."

Pierre Jaïs, M.D. Professor of Cardiology, Haut-Lévêque Hospital, Bordeaux, France

"Dear Steve, I saw a patient this morning with your book [in hand] and highlights throughout. She loves it and finds it very useful to help her in dealing with atrial fibrillation."

Dr. Wilber Su,
Cavanaugh Heart Center, 
Phoenix, AZ

"...masterful. You managed to combine an encyclopedic compilation of information with the simplicity of presentation that enhances the delivery of the information to the reader. This is not an easy thing to do, but you have been very, very successful at it."

Ira David Levin, heart patient, 
Rome, Italy

"Within the pages of Beat Your A-Fib, Dr. Steve Ryan, PhD, provides a comprehensive guide for persons seeking to find a cure for their Atrial Fibrillation."

Walter Kerwin, MD, Cedars-Sinai Medical Center, Los Angeles, CA


A-Fib Patient Stories

Get Support: A-Fib Wreaks Havoc with Your Head as Well as Your Heart

Anxiety, fear, worry, confusion, frustration and depression, and at times, anger. Most A-Fib patients deal with one or more of these feelings. Beware: research indicates that “psychological distress” worsens the severity of A-Fib symptoms.

Advice About Stress from Patients (and a Spouse) Now Free from the Burden of A-Fib

Jay Teresi, Atlanta, GA, USA. cured after having A-Fib for over ten years:

Jay T.

“Of the entire experience, anxiety has been the greatest challenge. Don’t beat yourself up if you deal with this. Be honest with the doctors about it and get help.
And help your family to understand as they are your greatest support system.”
Kelly Teresi, wife of Jay Teresi, about coping with her husband’s A-Fib:

Kelley T.

“This disease is so far beyond what a non-A-Fib person can comprehend—many times I found myself frustrated, not understanding what was going on with Jay’s thoughts and heart. Jay’s A-Fib and the associated anxiety has left its imprint on our lives.”

Max Jussila, Shanghai, China, about the emotional impact of his A-Fib:

Max J.

“I have never been mentally so incapable…even the simplest work-related problems seemed impossible for me to handle, let alone solve.
I was only 52 years old…but mentally I was reduced to a six–year-old child with constant tantrums.”

Joe Mirretti, Gurnee, IL, a 62-Year old cyclist, about the personal A-Fib stories on A-Fib.com:

Joe M.

“Like everyone has said in their A-Fib stories, A-Fib does such a job on your head. Every time you feel something, it scares you like you’re going back into A-Fib. That’s been a mental battle.
That’s why reading those patient stories [on A-Fib.com] help.”

A-Fib Doesn’t Have to be in Your Head as Well

Don’t be ashamed to admit how A-Fib makes you feel (especially if you’re a guy). Your psyche is just as important as your physical heart. Just acknowledging you have some or all of these symptoms is a step in the right direction.

PODCAST: 15 Ways to Manage the Fear & Anxiety of Atrial FibrillationTune in to learn ways to cope. Listen as Steve Ryan and Travis Van Slooten, publisher of LivingWithAtrialFibrillation.com discuss ways to help you with the emotional component of A-Fib. (See show notes for the list of 15 tips.)

Acknowledge the Stress and Anxiety.
Seek Emotional Support. 


From The Top 10 List of A-Fib Patients’ Best Advice’ , a consensus of valuable advice from fellow Atrial Fibrillation patients; Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD.

Go to Top 10 List of A-Fib Patients’ Best Advice
Please, share the advice ♥ 

Has My A-Fib Returned? I Get an Insertable Wireless Monitor to Find Out

Update 5 pm (see below): During a recent medical exam, one of my doctors (not a cardiologist) detected an irregular heart beat. I didn’t feel any symptoms before, during or after the appointment, so I wasn’t alarmed. But I did make an appointment with my EP.

Medtronic Reveal LINQ ICM

When I met with my EP, he took an ECG but didn’t find A-Fib (thank goodness). But, just to be sure, he recommended implanting a tiny wireless heart monitor so he can review my heart activity over time.

I Get a Reveal LINQ Insertable Cardiac Monitor

So yesterday, as an outpatient, I had a tiny cardiac monitor implanted just under the skin near my heart. The minimally invasive procedure took the doctor about 2 minutes to do. (Most of my time at the hospital was spent doing paperwork).

My doctor used the Medtronic Reveal LINQ Insertable Cardiac Monitor (ICM)—one of the world’s smallest cardiac monitors—the device is approximately one-third the size of a AAA battery.

MyCareLink transmitter

The Reveal LINQ System includes a bedside unit that collects heart rhythm data from the ICM and wirelessly sends it to my doctor every evening.

The device allows my cardiologist to continuously monitor my heart for up to 3 years.

Setup to transmit: I got it all set up and it’s working. But I don’t expect to get any feedback from my EP any time soon. I’ll publish an update when I have something to report.

My incision for the ICM

Update 5 pm: I forgot to mention that I had no pain with this procedure. They used some numbing agent on the incision area, but I’ve had no pain afterwards (it’s now about 36 hours since the insertion). No sutures. They applied a clear bandage that holds the tissue together while healing.

There’s no visible sign of the device. If I press the area I can barely feel the outline of the ICM. It’s possible this will diminish with time as the surrounding tissue encases it.

I’ll write more:  I’ll talk with my EP in a couple of weeks when he has reviewed some of the data received via the MyCareLink wireless transmitter. (I assume he has some data processing feature that will alert him before that if the readings are outside normal specs.)

VIDEO: The Insertion Procedure

An animated video (music, no narration) by Medtronic, shows how the Reveal LINQ ICM monitor is inserted through a tiny incision just under the skin near the heart. Special tools are used to make a small incision and another to hold the ICM and “plunge” it under the skin. About 2:45 min.

To enlarge video: click and start the video. At the lower right, click on the frame icon. To exit, click again.

Diet and Nutrition: ‘The China Study’ and Other Diet Plans With Dr. Joseph Mercola

After Saul Lisauskas of Encinitas, CA was diagnosed with Atrial Fibrillation, he was disappointed by doctors who offered only drug therapy with no advice about improving his symptoms through diet and nutrition. He decided to educated himself on the topic: In his A-Fib story Saul wrote:

Saul Lisauskas

“I read a few books on the subject of food and the interaction with our body. The best book was The China Study. It will give you an education about food, its sources and dangers.”

The China Study Book and its Critics

The China Study by T. Colin Campbell & Thomas M. Campbell II was first published in 2004. The book’s title comes from the China-Cornell-Oxford Project, a 20-year study that began in 1983 and was conducted jointly by the Chinese Academy of Preventive Medicine, Cornell University, and the University of Oxford.

By Campbell & Campbell II

Conflicting opinions: There has been criticism of some of the conclusions drawn in The China Study (mostly focused on data collection, collection bias and data analysis).

Publisher of Cholesterol-and-Health.com Christopher Masterjohn, PhD has written: “Only 39 of 350 pages are actually devoted to the China study…[The China Study] would be more aptly titled, A Comprehensive Case for the Vegan Diet, and the reader should be cautioned that the evidence is selected, presented, and interpreted with the goal of making that case in mind.”

The Cornell-Oxford-China Study: A Critique (Jesse and Julie Racsh Foundation) states: “After performing regression analyses, the data does not justify the indictment of all animal foods as risk factors for chronic degenerative disease.” Read the report online or download the PDF.

A Critical Look at ‘The China Study’ and Other Diet Plans: Dr. Mercola Interviews Denise Minger

Dr J. Mercola

A jam-packed, up-to-date article for those interested in improving current health problems and long-term health through diet and nutrition.

Denise Minger

Published in July 2018, natural health expert and Mercola.com founder Dr. Joseph Mercola interviewed Denise Minger, most noted for her comprehensive rebuttal of “The China Study” (The China Study: Fact or Fallacy?) some eight years ago. She’s heavily vested in the vegan versus omnivore battle, having cycled through vegetarianism and raw veganism, finally coming full circle to being an omnivore.

