Doctors & patients are saying about 'A-Fib.com'...


"A-Fib.com is a great web site for patients, that is unequaled by anything else out there."

Dr. Douglas L. Packer, MD, FHRS, Mayo Clinic, Rochester, MN

"Jill and I put you and your work in our prayers every night. What you do to help people through this [A-Fib] process is really incredible."

Jill and Steve Douglas, East Troy, WI 

“I really appreciate all the information on your website as it allows me to be a better informed patient and to know what questions to ask my EP. 

Faye Spencer, Boise, ID, April 2017

“I think your site has helped a lot of patients.”

Dr. Hugh G. Calkins, MD  Johns Hopkins,
Baltimore, MD


Doctors & patients are saying about 'Beat Your A-Fib'...


"If I had [your book] 10 years ago, it would have saved me 8 years of hell.”

Roy Salmon, Patient, A-Fib Free,
Adelaide, Australia

"This book is incredibly complete and easy-to-understand for anybody. I certainly recommend it for patients who want to know more about atrial fibrillation than what they will learn from doctors...."

Pierre Jaïs, M.D. Professor of Cardiology, Haut-Lévêque Hospital, Bordeaux, France

"Dear Steve, I saw a patient this morning with your book [in hand] and highlights throughout. She loves it and finds it very useful to help her in dealing with atrial fibrillation."

Dr. Wilber Su,
Cavanaugh Heart Center, 
Phoenix, AZ

"...masterful. You managed to combine an encyclopedic compilation of information with the simplicity of presentation that enhances the delivery of the information to the reader. This is not an easy thing to do, but you have been very, very successful at it."

Ira David Levin, heart patient, 
Rome, Italy

"Within the pages of Beat Your A-Fib, Dr. Steve Ryan, PhD, provides a comprehensive guide for persons seeking to find a cure for their Atrial Fibrillation."

Walter Kerwin, MD, Cedars-Sinai Medical Center, Los Angeles, CA


Inspiration

Declare Your Independence! Seek a Life Free of A-Fib

By Steve S. Ryan, PhD.

I’ve been A-Fib free since 1998. You can be too! Read my story and other Personal A-Fib Stories of Hope and Courage including stories by these patients:

Larry Stichweh, Lacey, WA, now A-Fib free since a CryoBalloon ablation in 2016 at age 74, offers this advice:

“Success rate diminishes…As your A-Fib becomes more persistent, the lower your success rate of a permanent cure. Don’t delay too long.” 

Moni Minhas, Calgary, Alberta, Canada, writes about wife Rani’s A-Fib experience, and shares this insight:

“Good health is the best gift we can have. If you have A-Fib (or any health issues), be aggressive and proactive in seeking treatment and advice.”

P.S. This week in the U.S., we celebrate the founding of our country with the signing on July 4, 1776 of our Declaration of Independence. (BTW: Patti found this watermelon photo and writes: “Our family’s Fourth of July picnic celebrations always included a cold slice of watermelon for dessert.”)

See an A-Fib Expert Right Away—a Heart Rhythm Specialist 

‘Find the best heart rhythm specialist (EP) you can afford.’

A-FIB PATIENTS’ BEST ADVICE

From Beat Your A-Fib: The Essential Guide to Finding Your Cure, Chapter 12: Your Journey to a Cure:

Michele Straube

Michele S.

Michele Straube, cured after 30 years in A-Fib, wrote in her personal A-Fib story:

Go to an electrophysiologist, an A-Fib expert, right away, one with a high success rate at getting patients back into normal rhythm—you deserve nothing less.” (pp. 88-90)

Terry DeWitt, cured in 2007 from a clinical trial for CryoBalloon ablation, offered his best advice:

Terry Dewitt at A-Fib.com

Terry D.

“Spend the time to find the best Electrophysiologist (arrhythmia specialist) you can find. It makes a big difference in treatment and in the success of the ablation procedure.” (pp. 138-143)

How to Find the Best Doctor for You

To be cured of your A-Fib, seek a heart rhythm specialist, an cardiac electrophysiologist (EP), who will partner with you to create a treatment plan—a path to finding your cure or best outcome.

To make this happen, see my article, Finding the Right Doctor for You and Your A-Fib.

Run―don’t walk―to the best specialist
you can find in your area.


