Doctors & patients are saying about 'A-Fib.com'...


"A-Fib.com is a great web site for patients, that is unequaled by anything else out there."

Dr. Douglas L. Packer, MD, FHRS, Mayo Clinic, Rochester, MN

"Jill and I put you and your work in our prayers every night. What you do to help people through this [A-Fib] process is really incredible."

Jill and Steve Douglas, East Troy, WI 

“I really appreciate all the information on your website as it allows me to be a better informed patient and to know what questions to ask my EP. 

Faye Spencer, Boise, ID, April 2017

“I think your site has helped a lot of patients.”

Dr. Hugh G. Calkins, MD  Johns Hopkins,
Baltimore, MD


Doctors & patients are saying about 'Beat Your A-Fib'...


"If I had [your book] 10 years ago, it would have saved me 8 years of hell.”

Roy Salmon, Patient, A-Fib Free,
Adelaide, Australia

"This book is incredibly complete and easy-to-understand for anybody. I certainly recommend it for patients who want to know more about atrial fibrillation than what they will learn from doctors...."

Pierre Jaïs, M.D. Professor of Cardiology, Haut-Lévêque Hospital, Bordeaux, France

"Dear Steve, I saw a patient this morning with your book [in hand] and highlights throughout. She loves it and finds it very useful to help her in dealing with atrial fibrillation."

Dr. Wilber Su,
Cavanaugh Heart Center, 
Phoenix, AZ

"...masterful. You managed to combine an encyclopedic compilation of information with the simplicity of presentation that enhances the delivery of the information to the reader. This is not an easy thing to do, but you have been very, very successful at it."

Ira David Levin, heart patient, 
Rome, Italy

"Within the pages of Beat Your A-Fib, Dr. Steve Ryan, PhD, provides a comprehensive guide for persons seeking to find a cure for their Atrial Fibrillation."

Walter Kerwin, MD, Cedars-Sinai Medical Center, Los Angeles, CA


A-Fib Support Volunteer & Groups

Volunteer photos

My First-Hand Experience with our Positive Thoughts/Prayer Group

One of the best things we’ve ever done at A-Fib.com is setting up the Positive Thoughts/Prayer support group. When you have an important treatment decision or an upcoming procedure or surgery, you can contact our volunteer group and ask for their support.

My Personal Experience: Prayer and Positive Thoughts

At A-Fib.com, we believe in the healing power of prayer and of positive thoughts!

Instead of just writing about this phenomenon, I experienced it myself when I asked the group for positive thoughts & prayers for the success of my upcoming intestinal surgery on March 28, 2018.

So may people emailed me such heartfelt support it brought tears to my eyes. It was very encouraging to know I wasn’t alone, that so many cared about me. Can’t thank you all enough! (BTW: My post-op is going well.)

Are You Seeking Guidance from a Higher Power?

Are you in need of prayer? Positive thoughts? To learn how to send in your request, go to our A-Fib.com Positive Thoughts/Prayer Group.

Additional Reading

The Anatomy of Hope: How People Prevail in the Face of Illness by Jerome E. Groopman. Written by an oncologist and citing actual patient cases (mostly cancer), Dr. Groopman explores the role of hope in fighting disease and healing. Top scientists are interviewed who study the biological link between emotion and biological responses; the most relevant studies are reviewed.

The author shows how hope, belief and expectations can alter the course of our lives, and even of our physical body. HOPE works! (Read my review on Amazon.com.)

Listen to an audio interview with The Anatomy of Hope author, Dr. Groopman on NPR’s Fresh Air program (recorded Sept. 2004; 20 min.)

Ronny, Our Newest A-Fib Support Volunteer—Not Cured—Yet!

We welcome Ronny Sullivan, a new A-Fib Support Volunteer, who’s from West Seattle, WA, USA. Our newest recruit is not cured and is still fighting to fix his A-Fib.

His history with Atrial Fibrillation spans 10-15 years and includes two failed ablations, a stroke, and several cardioversions. Along the way, he’s done extensive research about his condition.

“I know how scary A-Fib is at first, and how much mis-information is out there.