Topics covered in a Critical Look at ‘The China Study’ and Other Diet Plans:

• Raw Veganism Took a Toll on Health
• Debunking ‘The China Study’
• The Case for Lowering Protein Intake
• Protein Cycling
• Macronutrient Cycling — An Overlooked Component of Optimal Health
• Cyclical Ketogenic Diet Is Ideally Combined With Cyclical Fasting
• Focus on Nutrient Density
• How Minger’s Diet Has Changed Over the Years
• Critiquing the Blood Type Diet
• Awesome Omnivore
• Plant-Based Paleo
• Lifelong Learning Is Key to Staying Ahead

Go to A Critical Look at ‘The China Study’ and Other Diet Plans.

VIDEO: Highlights from Dr. Joseph Mercola’s interview with Denise Minger (2:28)


YouTube video playback controls are located in the lower right portion of the frame: closed captions,
speed/quality, watch on YouTube website and enlarge video to full frame.

Additional Resources About Diet and Nutrition

Download the full transcript of Dr. Mercola’s interview with Denise Minger. Read Debra Minger’s The China Study: Fact or Fallacy?.

Read The China Study for Free: The 2006 edition is available to read online or download.

The 2017 edition of The China Study is available at Amazon.com and other bookstores.

See my article: The Effect of Diet & Nutrition on Your A-Fib: My Top 5 Articles.

Resources for this article

• The China Project: Studying the Link Between Diet and Disease. Study room provides a general overview and introduction to the Cornell-China-Oxford project. Accessed August 7, 2018 URL: http://www.cornell.edu/video/playlist/the-china-project-studying-the-link-between-diet-and-disease

• Cornell-Oxford-China Study: A Critique. Jesse and Julie Racsh Foundation. Accessed August 7, 2018 URL: http://www.raschfoundation.org/wp-content/uploads/Cornell_Oxford_China-Study-Critique.pdf

• Masterjohn, C. The Truth About the China Study. Cholesterol and Health.com Accessed August 7, 2018 URL: http://www.cholesterol-and-health.com/China-Study.html

• Mercola, J. A Critical Look at ‘The China Study’ and Other Diet Plans. Mercola.com, July 08, 2018. URL: https://articles.mercola.com/sites/articles/archive/2018/07/08/the-china-study-and-other-nutrition-plans.aspx

• Minger, D. The China Study: Fact or Fallacy? July 7, 2010. DeniseMinger.com. https://deniseminger.com/2010/07/07/the-china-study-fact-or-fallac/

Don’t Delay. Get Your A-Fib Taken Care of. It Won’t Go Away.

Advice from Patients Now Free from the Burden of Atrial Fibrillation

Daniel D.

Daniel Doane, Sonora, California, USA, A-Fib free after Totally Thoracoscopic (TT) Mini-Maze surgery:

“I didn’t realize how continued A-Fib so drastically remodels your heart. ‘A-FIB BEGETS A-FIB’ was the phrase that brought it home to me.
Every instance of A-Fib changed my heart, remodeled the substrate, and made it more likely to happen again. Get your A-Fib taken care of. It won’t go away. It may seem to get better, but it will return. 

Roger M.

Roger Meyer, Columbus, Ohio, from three generations of A-Fib, had the Cox-Maze surgery:

“I can now say, first hand, that there ARE bad effects from A-Fib and especially from A-Fib that is not treated early. I now wish I had had some of the today’s more aggressive A-Fib treatment options which weren’t available to me in my younger years.
My best advice: Don’t let A-Fib wreak its havoc untreated!” 

Joan S.

Joan Schneider, Ann Arbor, MI, from Pill-in-the-Pocket therapy to A-Fib free after catheter ablation:

“My advice to other AF patients: Know that paroxysmal AF becomes chronic. Drugs only work for so long. Heart modification will occur, and options will become few. Get with a great EP  and/or AF clinic and find your cure.” 

Don’t Delay—A-Fib Begets A-Fib. 

Do not remain in A-Fib indefinitely if possible. Your A-Fib episodes may become more frequent and longer, often leading to continuous (Chronic) A-Fib. (However, some people never progress to more serious A-Fib stages.)

Controlling symptoms with drugs, but leaving patients in A-Fib, overworks the heart, leads to fibrosis and increases the risk of stroke.

Drug therapies are never curative. Don’t just manage your A-Fib with medication. See Editorial: Leaving the Patient in A-Fib—No! No! No!

Don’t delay—Seek your Cure.


From The Top 10 List of A-Fib Patients’ Best Advice’ , a consensus of valuable advice from fellow Atrial Fibrillation patients; Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD.

Go to Top 10 List of A-Fib Patients’ Best Advice
Please, share the advice ♥ 

No Way Am I Having an Ablation! Seeks Alternative Treatments

Saul Lisauskas of Encinitas, CA, was 62 years old when he first detected something wrong with his heart. After his A-Fib was diagnosed, he started to note his episodes were associated with stress and getting angry, along with dehydration, too much caffeinated coffee and foods containing MSG.

Saul Lisauskas

He was disappointed by doctors who offered only drug therapy with no advice about nutrition and the benefts of an improved, healthy diet. He decided to educated himself on the topic: Saul wrote:

“I read a few books on the subject of food and the interaction with our body. The best book was The China Study. It will give you an education about food, its sources and dangers.”

Looking for Alternative Treatments: A Vegetarian Diet

While avoiding his A-Fib ‘triggers’, he decided to go vegetarian but eating fish (a pescetarian) to reduce exposures to foods laced with unhealthy chemicals. (As a bonus, he lost 20 pounds in 3 months.) He was feeling better, but his A-Fib was still active. In his A-Fib story, Saul shares:

“The cardiologist explained to me that the real solution lay in having an Ablation procedure. I was willing to do anything to avoid that surgery.
“I was willing to do anything to avoid that surgery [catheter ablation].”
But with time, my A-Fib episodes increased along with longer periods of activity and stronger symptoms.”
During my ordeal leading up to my Ablation procedure, I was taking various meds in order to control my A-Fib.
However, the meds would make me dizzy and slow down my heart rate to dangerous levels to the point that such levels in fact were counterproductive. My system would compensate by sudden increases of adrenaline and consequently place me in A-Fib mode.
Consequently, I had a pacemaker installed to prevent low levels of heart rate.”

After nearly 8 years since his A-Fib diagnosis, Saul writes about his decision to have a catheter ablation:

“I was getting tired of and frustrated with all these meds.
After too many episodes of A-Fib forcing me to go to the ER, I capitulated against the Ablation surgery and had it done.
Today I am feeling well and doing my daily activities. …I feel that I may be cured well enough not to have to have another ablation.”

― Saul Lisauskas, Encinitas, CA, A-Fib free with pacemaker and catheter ablation

Since his ablation, Saul writes that he remains cautious not to run the risk of stress, dehydration, too much caffeinated coffee or getting angry.

To read more about Saul’s story, see No Way Am I Having an Ablation! But Diet and Meds Disappoint—A-Fib Free After Ablation.

Lessons Learned

When asked if he had any ‘Lessons Learned’ to share, Saul offers these insights:

”Doctors do not have a solution for everybody with A-Fib…We need to carefully educate ourselves as we follow the doctor’s recommendations and observe how our body reacts. Do not follow blindly the doctor’s recommendations.”

Saul certainly did everything he could to avoid having an ablation—identifying what triggered his A-Fib, a vegan diet with fish and all kinds of meds.

Saul certainly did everything he could to avoid having an ablation.

His experience with meds was unfortunate. The meds Saul was taking slowed his heart rate to the point where his doctor had to insert a pacemaker to keep his heart rate normal. It’s crazy to think about it. If this happens to you, talk to your doctor about changing meds (or change doctors).