‘The Top 10 List of A-Fib Patients’ Best Advice’ is a a consensus of valuable advice from fellow patients who are now free from the burden of Atrial Fibrillation. From Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD (beatyoura-fib.com)

Top 10 List of A-Fib Patients’ Best Advice
Please, share the advice ♥ 

Don’t Believe Everything You’re Told About A-Fib

‘Don’t let anyone tell you A-Fib isn’t that serious,
or just learn to live with it’

From Beat Your A-Fib: The Essential Guide to Finding Your Cure, Chapter 12: Your Journey to a Cure. Advice from patients now free from the burden of Atrial Fibrillation:

ken hungerford on A-Fib.com

Ken H.

Ken Hungerford from New South Wales, Australia, shared:

During this period I asked three cardiologists about these episodes, and they all basically told me to simply put up with them. (pp.125-128)

Sheri Weber from Boyce, Virginia, was dissatisfied with the answers from her doctor:

Sheri Weber on A-fib.com

Sheri W.

“I questioned the cardio doctor about my future with A-Fib thinking there must be a cure and knowing absolutely nothing about the disease. His response was to tell me many people live with A-Fib and did not suggest any treatment aside from medication. (pp. 106-109)

Warren Welsh, Melbourne, Australia, talks about the years he needlessly endured A-Fib, in part, based on one doctor’s advice:

Warren Welsh on A-Fib.com

Warren W.

I would urge any A-Fib sufferers not to make the same mistakes I did by not researching their treatment options. …I experienced several years of unnecessary suffering by accepting an opinion of one specialist who said I would have to live in A-Fib.
I believe that unless there are special circumstances…any advice on treatment that is not directed towards a possible cure should be questioned.”  (pp.116-118)

VIDEO: Buyer Beware: Misleading or Inaccurate A-Fib Info Abounds

Steve Ryan video Freeze frame400 x 360 at 300 resAlways Question the Source

In a short video, Steve S. Ryan, PhD, warns to beware of misleading and incorrect A-Fib information published by reputable sources on the internet and in print media.

Talking with host Skip E. Lowe, Steve gives three specific examples of why you need to be on the lookout for inaccurate statements about Atrial Fibrillation. 3:59 min. Watch video now.


‘The Top 10 List of A-Fib Patients’ Best Advice’ is a a consensus of valuable advice from fellow patients who are now free from the burden of Atrial Fibrillation. From Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD (beatyoura-fib.com)

Top 10 List of A-Fib Patients’ Best Advice
Please, share the advice ♥ 

A-Fib Begets A-Fib: The Longer You Have A-Fib, the Greater the Risk


“My advice to other patients: Know that paroxysmal A-Fib becomes chronic. Drugs only work for so long. Get with a great EP or A-Fib clinic and find your cure.”

Joan Schneider, A-Fib free after Catheter Ablation


The Longer You Have A-Fib, the Greater the Risk

‘A-Fib begets A-Fib.’ The longer you have A-Fib, the greater the risk of your A-Fib episodes becoming more frequent and longer, often leading to continuous (Chronic) A-Fib. (However, some people never progress to more serious A-Fib stages.)

Don’t listen to doctors who want to just control your symptoms with drugs. Leaving patients in A-Fib overworks the heart, leads to fibrosis and increases the risk of stroke. The abnormal rhythm in your atria causes electrical changes and enlarges your atria (called remodeling) making it work harder and harder over time.

Don’t let your doctor leave you in A-Fib. Educate yourself. Any treatment plan for A-Fib must try to prevent or stop remodeling and fibrosis.

To learn more, read my editorial, Leaving the Patient in A-Fib—No! No! No!

Educate Yourself—and Always Aim for a Cure!

‘Daddy Needs His Life Back’ and Other A-Fib Stories of Hope and Courage


“My life is back. I no longer live in the A-Fib shadow and no longer take the drugs. all is now quiet. I no longer have to be content with less…Life is good.”

Robert Dell, A-Fib free since 2002.


Robert shares his story:

“I was the master scenic artist for the ABC-TV soap opera “One Life To Live” in New York City… Like many of you, I  was also athletic and also lived with daily stress, but I did not know what A-Fib was until I was 47… 

Illness was not new to me as I had been spitting up blood from a lung condition called bronchiectasis coupled with chronic bronchitis for over fifteen years. 

Specialists informed me that I had to live with it, although I might drown in my own blood while asleep if the rare chance of sudden vein rupture occurred. This made me somewhat reluctant to use Coumadin or aspirin….” 

Personal A-Fib stories at A-Fib.com

Over 90 personal stories

Continuing reading Robert’s A-Fib story: “Daddy is always tired.” Daddy needed his life back.