Ronny Sullivan, West Seattle, WA

I am still not cured, but have had recent success with Betapace (sotalol) and deep breathing. I will have another ablation at some point, probably with Dr. Natale.”

Ronny has gone through a lot while seeking his A-Fib cure. He wants to help others who are also dealing with Atrial Fibrillation. He welcomes your email (ronnysullivan(at)yahoo.com) or you can phone him at (206) 396-7682 (Pacific time zone).

Our World-Wide Network of Volunteers

Our A-Fib Support Volunteers offer their support and hope through exchanging emails and sharing their stories. We invite you to learn more about our world-wide network and browse our list of volunteers. Go to A-Fib Support Volunteers.

Ronny: I’m glad to have you with us, and thanks for volunteering to help others with Atrial Fibrillation.

“Steve’s website provides a central resource to which we should all contribute with information about our own experiences where we think they can help others… .” Neville Greenwell, Perth, Western Australia

Encourage Another with A-Fib—Become an A-Fib Support Volunteer!

There are many ways you can participate at A-Fib.com. One important role is being an A-Fib Support Volunteer— someone who offers another A-Fib patient hope and encouragement.

Atrial Fibrillation changes your life. When diagnosed, it helps to talk with someone who has (or had) A-Fib. That’s the role of our A-Fib Support Volunteers—someone who has “been there” and is there for other patients. These volunteers have been helped along the way and want to return the favor.

We Offer One-to-One Support

We’re not like most A-Fib discussion groups and other online support groups. Our Volunteers offer one-to-one support and hope by exchanging emails, being a sounding board and sharing their own A-Fib story.

We are blessed to have many generous people from all corners of the globe who have volunteered to help others get through their A-Fib ordeal. Most A-Fib Support Volunteers are not medical personnel  They are not paid. They come from widely different backgrounds.

Note: Not all Support Volunteers are ‘cured’ of their A-Fib, but have found the best outcome for themselves.

A few of our many A-Fib.com Volunteers at A-Fib.ccom

A few of our many A-Fib.com Volunteers

How About You? Want to be an A-Fib Support Volunteer?

You can help someone struggling with A-Fib, offer emotional support and encourage another patient to seek their cure.

If this interests you, browse the A-Fib Support Volunteers page and see my article: ‘Want to become a A-Fib Support Volunteer?’

A-Fib Positive Thoughts/Prayer Group: Another Support Group. To learn about our A-Fib Positive Thoughts/Prayer Group and how to send in your request, go to our A-Fib.com Positive Thoughts/Prayer Group.

Seeking Support: She Emailed Me After Her MD Said “It’s All In Your Mind”

I was reminded recently about an email I received from a woman in England. She described her horrendous A-Fib symptoms—palpitations, extreme fluttering, breathlessness and “absolute extreme fatigue.” 

While her symptoms were troubling, the next part of her email really shocked me!

Her doctor said her breathlessness and exhaustion had nothing to do with her A-Fib. That these symptoms were all in her head. That she was exaggerating.

As an A-Fib community we think we’ve come a long way in our understanding of Atrial Fibrillation and how to treat it. Many of us have—but not everyone.

And what’s most surprising about this story is that her doctor was a woman! (It’s usually males who tell females that’s its all in their mind.) Go figure!?

A-Fib doctor with stethoscope

“It’s All In Your Mind” her MD said.

Though the author of the email probably knew this already, I wrote back and explained to her:

”The symptoms you describe usually come along with Atrial Fibrillation (A-Fib). Fluttering, palpitations, feeling like your heart is going to jump out of your chest or that there are mice rolling bowling balls inside your heart―these are feelings most of us have who suffer from A-Fib.
You experience breathlessness and extreme fatigue because your heart isn’t pumping properly. Normally the upper part of your heart (the atria) squeeze blood down into the lower part (the ventricles) which then pump the blood to the rest of your body. But in A-Fib the upper part of your heart doesn’t squeeze down but instead quivers, vibrates, fibrillates. You lose 15%-30% of your normal pumping volume.
If you could look inside your heart, it would look like a plate of shaking Jell-O. Of course you feel breathlessness, fatigue, dizziness, etc.!”