Unfortunately, once the heart starts to produce A-Fib signals, it’s hard to turn them off. Saul faced the decision that many people have to make. He bit the bullet and had a catheter ablation―with successful results. He’s now A-Fib free!

What’s the Best Treatment Options For You?

A-Fib is not a one-size-fits-all disease. Your Atrial Fibrillation is unique to you. Along with various treatments, you may need to address concurrent medical conditions (i.e, hypertension, diabetes, obesity, sleep apnea). Likewise, you may need to make lifestyle changes (e.g., diet, exercise, caffeine, alcohol, smoking).

In addition, your heart is a resilient muscle that tends to heal itself, so you may need a repeat procedure.

To learn about options for Atrial Fibrillation patients, see our pages under Treatments for A-Fib. Then go to: Decisions About Treatment Options. And remember…

Always Aim for a Cure!

Learning About A-Fib: “A True Experience of Input, Input, Input!”

Advice from patients now free from the burden of A-Fib: Learn all you can about Atrial Fibrillation before making decisions.

Joan Schneider, Ann Arbor, MI, writes how she found online information and support:

Joan S.

“Upon questioning [my new EP]…I didn’t have a warm fuzzy feeling.
However, I found everything I needed to know (and even what I didn’t want to know) when I came across A-Fib.com, Stopafib.org, and the best support from the A-Fib support group.
It was a true experience of input, input, input!”

Charn Deol, Richmond, BC, Canada, now A-Fib Free after a 23-Year ordeal with Atrial Fibrillation writes:

Personal A-Fib story by Charn Deol, BC, Canada at A-Fib.com

Charn D.

“I am relying on his [EP’s] extensive knowledge to help me in a field where I am no expert. My gut said to ‘no longer trust’ this supposed best electrophysiologist at the hospital and search for an alternative path. 

From this experience I’ve learned to obtain as much knowledge as possible of your condition.”

Another A-Fib patient, Sheri Weber, from Boyce, VA, tells what led her to learn more about Atrial Fibrillation on her own:

Sheri W.

“While in the hospital, I questioned my cardio doctor about treatment options other than medication; He told me there were surgical procedures, but they had very low success rates (WRONG!).

Anger and determination led me to research my options [right then] on my laptop.”

Where to Start Learning About A-Fib

Here at A-Fib.com we offer you a plethera of experiences to learn about Atrial Fibrillation. Check out our “Where to Start” page to begin.

If you are newly diagnosed or new to our website, you can start with our Overview of Atrial Fibrillation. It introduces you to all the main topics of this website.

Then visit our Frequently Asked Questions (FAQs) section. We answer common patients’ questions. Also, visit our A-Fib Video Library with short clips at the Introductory Level. Along the way, refer to our Glossary of medical terms as needed.

Go to our “Where to Start” page.

Learn All You Can About A-Fib
Before Making Treatment Decisions.

A-Fib is Not a ‘One-Size-Fits-All’ Disease—May Involve Various Treatments

Over time, these patients chose more than one type of treatment to become free from the burden of Atrial Fibrillation.

kathy haxton - Personal A-Fib story

Kathy H.

Kathleen Haxton, Surprise, Arizona, describes her various treatments leading up to a successful Ablation:

“At first I was able to control the a-fibs by increasing my magnesium and potassium intake. (Low sodium V-8 juice was very helpful.) However, after a while that wasn’t quite good enough.
[Then] Sotalol worked pretty well, but I knew I had to do something. I did not want these a-fibs to control my life any longer.
Because in all the research I did, I knew I wanted to have a Cryo-Balloon Ablation.”

Jay Teresi, Atlanta, GA, describes his second ablation after being A-Fib free for three-years:

Jay T.

“[My EP] explained that my first procedure was a success. However, during the healing process a tiny spot did not scar and this allowed the A-Fib to trip again.
He ablated that portion and touched up all the other areas. I have now been free of A-Fib for over four years..”

Emmett F.

Harry Emmett Finch, Malibu, CA. With 40-years of A-Fib, Emmett’s treatment evolved beyond drug therapy: a PV catheter ablation, then AV Node ablation with Pacemaker and, most recently, installation of the Watchman device:

“There is more help available today than when I first developed my A-Fib [in 1972], and I’m sure more treatment options (like the Watchman device) will be available in the future.”

A-Fib is Not a One-Size-Fits-all Disease

Your Atrial Fibrillation is unique to you. Along with various treatments, you may need to address concurrent medical conditions (i.e, hypertension, diabetes, obesity, sleep apnea). Likewise, you may need to make lifestyle changes (e.g., diet, exercise, caffeine, alcohol, smoking).

Your heart is a resilient muscle that tends to heal itself. So, prepare yourself—over time you may need a repeat treatment or an additional procedure. Learn more at: Treatments for A-Fib

Need More Than One Treatment?
A Heart in Normal Sinus Rhythm is Worth it! 


‘From The Top 10 List of A-Fib Patients’ Best Advice’ , consensus of valuable advice from fellow Atrial Fibrillation patients; Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD.

Go to Top 10 List of A-Fib Patients’ Best Advice
Please, share the advice ♥ 

A-Fib Not only Affects You But Also Your Loved Ones

Diagnosed at age 54, Tony Hall was very physically active, primarily a runner. He was helped by the book, Beat Your A-Fib, and decided to enlist Steve Ryan as his A-Fib Coach. In his A-Fib story, Tony shares:

“On one of our conference calls with me and my wife, Steve asked, “So, Jill, how are you doing?”
That was a light bulb moment for me.
I consider myself to be a very supportive husband in many ways; but until Steve asked that question of Jill, it really did not occur to me how dealing with A-Fib affects the lives of those close to us.”

A-Fib not only impacts the patient’s health and quality of life but also the lives (and often livelihood) of their loved ones and co-workers.

“Top 10 Questions Families Ask about Atrial Fibrillation”

Download the Free report

A-Fib can be a life altering disease―yet people with A-Fib don’t look sick.

When a patient is diagnosed with Atrial Fibrillation, family members often struggle to understand what their loved one is going through.

Selected from our many Frequently Asked Questions (FAQs), these are the most asked questions (with our answers) from family members. Read more and download the 5-page PDF report, ‘Top 10 Questions Families Ask about Atrial Fibrillation’.

Free Reports, Worksheets and Downloads

As a service to Atrial Fibrillation patients, we offer FREE downloads of our own worksheets and reports. We have also collected useful FREE services or downloads from others serving the atrial fibrillation community.

Why not take a few minutes to browse our page with Free Reports, Worksheets and Downloads?

Patient Advice: The First Doctor You See isn’t Necessarily the Right One for You

Advice from Patients Now Free from the Burden of Atrial Fibrillation

Susan Klein, comes from a long line of people with cardiac rhythm disorders. She recalls finally being properly diagnosed:

Susan K.

“I began reading everything I could about the condition but mainly how to make it stop.

Along the way I can’t recall how many times I was told to take the medicine and stop looking for trouble. 

I’m so glad I didn’t listen to the naysayers, because today I’m A-Fib free and loving it.”

Warren Welsh, Melbourne, Australia, talks about the years he needlessly endured A-Fib, in part, based on one doctor’s advice:

Warren W.

“I would urge any A-Fib sufferers not to make the same mistakes I did by not researching their treatment options.

…I experienced several years of unnecessary suffering by accepting an opinion of one specialist who said I would have to live in A-Fib.

Sheri Weber, from Boyce, VA, shared this advice about finding the right doctor for your treatment goals:

Sheri Weber on A-fib.com

Sheri W.

“I wish I had realized that the first doctor you see is not necessarily the right one for you. I fooled around way too long, believing what my cardio doctor said. I should have been thinking outside the box. 