Over 90 Personal Stories of Hope and Courage: Many A-Fib.com readers have shared their personal experiences with A-Fib (starting with Steve Ryan’s story). Told in the first-person, each author tells their story to offer you hope, to encourage you and to bolster your determination to seek a life free of A-Fib. Learn more at: Personal A-Fib Stories of Hope.

Does Your Family Know How to Help You During an A-Fib Episode?

Keep Calm and Follow Your A-Ffib Action Plan poster at A-Fib.com


“Keep calm and follow your A-Fib Action Plan.”

Steve S. Ryan, PhD, A-Fib.com.


For your family’s peace of mind, you need to create an ‘A-Fib Action Plan’.

During an A-Fib attack, an A-Fib Action Plan with specific steps is reassuring and helps everyone stay calm. Your family will be confident they’re supporting you in taking the right action at the right time.

To learn how to create your action plan, see: Why & How to Create Your ‘A-Fib Episode Action Plan’.

 

Be Courageous When Seeking Your A-Fib Cure


“When seeking your A-Fib cure: Be courageous! Be assertive! Get the care that you deserve. Do NOT go with the flow.”

From Beat Your A-Fib: The Essential Guide to Finding Your Cure


As you progress through your treatment plan, continue to educate yourself. Read, surf the internet, participate in online discussions. Become an equal partner with your doctors or healthcare team.

Personal Stories of Hope, Courage and Lessons Learned: For encouragement, browse our library of over 90 first-person stories by patients—many now A-Fib-free. Go to our Personal A-Fib Stories of Hope.

 

On Pinterest: Browse Pics of Over 50 Celebs with A-Fib

Mario Lemieux

Atrial Fibrillation doesn’t discriminate. It hits sport professionals (from the NBA, NFL, MLB, NHL), track & field competitors and Olympic champions; politicians and public officials to actors, performers and musicians.

Browse our Pinterest board of over 50 celebs who have dealt with A-Fib. You’ll be amazed at the many personalities and celebrities with A-Fib. For example:

Billie Jean King

MARIO LEMIEUX, Canadian American NHL/AHL Hockey Hall of Fame. Retired from hockey in 2006 because of Atrial Fibrillation.

Gene Simmons

BILLIE JEAN KING, Tennis legend (Wimbledon champ 20 times) and advocate for gender equality. A-Fib came after playing tennis with a friend. “My heart was beating, I thought it was going to come out of my chest.” 

GENE SIMMONS, Musician, bass player for KISS, was cardioverted on an episode of his reality show, “Family Jewels.” 

Ellen Degeneres

ELLEN DEGENERES, Talk show host, comedian. Ellen acknowledged her A-Fib in an episode of her show with Howie Mandel (who also has A-Fib).

Browse our Pinterest board of over 50 celebs who have dealt with A-Fib. Go to “Celebs With A-Fib“.  Or visit all our A-Fib-related Pinterest boards. #afib.

She Calls it a Miracle: No More Meds and Restored Quality of Life


“Do not take ‘this is as good as it gets’ as an answer. Do your own research about what’s possible and take a co-leadership role with your doctor.”

Michele Straube, A-Fib free after 30 years


‘I Want to Cure My A-Fib, Not Just Manage It.’

Keep in Mind: For many A-Fib patients, their best outcome came about only when they told their doctor, ‘I want to cure my A-Fib, not just manage it.’ (And, if needed, they also changed doctors.)

How to Find the Best Doctor for Youor

To be cured of your A-Fib, you may need to ‘fire’ your current doctor. Seek an electrophysiologist (EP), a cardiologist who specializes in heart rhythm problems (the electrical functions of the heart).

Choose a doctor who will partner with you to create a treatment plan—a path to finding your cure or best outcome. To learn how, read Finding the Right Doctor for You and Your A-Fib.

Michele’s Personal A-Fib Story: To learn the importance of finding the right doctor, read Michele Straube’s personal A-Fib experience: Cured after 30 years in A-Fib.

Run―don’t walk―to the best EP you can afford.

Don’t Let Your Doctor Leave You in A-Fib


Don’t live in A-Fib!

“Treating patients with drugs but leaving them in A-Fib, overworks the heart, leads to fibrosis and increases the risk of stroke and dementia. Seek your Cure.”


Leaving the Patient in A-Fib—No! No! No!
The goal of today’s A-Fib treatment guidelines is to get A-Fib patients back into normal sinus rhythm (NSR). Unless too feeble, there’s no good reason to just leave someone in A-Fib. Read more.