You are not alone. A-Fib.comPatient’s Want More Than Just the Facts

A-Fib patients need more than just an up-to-date, informed health provider. When people email me, they’re often not just seeking the facts about A-Fib. They’re also seeking support, understanding and empathy.

They need to know that they’re not alone in trying to deal with A-Fib.

Our A-Fib Support Volunteers

Your health provider many not offer the support you need to cope with your A-Fib.

I often tell them about our A-Fib Support Volunteers who are just an email away. We are blessed to have many generous people who have volunteered to help others get through their A-Fib ordeal. They’re fellow A-Fib patients or former patients who are there to listen and offer their support to others suffering from A-Fib. (Visit our A-Fib Support Volunteers page for more info and list of volunteers from around the world.)

Will You Share This Message?

Won’t you share this message with someone who is also suffering from A-Fib? Reassure them, and let them know they are not alone. (And refer them to our  A-Fib Support Volunteers page for more info.)

A few of our many A-Fib.com Support Volunteers

A few of our many A-Fib.com Support Volunteers

Our Worldwide A-Fib Support Volunteers

A few of our many A-Fib.com Support Volunteers; Learn about becoming a A-Fib Support Volunteer

Learn about becoming a A-Fib Support Volunteer

When diagnosed with Atrial Fibrillation, you have many questions. It helps to have someone who has “been there” and is there for you now. Our A-Fib Support Volunteers want to help and are just an email message away.

This list of worldwide A-Fib Support Volunteers is arranged by geographical region. Note: substitute an “@” symbol for the “(at)”.

Read the special poem A-Fib’s Demise
by support volunteer, Emmett Finch, The Malibu Poet

WORLDWIDE

A-Fib Support Volunteers

WESTERN EUROPE

Ira D. L.

Ira L., Rome, Italy; (Fluent in English & Italian) E-mail: idl.sorbo(at)mclinknet.it  (Experience in overcoming heart problems—heart attacks, pericarditis, cardiac asthma, bradycardia, tachycardia, PVCs & PACs, A-Fib [cured 2004], and pacemakers. He wears an ICD.) (see his personal experience story, #31: Living With a Pacemaker/ICD).

AUSTRALIA

Allan, Brisbane, Australia; Email: a-fibfriendallan(at)live.com.au

Ian B., Sydney, Australia; E-mail: vagalman(at)optusnet.com.au

Roy S., Adelaide, Australia; E-mail: roys1(at)tpg.com.au

Warren W., Melbourne, Victoria, Australia; E-mail: redolent(at)bigpond.com (see his personal experience story, #34: A-Fib Free After Two Ablations Down Under)

EASTERN CANADA

Mark G., Barrie, Ontario, Canada; E-mail: stoneabba007(at)gmail.com

WESTERN CANADA

Darrell B., Alberta, Canada; E-mail: bronc9239(at)hotmail.com

UNITED KINGDOM (ENGLAND)

David W., Norwich, Norfolk, England; E-mail: david(at)dandrhomesltd.co.uk

SOUTHERN AFRICA

Leon J., Johannesburg, Cape Town, South Africa; E-mail: leon(at)mbanet.co.za

SOUTHEAST ASIA

Max J.

Lee A., Malaysia; E-mail: amirlee2(at)yahoo.com

Max J., Shanghai, China; E-mail: max.jussila(at)gmail.com (see his personal experience story, #34: “From Shanghai to Bordeaux—a very difficult case requiring two ablations”)

For more information about our A-Fib Support Volunteers and how to volunteer, see my article: ‘Want to become a A-Fib Support Volunteer?’

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If you find any errors on this page, email us.  Last updated: Saturday, May 12, 2018

DISCLAIMER: A-Fib.com Support Volunteers are not medical doctors and are not affiliated with any medical school or organization. Any communication with A-Fib.com Support Volunteers is not intended nor implied to be a substitute for professional medical advice. Always seek the advice of your physician or other qualified health professional prior to starting any new treatment or with any questions you may have regarding a medical condition. Nothing communicated by A-Fib.com Support Volunteers is intended to be for medical diagnosis or treatment. Their opinions are their own.

 

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