Run―don’t walk―to the best specialist you can find in your area.” 

How to Find the Best Doctor for You

To be cured of your A-Fib, you may need to ‘fire’ your current doctor.

Seek a heart rhythm specialist, a cardiac electrophysiologist (EP), who will partner with you to create a treatment plan—a path to finding your cure or best outcome.

To make this happen, see my page, Finding the Right Doctor for You and Your A-Fib.

The First Doctor You See is Not Necessarily the Right One for You.


From The Top 10 List of A-Fib Patients’ Best Advice’ , a consensus of valuable advice from fellow Atrial Fibrillation patients; Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD.

Go to Top 10 List of A-Fib Patients’ Best Advice
Please, share the advice ♥ 

Daniel Shares About A-Fib: “I Have Gotten a Lot of Bad Advice From Various GPs”

Advice from a patient now free from the burden of Atrial Fibrillation: Educate yourself on all treatment options before making decisions.

Daniel Doane, Sonora, California, talks about all the false info he got from doctors.

“Don’t believe your GP. I have gotten a lot of bad advice from various GPs.

Daniel D.

• ‘Just take a little digoxin and you will be fine.’
• ‘You are probably missing some micro-nutrient. If you buy this product I sell, it may well provide that and stop your A-Fib.’
• ‘I think that all of these tests your EP is requesting are just a waste of money.’
• (From a cardiologist) ‘Don’t worry about a little A-Fib. It won’t kill you.’ “

“If you have Atrial Fibrillation, see an electrophysiologist. If you aren’t comfortable with what they are saying, see another one.” 

Daniel did his research and is now A-Fib-free after a Totally Thoracoscopic (TT) Mini-Maze operation.

If you want to read more of Daniel Doane’s story, you’ll find it on pp. 152-162 in Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD. Learn more about my book.

Don’t Believe Everything You’re Told About A-Fib

In Daniel’s story you read how important it was for him to educate himself. You, too, can learn about all your treatment options. Check our Treatments section covering diagnostic tests, common mineral deficiencies, drug therapies, cardioversion, catheter ablations, surgery and more.

Next, read answers at FAQ: About A-Fib Treatments Options including natural therapies and holistic treatments.

In addition, you may want to browse our A-Fib Video Library and check our list of Online Discussion Groups.

Finally, ask yourself, ‘What are my treatment goals?”, then read our Q&A section: Decision About Treatment Options.

Remember: Always Aim for a Cure.

For a Life Free of A-Fib—Make Things Happen

Advice from Patients Now Free from the Burden of Atrial Fibrillation

Frances K.

Frances E. Koepnick, Athens, GA, shares bad advice from two doctors:

“The advice of the first two cardiologists was to ‘just take my medications and live with A-Fib’. If your cardiologist recommends this treatment regimen, I urge you to get a second, third or even fourth opinion.”

John & Marcia T.

John Thorton from Sioux Falls, SD, wrote about ignoring the bad advice from his doctors:

Be Assertive, Even Aggressive: I had to set up my own appointment at Mayo [Clinic] to get evaluated there. It was a lot of work, by me alone, to get in to see the doctors at Mayo, but it was worth it.”

Tony Hall, Evansville, IN. Now A-Fib-free, he advises to learn as much as you can about A-Fib:

Tony & Jill

“Jill and I read as much as we could on the internet…[but] do not get obsessed with the internet. There is much misinformation on the internet, so do not get too caught up in that information.

Ask Questions: None are stupid. This is YOUR heart. This is YOUR life. Learn as much as you can.”

Joan Schneider, Ann Arbor, MI, tells of her astonishment at how little her doctors told her about A-Fib:

Joan S.

“I was so desperate for answers I started searching on-line. My jaw hit the table. [She said to herself…] ‘How could my physicians not explain these things to me?’ Once I was able to really comprehend my future, I was able to make things happen.

Best advice: Don’t be afraid to fire your physician, and be your own advocate.”

Over 90 stories of inspiration at A-Fib.com

For More Personal Insights

It’s encouraging to read how someone else has dealt with their A-Fib. These A-Fib patients have been where you are right now. They tell their stories to help bolster your determination to seek a life free of A-Fib. For more personal experiences, go to Personal A-Fib Stories of Hope and Encouragement.

For a Life Free of Atrial Fibrillation

Make Things Happen

Become Your Own Best Patient Advocate!

Update to Sandy’s Story (2014): Undiagnosed Sleep Apnea

When Sandy developed A-Fib in 2002, she insisted on managing it with drugs (but no blood thinner). At the time she was also coping with persistent vertigo and dizziness from a traumatic brain injury, an increasingly abusive spouse and ultimately no health insurance because of her pre-existing condition (until she became Medicare eligible).

In her March 2014 story, she wrote:

Sandy from Boston Personal Experience Story A-Fib.com

Sandy from Boston

“By 2014 I truly felt as though I had ‘reached bottom.’ … I thought about the A-Fib.com website and went to it and read many personal stories about A-Fib and ablation procedures. … It made me realize that if I survived being a teenager, riding horses, driving fast cars, having children late in life, living in an abusive marriage for years……..then, it was about time I gave ablation a try.”

In a recent update to her personal A-Fib story, Sandy from Boston wrote:

Hi, Dr. Ryan and everyone at A-Fib.com. I would like to update you.

After my [successful] CryoBalloon ablation at BWH in 2014, I underwent a sleep study that revealed during REM sleep I stopped breathing an average of 32 times every hour. My physician suspected that my traumatic brain injury in 1995 caused my undiagnosed sleep apnea, which in turn caused Paroxysmal A-Fib. I have been using a CPAP since July 2014.

Not Even One A-Fib Episode Since February 2014! I cannot thank you enough for your website and the info you provided to me that led to my CryoBalloon ablation. My physicians and I knew that I was headed for a stroke. My prayers were answered when I found your website. You saved my life! Thank you.

I’m also off all medications—no blood thinners or beta blockers!!! YEA!!!

We are so happy for Sandy. With the struggles she has dealt with, she deserves all life’s blessings. It’s a miracle that Sandy lasted 12 years in Paroxysmal A-Fib without going into permanent (persistent) A-Fib. Many people go chronic in one year.

Should You be Tested for Sleep Apnea?

Obstructive Sleep Apnea (OSA) is so common that at least 43% of patients with Atrial Fibrillation also suffer with it. For that reason alone, you should be tested for sleep apnea.

Sleep apnea is very often a trigger or cause of A-Fib, probably because of the strain and labored breathing it puts on the Pulmonary Veins where most A-Fib comes from.

Ask your sleeping partner if you snore or have labored breathing while you sleep. The remedy is usually simple and works very well.

To learn more, see our posts: Sleep Apnea: When Snoring Can Be Lethal and Sleep Apnea: Home Testing with WatchPAT Device and the Philips Respironics. 

See an A-Fib Expert Right Away—a Heart Rhythm Specialist 

‘Find the best heart rhythm specialist (EP) you can afford.’

A-FIB PATIENTS’ BEST ADVICE

From Beat Your A-Fib: The Essential Guide to Finding Your Cure, Chapter 12: Your Journey to a Cure:

Michele Straube

Michele S.

Michele Straube, cured after 30 years in A-Fib, wrote in her personal A-Fib story:

Go to an electrophysiologist, an A-Fib expert, right away, one with a high success rate at getting patients back into normal rhythm—you deserve nothing less.” (pp. 88-90)

Terry DeWitt, cured in 2007 from a clinical trial for CryoBalloon ablation, offered his best advice:

Terry Dewitt at A-Fib.com

Terry D.

“Spend the time to find the best Electrophysiologist (arrhythmia specialist) you can find. It makes a big difference in treatment and in the success of the ablation procedure.” (pp. 138-143)

How to Find the Best Doctor for You

To be cured of your A-Fib, seek a heart rhythm specialist, an cardiac electrophysiologist (EP), who will partner with you to create a treatment plan—a path to finding your cure or best outcome.