Don’t let your doctor leave you in A-Fib. Educate yourself. Learn your treatment options. And always aim for a Cure!

Learn more about all treatments for Atrial Fibrillation.

 

The Longer You Have A-Fib, the Greater the Risk


“A-Fib begets A-Fib. Don’t delay. It’s important to treat your A-Fib as soon as practical.” 

From Beat Your A-Fib: The Essential Guide to Finding Your Cure.


The longer you have A-Fib, the greater the risk of your A-Fib episodes becoming more frequent and longer, often leading to continuous (Chronic) A-Fib. (However, some people never progress to more serious A-Fib stages.) Unless too feeble, there’s no good reason to just leave someone in A-Fib.

Leaving patients in A-Fib overworks the heart, leads to fibrosis and increases the risk of stroke.

Any treatment plan for A-Fib must try to prevent or stop remodeling and fibrosis. Educate Yourself. And always aim for a Cure!

To learn more, see Leaving the Patient in A-Fib—No! No! No!

Don’t Just ‘Manage’ Your A-Fib. Learn All Your Treatment Options. Aim for a Cure.


“Get your A-Fib taken care of. It won’t go away. It may seem to get better, but it will return. Don’t think that the medication is long term solution.”

Danel Doane, A-Fib free after Mini-Maze surgery


Don’t Expect Miracles from Current Medications

Antiarrhythmic drugs are only effective for about 40% of patients. Many patients can’t tolerate the bad side effects. When drugs do work, over time, they become less effective or stop working. According to Drs. Irina Savelieva and John Camm of St. George’s University of London, London, UK:

“The plethora of antiarrhythmic drugs currently available for the treatment of A-Fib is a reflection that none is wholly satisfactory, each having limited efficacy combined with poor safety and tolerability.”

Drugs don’t cure A-Fib but merely keep it at bay.

Learn All Your Treatment Options

Educate yourself about all your treatment options, see: Treatments for Atrial Fibrillation and Which of the A-Fib Treatment Options is Best for Me? Finally, discuss these treatment options with your doctor. This should be a ‘team effort’, a decision you and your doctor will make together.

Don’t just ‘manage’ your A-Fib. Seek your Cure.

Atrial Fibrillation…Like a Thief in the Night


“‘Don’t let A-Fib rob you of your joy of living.
Don’t just take your meds and get used to it.’
Seek your cure.”

Robert Dell, patient quote from
Beat Your A-Fib: The Essential Guide to Finding Your Cure.


Now A-Fib-free, Robert Dell shares:

“I no longer live in the A-Fib shadow and no longer take the drugs. My life is back. I no longer have to be content with less. All is now quiet. The ablations have given me my life back. I no longer have to worry about what pills, foods, or attitudes I should have to avoid A-Fib. I no longer go to sleep at night wondering if I will wake up with A-Fib.”

To read Robert Dell’s A-Fib story, see: Daddy is always tired.” Daddy needed his life back.

A-Fib Patients’ Best Advice #10: Strive to be Your Own Healthcare Champion


‘Become your own
best patient advocate.’


John Thorton from Sioux Falls, SD, about ignoring the bad advice: “The local MDs, cardiologists, EPs, and other local specialists, all told me stuff like: “It is just anxiety,” and “You just need to learn to live with it”. Which was completely WRONG.

Michele Straub, Salt Lake City, Utah, encourages you to be more active in your own treatment plan: “Do not take ‘this is as good as it gets’ as an answer—do your own research about what’s possible. Take a co-leadership role with your doctor.”

Joan Schneider, Ann Arbor, MI: “I was so desperate for answers I started searching on-line. My jaw hit the table. [I said to myelf…] ‘How could my physicians not explain these things to me?’ Once I was able to really comprehend my future, I was able to make things happen.

Seek Support—Our A-Fib Support VolunteersTo become your own best patient advocate, it helps to have someone you can turn to for advice, emotional support, and a sense of hope that you can be cured. Our volunteers are just an email away, see our article, Our A-Fib Support Volunteers.

Make Things Happen: Become Your Own Best Patient Advocate!


‘The Top 10 List of A-Fib Patients’ Best Advice” is a consensus of valuable advice from fellow patients who are now free from the burden of Atrial Fibrillation. From Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD.

Mineral Deficiencies Can Force Fatal Arrhythmia


“Anyone in A-Fib is almost certainly magnesium deficient.