To make this happen, see my article, Finding the Right Doctor for You and Your A-Fib.

Run―don’t walk―to the best specialist
you can find in your area.


‘The Top 10 List of A-Fib Patients’ Best Advice’ is a a consensus of valuable advice from fellow patients who are now free from the burden of Atrial Fibrillation. From Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD (beatyoura-fib.com)

Top 10 List of A-Fib Patients’ Best Advice
Please, share the advice ♥ 

Our Many First-Person A-Fib Stories—Will You Write Our 100th?

Other A-Fib patients have been where you are right now. So far, 99 patients have shared their personal experience with Atrial Fibrillation (starting with the Steve Ryan’s story in 1998).

Each story is told in the the writer’s own words. Some stories are brief and concise, some are retold like diary entries, other stories read like a suspense novel. Some stories are straightforward, others unfold and span years, even decades. Symptoms vary, and treatments choices run the full gamut. Many writers include their email address if readers want to contact them directly.

While many writers are now A-Fib free, some are not, but have found the best outcome for their situation.

Nevertheless, all our writers have the same objective—to offer you hope, to encourage you, and to bolster your determination to seek a life free of A-Fib.

Will Your Story be our 100th?

Are you thinking of sharing your A-Fib story? To learn more (including how to send in your story), see Contribute Your A-Fib Story, Share Your Lessons Learned.

It’s encouraging to read how someone else has dealt with their A-Fib. Won’t you reach out to others with A-Fib? Let them know they are not alone.

With your story, we can soon start using our new graphic poster (we can add your photo, too!)

My First-Hand Experience with our Positive Thoughts/Prayer Group

One of the best things we’ve ever done at A-Fib.com is setting up the Positive Thoughts/Prayer support group. When you have an important treatment decision or an upcoming procedure or surgery, you can contact our volunteer group and ask for their support.

My Personal Experience: Prayer and Positive Thoughts

At A-Fib.com, we believe in the healing power of prayer and of positive thoughts!

Instead of just writing about this phenomenon, I experienced it myself when I asked the group for positive thoughts & prayers for the success of my upcoming intestinal surgery on March 28, 2018.

So may people emailed me such heartfelt support it brought tears to my eyes. It was very encouraging to know I wasn’t alone, that so many cared about me. Can’t thank you all enough! (BTW: My post-op is going well.)

Are You Seeking Guidance from a Higher Power?

Are you in need of prayer? Positive thoughts? To learn how to send in your request, go to our A-Fib.com Positive Thoughts/Prayer Group.

Additional Reading

The Anatomy of Hope: How People Prevail in the Face of Illness by Jerome E. Groopman. Written by an oncologist and citing actual patient cases (mostly cancer), Dr. Groopman explores the role of hope in fighting disease and healing. Top scientists are interviewed who study the biological link between emotion and biological responses; the most relevant studies are reviewed.

The author shows how hope, belief and expectations can alter the course of our lives, and even of our physical body. HOPE works! (Read my review on Amazon.com.)

Listen to an audio interview with The Anatomy of Hope author, Dr. Groopman on NPR’s Fresh Air program (recorded Sept. 2004; 20 min.)

Story Update: Ashley Mogg, a 23-Year Old Jamaican, Now A-Fib Free!

I’ve seldom been so happy to write about an A-Fib success story (actually an update)! A story that had such a miserable beginning.

A-Fib at 17 and Started Losing Sight!

Eighteen months ago, I wrote a story about 21-year-old Ashley Mogg from Jamaica. Her A-Fib was horrible. Her first A-Fib attack came at age 17 when she had just stopped playing field hockey. Ashley wrote:

Ashley Mogg from Jamaica

“I was feeling extremely unfit. My heart rate sped up and my chest got tight. My throat felt like it was closing, and I was starving for a breath. Then the most frightening thing happened―I started losing my sight! Pitch black was all I saw. I could hear my friend talking to me through it. It was so scary for me.”

Her doctor told her losing sight was a symptom of pre-faint or pre-syncope. Her stress test showed a heart rate that at times went up to 270 bpm.

Clinical Depression Sets In

To make matters worse, her cousin died suddenly. Then Ashley had to have an appendectomy which revealed a low grade Neuroendocrine tumor (cancer). Coupled with her dreadful A-Fib symptoms, she became extremely depressed and anxious (clinical depression is all too common in new A-Fib patients). She also suffered weight loss and became very thin.

No A-Fib Centers in Jamaica

Unfortunately, when I researched resources for her I couldn’t find any A-Fib centers or Electrophysiologists in Jamaica. It was heart breaking that such a young woman had such a debilitating case of A-Fib, and I couldn’t find anyone near her to take care of her.

November 2016: Asking for Funding and Help for Ashley

What I did was publish her story on A-Fib.com and ask for donations to pay for her to see an EP in the U.S. (Read Jamaican Woman, 21, Living in A-Fib with Meager Treatment)

Dr. Natale confirmed that there was no EP lab in Jamaica and would try to find money from the A-Fib industry to help Ashley.

In addition, I sent Ashley’s story to Dr. Andrea Natale, a master EP with a world-wide reputation. A colleague of his, Dr. Francesco Santoni, emailed me that he tries to help arrhythmia patients in Jamaica through the Rotary Club and another foundation. Travis Smith, President of the Rotary Club of Downtown Kingston, Jamaica championed Ashley’s cause.

Dr. Natale suggested we work with Dr. Lisa Hurlock in Kingston, Jamaica at the University of the West Indies who could follow her arrhythmia. She met with Ashley and her mother, Loretta. Dr. Natale confirmed that there was no EP lab in Jamaica. He said he would try to find money from the A-Fib industry to help Ashley.

Dr. Natale’s Heroic Efforts to Help Ashley―Biosense Webster Donation

Dr Andrea Natale

Dr Andrea Natale

Dr. Natale obtained a donation from Biosense Webster (Johnson & Johnson) to cover travel expenses for Ashley and her mother to St. David’s Medical Center, Austin, TX including lodging, food and transportation. He also arranged for St. David’s to waive all fees for Ashley’s catheter ablation. The Texas Cardiac Arrhythmia Foundation accepted donations to help Ashley. Barbara Thomas and Amy Dixon coordinated everything at St. David’s.

(I probably don’t have all the names of everyone involved in helping Ashley. Please email me if I haven’t mentioned you or someone else who helped.)

Ashley, mom Loretta and hospital staff

July 2017: Ashley Has Her Ablation & is A-Fib Free!

On July 19, 2017, Ashley had her ablation. She is now A-Fib free. It was performed by Dr. Natale and his team at St. David’s Medical Center, Austin, TX. Since then, she has written that she is doing fine and has started college in Jamaica (she wants to go to medical school).

In an excerpt from her personal story (written before her ablation became a reality), Ashley shared these lessons learned:

“Educate Yourself―Find the Best Doctors Available. If you live in a country like myself where there are very few Electrophysiologists or heart rhythm specialists, find a reliable cardiologist as well as a general doctor who know your history. Do maximum research on your own and with your doctor and health care professionals. Stay informed.
…Stay positive…You are NOT ALONE!”

Remarkable for a 21-year old who has had a rapid beating heart since childhood.

March 2018 Update: Email from Ashley’s Mother

Loretta Mogg, Ashley’s mother recently wrote me:

Ashley and her mom, Loretta

“I am Loretta Mogg, the mother of Ashley Mogg. I want to express a heartfelt thanks to you for posting my daughter’s story and seeking help for her.
Just a little update. After nearly a year since her ablation, she is back in University and doing well. She is still determined to become a doctor.
Thank you for allowing God to use your own experience to change the life of another. Blessings to you and your family.”

Thanks to All, Especially to Dr. Natale

It’s impossible to adequately thank everyone, especially Dr. Natale, who helped Ashley in her incredibly difficult A-Fib journey.

I don’t know if we’ll ever understand how a young 17-year-old woman could develop such awful A-Fib symptoms. (Perhaps it related to her cancerous appendectomy.)

Faith and a Purposeful Life

Kudos to Ashley for not giving up with all she went through! She’s an incredible young woman. She had to grow up fast. She became a woman of faith with a purposeful life. In her own words, “It takes prayers and positive thinking to keep living with peace of mind.”

Be Inspired: You, too, Can Help Others With A-Fib

One-to-One, our A-Fib Support Volunteers are just an email away at A-Fib.comOne way to live a life of faith and purpose is to help others suffering with Atrial Fibrillation. Join our Prayer and Positive Thoughts group or our A-Fib Support Volunteers group.

Offering hope: Having someone you can turn to for advice, emotional support, and a sense of hope that you can be cured, may bring A-Fib patients (and their families) peace of mind.

We are blessed to have many generous people who have volunteered to help others get through their A-Fib ordeal (not all are ‘cured’). To learn more and how you can join the effort, see my article: ‘Want to Become a A-Fib Support Volunteer?

New A-Fib Story: Relentless After 2 Failed Ablations―Leads to a 3rd Using the ECGI Vest

We’ve posted a new personal A-Fib story by Martin Johnson from Champaign, IL. His story also includes a post-script by his doctor, Dr. Phillip Cuculich, Barnes-Jewish/Washington University. Martin did a lot of research in his years with A-Fib. He learned about the Medtronic ECGI vest, an advanced mapping technology and about its inventor, and the benefits of the contact force sensing catheter.

Martin Johnson

Martin’s A-Fib first occurred in 2003 during a game of underwater hockey (an extreme sport requiring swimming under water while pushing a lead puck from one end of the pool to the other).

Martin shares with us:

At first, I thought “well I did just swim 25 yards under water as fast as I could, so maybe this is just normal”. It lasted about 20 seconds. The attacks quickly increased their duration to a couple hours each over the next couple months. I was forced to give up the game I’d been playing since age 37.
For the first couple of years I only got attacks after physical exertion. As time went on, less and less exertion was required to trigger one. After going through 6 different drugs, most of which had no effect, one of which almost killed me and another that modified my attacks, I had no net improvement. 

“My EP’s prognosis was―’ever more often, ever longer attacks until I would be in permanent A-Fib’”.

After seven years with A-Fib, I was getting approximately 24-hour long attacks about every four days plus occasional attacks triggered by physical exertion.
I had my first RF ablation in July of 2010. Two hours after the ablation, I was in A-Fib again.

My A-Fib attack timing continued without letup— 24-hour-long attacks every 4 days. I agreed to a second ablation 6 months later. …Continue reading Martin’s A-Fib story->

At 55, A-Fib After Underwater Hockey, Then 2 Failed Ablations & a 3rd Using the ECGI Vest

By Martin Johnson, Champaign, IL. March 2018
With a post-script by Dr. Phillip Cuculich, Barnes-Jewish/Washington Un.

Martin Johnson

“My first A-Fib attack that I noticed, occurred in 2003 when I was 55 years old during a game of underwater hockey, an extreme sport requiring swimming under water while pushing a lead puck from one end of the pool to the other.

At first, I thought “well I did just swim 25 yards under water as fast as I could, so maybe this is just normal”. It lasted about 20 seconds.

The attacks quickly increased their duration to a couple hours each over the next couple months. I was forced to give up the game I’d been playing since age 37. I switched sports to softball, but that soon became impossible too, as I got an A-Fib attack every single game (but oddly, never at a practice).

A-Fib Progresses―Attack Just Sitting at Desk

For the first couple of years I only got attacks after physical exertion. As time went on, less and less exertion was required to trigger one.

I had my first attack without any kind of physical exertion while sitting at my desk at work. It scared me enough to see the local EP who recommended that I get an ablation. I thought that was too aggressive and instead started to try various drugs.

“My EP’s prognosis was―’ever more often, ever longer attacks until I would be in permanent A-Fib’”.

After going through 6 different drugs, most of which had no effect, one of which almost killed me and another that modified my attacks, I had no net improvement. My EP’s prognosis was “ever more often, ever longer attacks until I would be in permanent A-Fib”.

By 2010, I was getting approximately 24-hour long attacks approximately every four days plus occasional attacks triggered by physical exertion.

My First Ablation

I had my first RF ablation in July of 2010. I asked the EP if I should be in my natural A-Fib before the ablation, so that he could locate the problem cells. He said ‘no’. Instead, he induced A-Fib chemically. His approach was to isolate the PVs and draw several other lines in the left atrium. He then ablated the cells that he could detect taking part in the A-Fib that he induced.

He successfully got my heart back into Sinus Rhythm (SR), and was unable to further induce A-Fib. His OR report says that he expected this to have been a cure. (An O.R. [Operating Room] report describes what the EP did during the ablation.)

Two hours after the ablation, I was in A-Fib again.

In A-Fib Again―Leads to a Second Ablation

My A-Fib attack timing continued without letup— 24-hour-long attacks every 4 days. I agreed to a second ablation 6 months later.

“Two hours after the ablation, I was in A-Fib again.”

The OR Report for the second ablation was essentially the same as the first, and so were the results. After both ablations, I acquired new arrhythmias that annoyed me even while not in A-Fib. After about 6 months, the new arrhythmias abated, and my A-Fib pattern changed to 24 hours every 7 days—a small but welcome improvement.

Over the next five years, the attacks became longer and more frequent— by Jan 2016, I had 45 hours of A-Fib every 7 days.

Third Ablation? I Needed an Edge

Still I was not optimistic about a third ablation considering my previous poor results.

Medtronic ECGI vest

I decided I needed an edge—something that might be able to find whatever oddball A-Fib cause made me difficult to cure. The one thing that stuck out in my reading was the Medtronic ECGI vest used in Bordeaux, France by Dr Haissaguerre and others. [See How ECGI (Non-Invasive Electrocardiographic Imaging) Works.]

The 256 electrode ECGI vest enabled the graphic display of the electrical activity of the heart passively and totally non-invasively. Unfortunately, Dr Haissaguerre’s office would not respond to any of my attempts to contact him. And I learned that the FDA would not permit the use of the vest in the US as part of an ablation procedure.

Travel to St. Louis Where the ECGI Vest Was Invented

It seemed that all doors to the vest were shut. After some investigation, I discovered that the vest had actually been invented in the US at Washington Un. in St. Louis, MO. In January 2016

“I volunteered for a study…that might help me get use of the vest in spite of the FDA.”

I called up the inventor’s lab to get as much information as I could. I volunteered for a study with the hope of making connections that might someday help me get use of the vest in spite of the FDA.

In January 2017, I went to St Louis and got a CT scan and a vest recording for the study I had volunteered for. While there, I noticed a Dr. Cuculich come into the lab to borrow a vest. I immediately thought, this is the guy I need to keep track of.

FDA Approves Medtronic ECGI Vest―My New Hope!

Then the next month, Feb 2017, the FDA approved a commercial version of the vest made by Medtronic for use with A-Fib ablation.

By this time, I was having 48 hour attacks every 4 days. I called Medtronic to get a list of who in the US had bought the vest and who had any experience using it. To my relief, Barnes-Jewish Hospital in St Louis was one of only four buyers, and Dr Cuculich already had experience using the vest on non-A-Fib applications.

Now that I had located a possible vest practitioner, I still had to resolve other concerns. In particular, even Dr Haissaguerre in France didn’t use the vest on paroxysmal A-Fibbers. He only used the vest on patients with permanent A-Fib. I don’t know why. I was convinced that being in my natural A-Fib and not in chemically induced A-Fib, was essential to find the real causes. I also knew that I could put myself into A-Fib by physical exertion.

BisenseWebster Smart Catheter illustrations

Example of Contact force catheter (Biosense Webster)

Another Technology Edge: The Contact Force Catheter

Another technology that seemed important was the technique of dragging the catheter in order to burn a continuous line, rather than trying to burn individual dots. To help with this, a contact force catheter also seemed necessary. I first became aware of this due to a paper written by Dr Natale of Austin, TX. (see Resources below for article.)

A Concern: I Don’t Want to Lose My LAA

Another concern of mine was the insistence by some EPs to electrically isolate the Left Atrial Appendage (LAA).

“…in my mind…if the ablation worked, there would be no advantage to having closed off the LAA.”

During A-Fib, the blood in the LAA becomes stagnant, permitting the formation of clots.

But cutting off incompletely understood parts of one’s heart seemed exceedingly rash. Also, if the ablation worked, there would be no advantage to having closed off the LAA. So, closing off the LAA was just preparing for a failed ablation, in my mind.

About the Left Atrial Appendage (LAA)

What little is known about the LAA includes the fact that it is the source of heart stem cells needed for repair of the heart.

It was once thought that the heart cells you died with were the same ones you were born with. The latest belief is that about 40% of your heart is replaced during a full life.

This is a function I did not want to lose.

The LAA is also the source of a hormone which helps control blood pressure. The LAA also has a pumping function in parallel with the Left Atrium. And electrically isolating the LAA can often significantly reduce the contractile function of the LAA, thus making it a source of clots even when the heart is not in A-Fib.

Consulting Dr. Phillip Cuculich at Barnes-Jewish/Washington Un.

I called up Barnes-Jewish to inquire about my above listed concerns. Dr Cuculich called back and assured me that he was able and willing to meet all these requests:

1) Use the ECGI vest during ablation even though I’m paroxysmal;
2) To expect me to be in my organic A-Fib;
3) After getting me into Normal Sinus Rhythm, chemical induction of A-Fib was OK to track down more problems;
4) Use a contact force catheter and draw continuous lines rather than dots;
5) Leave my LAA electrically and physically intact.

Third Ablation―Running Up Flights of Stairs

The night before the scheduled ablation, I ran up and down a flight of stairs ten times which put me in my organic A-Fib in preparation for the following morning’s ablation.

On Nov 2, 2017, two Medtronic technicians fitted the 3-piece vest onto my torso. The ablation procedure took 5 hours—a lot longer than Dr Cuculich was planning on.

I woke up in NSR! The doctor noted that an A-Fib source in a pulmonary vein was active, but was already successfully being blocked by the ablation.

In Normal Sinus, But Short Bursts of A-Fib

Since the ablation 3.5 months ago, I have had about 15 A-Fib attacks totaling about 7 hours of A-Fib. [It’s not uncommon for A-Fib to reoccur during the three month ‘blanking period’ following an ablation.]

I believe every attack was triggered by drinking cold water. It took me a while to figure that out. I have not had an attack for the last month, during which I was able to remember ‘no cold water’!

Lessons Learned

For future reference: I read that Dr Cuculich was the lead investigator in a study of a totally non-invasive ablation procedure that uses the Medtronic vest to find the problems and ‘multi-beam focused radiation’ to ablate the errant heart cells.

I’m hoping that if my A-Fib comes back, that the FDA won’t have been as slow permitting this new method, as they were with the vest (see Resources below for link).

In light of my experience, I would recommend that no one get an ablation without the advantage of the Medtronic ECGI vest. Without it, the EP is only guessing.

Using canonical ablation patterns that might have worked on some group of A-Fibbers, or using the old fashioned way of dragging a sensing catheter along the entire inner surface of a beating heart looking for electrical anomalies, is laughable to me.

It’s no wonder that my first EP couldn’t find the A-Fib sources inside my coronary sinus and right atrium. I welcome your emails.”

Marty Johnson
martyj1949(at)yahoo.com

Comments from Dr. Phillip Cuculic

Electrophysiologist Phillip Cuculich, MD

Phillip Cuculich, MD

“Thank you, Steve, for the chance to reply [to Martin’s A-Fib story]. And thank you, Martin, for sharing your story with the world. Brave patients and advocates like you are a powerful combination in today’s world of medicine.

Our understanding of any arrhythmia mechanism falls into two bins: the initiating event (triggers) and the sustaining circuit.

Over the past several decades, invasive procedures have identified common locations that harbor AF triggers, which is how pulmonary vein isolation has been an effective procedure to control AF for most patients. In general, we as a field have struggled in identifying reproducible non-PV triggers and the sustaining AF circuits.

One reason for our struggle is the tools with which we measure. A second reason is that each person’s AF is different, so the findings of one group of patients is not easily applicable to an individual patient that I meet for consultation.

Martin’s experience with noninvasive ECGI is a wonderful example of personalized medicine: treating an individual patient’s AF physiology. Credit for the development and clinical validation of this technology goes to the scientists, clinicians and industry development teams which include Dr. Yoram Rudy (Washington University), the amazing scientists who graduated from his lab, the intrepid clinical and investigational teams in Bordeaux, France, and the hard-working developers at CardioInsight and Medtronic.

Presently, thoughtful application of noninvasive ECGI is getting us closer to personalized AF treatment. Further development, testing, and refinement of the ECGI system is underway. While there is much more to accomplish in understanding the critical components of each individual patient’s AF, one cannot help but hear the hope dripping from the story that Martin shared.”

Editor’s Comments
I admire Martin’s tenacity in seeking his A-Fib cure after two failed catheter ablations. He educated himself about his disease and its treatments. Then he sought out an EP who would meet his needs, even drawing up a five-point check list to discuss before his third ablation. Well done, Martin!
Martin’s O.R. Report: Dr. Cuculich found all Martin’s PV’s were still not isolated or had re-connected. After his two previous ablations, all Martin’s PVs had connected/re-connected. Dr. Cuculich also found many gaps in Martin’s previous roof and mitral isthmus ablation lines.
ECGI Vest Found Hard-To-Map Drivers: The Medtronic ECGI Vest mapping system found Non-PV driver areas in Martin’s heart that easily could have escaped notice with routine mapping systems, areas such as the Coronary Sinus, Left Superior Pulmonary Vein and lateral Right Atrium.
During Dr. Cuculich’s ablation, Martin’s A-Fib/Flutter terminated when his Coronary Sinus was effectively ablated and isolated. This is considered the best outcome of an ablation. Most EPs would have stopped at this point. But because the Medtronic ECGI vest had indicated there were more A-Fib signal sources not yet ablated, Dr. Cuculich ablated those areas as well.
Medtronic ECGI Vest Very Effective! Martin’s A-Fib was a difficult case after two failed ablations. Instead of the usually 2-3-hour ablation, Martin’s took 5 hours, probably because the previous 2 ablation lesions made the third ablation more complicated.
The Medtronic ECGI Vest seems to be a major advance and improvement in the treatment of A-Fib. It certainly worked in Martin’s case. But at this time, few centers in the U.S. are using it and are only beginning to develop significant experience. This is because Medtronic wants the system to work as best as possible before making it more widely available.
What this means to patients: If you have persistent A-Fib or would be considered a potentially difficult case, try to find a center or EP with experience using the Medtronic ECGI Vest (even though you may have to travel.) It seems to be the next major advance and best mapping/ablation system on the market.

References for this Article

Kolata, G. A ‘Game Changer’ for Patients With Irregular Heart Rhythm. The NewYorkTimes.com, Dec. 13, 2017. https://www.nytimes.com/2017/12/13/health/heartbeat-tachycardia-radiation.html

Cuculich, P. S., et al. Noninvasive Cardiac Radiation for Ablation of Ventricular Tachycardia. December 14, 2017. N Engl J Med 2017; 377:2325-2336. DOI: 10.1056/NEJMoa1613773. http://www.nejm.org/doi/full/10.1056/NEJMoa1613773

Ryan, S. The New Era of Catheter Ablation Technology: Force Sensing Catheters. A-Fib.com http://a-fib.com/moussa-mansour-md-force-sensing-catheters-2014-bafs/

Ryan, S. The Role of the Left Atrial Appendage (LAA) & Removal Issues. A-Fib.com http://a-fib.com/left-atrial-appendage-role-and-removal-issues/

Natale, A., et al. Paroxysmal AF Catheter Ablation With a Contact Force Sensing Catheter: Results of the Prospective, Multicenter SMART-AF Trial. Journal of the American College of Cardiology, 2014. ISSN: 1558-3597, Vol: 64, Issue: 7, Page: 647-56. https://doi.org/10.1016/j.jacc.2014.04.072

Learn about sharing your A-Fib story

Return to: Personal A-Fib Stories

If you find any errors on this page, email us. Y Last updated: Friday, June 22, 2018

Big Payoff: An A-Fib Diary Helps You Cope

Pat Truesdale’s Atrial Fibrillation was very symptomatic and she could not tolerate any of the medications. In her personal A-Fib story, she shares how keeping an A-Fib Diary helped her cope. Through interpreting her log entries, she learned what triggered her A-Fib, what signs indicated an A-Fib attack was coming on, and some actions she could do that helped her during an A-Fib episode:

63. Personal Experience of Pat Truesdale

Pat Truesdale, now A-Fib free

“…I began to learn what activated my A-Fibs and what helped during my episodes. This was a real discovery about me! I learned that ice drinks, full meals, and caffeine all triggered my A-Fibs. I started a diary to record all my symptoms.

With Steve’s [Ryan] suggestion and my local cardiologist’s, I now know I have Vagal Lone A-Fib. This means certain conditions can trigger my A-Fib attacks. This is what I learned triggers my A-Fib:

• Iced Drinks
• 
Caffeine
• 
Heavy meals
• 
Quiet times relaxing
• 
Sleep time at night
• 
Medicines
• 
Blood pressure going up
• 
Low pulse

Here are some symptoms I discovered that are indications an A-Fib episode is coming!

• High blood pressure
• 
Belching
• 
Heartburn
• 
Frequent need to pee (also ISH symptom—Isolated Systolic Hypertension)
• 
Low pulse while exercising (A-Fibs never happened during exercise)
• 
Flutters or skipped heart beats
• 
Light headache (BP is higher)

Here are some things that help me during my A-Fibs:

• Knowing A-Fib would occur after exercising while I am resting.
• Take a tablespoon of Mylanta
• Yoga breathing
• lf ice water brings it on, ice water sometimes reverts it!
• Drink plenty of water all day
• Blowing into a straw lowers the pulse rate, but does not stop the A-Fib
• Don’t Panic – Have a “This Too Shall Pass” attitude
• Walk around, but don’t exercise since my pulse is too high already

• Take 200 mg of magnesium 3X a day 

• Take a B complex vitamin every day

Doing her detective work helped her make a treatment choice:

…I wanted to get this procedure over quickly. I wanted to start feeling like a normal human being again! So, I trusted my local cardiologist’s choice and had the [ablation] procedure.”

Pat’s diary of her A-Fib triggers is not unusual, especially for people with Vagal A-Fib (though not everyone will be affected by the same triggers).

But the symptoms she describes as predicting or forewarning her A-Fib attack are new and very insightful. (Thanks for sharing, Pat.) Her list of things that helped her get through A-Fib episodes may also be helpful to you.

Be a Sleuth: Keep an Episode Diary

Take your A-Fib binder to your appointments

Share your log with your doctors

You, too, may be able to predict when you’re going to have an A-Fib attack. Start by keeping a log or diary of your A-Fib episodes for three or six months. When an episode occurs, note the day & time, duration and what you were doing, eating or drinking.

As you collect data, scrutinize your log entries for patterns and specific triggers. This may lead you to lessen or eliminate certain foods or beverages or even activities that appear to trigger your A-Fib. You may want to share your log with your doctor.

Don’t be discouraged if you don’t find a pattern, not every log will be revealing. A-Fib seems to have a mind and schedule of its own that’s often hard to predict.

A-Fib Cured in Record Time

Pat probably has set a record for getting cured of A-Fib in the shortest time. Current guidelines recognize catheter ablation as a first line therapy for treating A-Fib (remember: she couldn’t tolerate the medications). After only eight weeks of being in A-Fib, she had a successful CryoBalloon Ablation. To read Pat’s personal A-Fib story, go to Active 64-Year-Old with Family History of A-Fib Gets a CryoBalloon Ablation Eight Weeks after First A-Fib Attack.

Cloud graphic - Michele Straube, A-Fib-free after 30 years - A=Fib.com

Michele Straube, A-Fib-free after 30 years.

Steve’s Mailbox: Harlan Shares How He Gets Out of A-Fib Within 15 minutes

Harlan Alpern, M.D., Cooperstown, New York, wrote me about his unusual A-Fib trigger and a way he successfully controls his A-Fib attacks:

“I am a 72-year-old retired physician who developed atrial fib (lone and paroxysmal) at age 61. My initial trigger was a strong emotional stress event.

Although I have the common triggers for A-Fib including alcohol, coffee, and lying on my left side, the principal trigger for me for A-Fib is emotional stress (and negative emotions especially since I have given up alcohol and caffeine.). This can come from something as simple as watching an emotional or scary movie or television show. I had such an episode this evening which prompted my email to you.”

An Unusual A-Fib Episode Treatment

Xanax, generic name: alprazolam

Dr. Alpern went on to describe an A-Fib episode treatment that works quickly for him. Maybe it will work for you, too.

“I have found a therapy that gets me out of A-Fib within 15 minutes. I take a 1 mg tablet of Xanax and lie on my back in the dark. I occasionally check my heart with my stethoscope. Within 15 minutes I am back into sinus rhythm.

My current cardiologist told me he was not aware of Xanax being a therapy to affect cardio version from A-Fib into sinus rhythm, however my internist kindly provides me a prescription for the Xanax. (I have a New York state medical license but dropped my DEA license after I retired in 2007 so that I cannot order it for myself.)”

I read Dr. Alpern’s email with interest and wrote back to him:

Thank you for sharing what gets you out of an A-Fib attack. I have one similar story about Xanax (a minor tranquilizer). An A-Fib.com reader, Sally, wrote me that her A-Fib comes on at night and is very severe, preventing her from sleeping. “I get up and take Xanax 0.5 mg, and within 15 minutes or so, the A-Fib stops. And I can go to sleep.”

Conquering Your A-Fib Episodes

Share what’s working-email me.

Xanax and Beta-Blockers: Xanax (alprazolam), though primarily used for the treatment of anxiety disorders, appears to have beta-blocker properties. Beta-blockers are typically prescribed to treat high blood pressure and heart problems, and they are prescribed off-label for anxiety. Xanax is a different kind of drug, a benzodiazepine, that is a type of tranquilizer.

But be advised it’s recommended to not take Xanax on a regular basis for more than 2-3 weeks because of the danger of addiction.

Using Xanax for Your A-Fib? Anyone else using Xanax to help with their A-Fib attacks? To tell me about it, just email me.

Scary Movie A-Fib Trigger: I have never heard of a simple emotional stress such as a scary movie triggering an A-Fib episode. Does anyone else have a similar trigger? Email me and share your experience.

Always aim for a cure! As we continue our correspondence, I’ll encourage Dr. Alpern to seek his A-Fib cure.

Eleven years of living in A-Fib is a long time. I’ll urge him to talk with his electrophysiologist about a catheter ablation. (I had mine 20 years ago and am still A-Fib free. I’m age 77 and very active.)

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