An imbalance or deficiency in minerals like magnesium, potassium, and calcium can force the heart into fatal arrhythmias.”

Steve Ryan, former A-Fib patient, cured since 1998.


Deficiencies in Magnesium and Potassium can force the heart into fatal arrhythmias. Most A-Fib patients are lacking in both minerals.

Magnesium (Mg) is needed for proper muscle, nerve, and enzyme function. Lacking in most diets, it’s often necessary to take a magnesium supplement over several months to restore levels.

To learn more about mineral deficiencies, see Cardiovascular Benefits of Magnesium: Insights for Atrial Fibrillation Patients.

A-Fib Patients’ Best Advice #9: Learn All Your Options Before Making Treatments Choices


‘Educate Yourself on All Treatment Options Before Making Decisions.’


Sheri Weber, Boyce, Virginia: “I questioned my cardio doctor about treatment options other than medication; He told me surgical procedures had very low success rates (WRONG!). Anger and determination led me to research my options .”

Daniel Doane, Sonora, California: “I have gotten a lot of bad advice from various GPs: ‘I think that all of these tests your EP is requesting are just a waste of money.’ and ‘Don’t worry about a little A-Fib. It won’t kill you.’ ”

Joan Schneider, Ann Arbor, MI: “I found everything I needed to know when I came across A-Fib.com, Stopafib.org, and the best support from the A-Fib support group. It was a true experience of input, input, input!”

A-Fib.com, your unbiased source on treatments for Atrial Fibrillation: Check our Treatments section covering diagnostic tests, common mineral deficiencies, drug therapies, cardioversion, catheter ablations and surgery and more.

Don’t Believe Everything You’re Told About A-Fib.


‘The Top 10 List of A-Fib Patients’ Best Advice” is a consensus of valuable advice from fellow patients who are now free from the burden of Atrial Fibrillation. From Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD.

Don’t let anyone tell you that A-Fib isn’t that serious


“Don’t let anyone—especially your doctor—tell you that A-Fib isn’t that serious…or you should just learn to live with it…or to  just take your meds.”

From Beat Your A-Fib: The Essential Guide to Finding Your Cure


The longer you have Atrial Fibrillation, the harder it can be to cure it. A-Fib patient Daniel Doane, Sonora, CA, shares:

“I didn’t realize how continued A-Fib so drastically remodels your heart. ‘A-FIB BEGETS A-FIB’ was the phrase that brought it home to me. Every instance of A-Fib changed my heart, remodeled the substrate, and made it more likely to happen again. Get your A-Fib taken care of. It won’t go away. It may seem to get better, but it will return.”

To be cured of your A-Fib, you may need to ‘fire’ your current doctor, see Finding the Right Doctor for You and Your A-Fib.

A-Fib Patients’ Best Advice #8: Acknowledge the Stress and Anxiety—Seek Emotional Support


Get emotional support for the stress and anxiety, and to keep up your spirits.’


Jay Teresi, Atlanta, GA: “Of the entire experience, anxiety has been the greatest challenge. Be honest with the doctors about it and get help. And help your family to understand as they are your greatest support system.” 

Kelly Teresi, wife of Jay Teresi: “This disease is so far beyond what a non-A-Fib person can comprehend—many times I found myself frustrated, not understanding what was going on with Jay’s thoughts and heart.

Max Jussila, Shanghai, China: “I have never been mentally so incapable. I had become totally obnoxious towards my wife and colleagues. I was only 52 years old…but mentally I was reduced to a six–year-old child with constant tantrums.”

A-Fib Wreaks Havoc with Your Head as Well as Your Heart: Your psyche is just as important as your physical heart. For a step-by-step guide, see our article: Seven Ways to Cope with Your A-Fib Fear and Anxiety.

Recognize the Stress and Anxiety. Seek Emotional Support.


‘The Top 10 List of A-Fib Patients’ Best Advice” is a consensus of valuable advice from fellow patients who are now free from the burden of Atrial Fibrillation. From Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD.

Caution: Some A-Fib-Related Resources are Biased


“Caution: Some A-Fib-related resources may be biased toward a particular treatment techniques, pharmaceutical, or medical device (often for financial gain).

A-Fib Websites: When searching sites on the web, always ask yourself: “Who is paying for this website” And what is their agenda?”.

From Beat Your A-Fib: The Essential Guide to Finding Your Cure.


Our Recommended Resources and Links: We evaluated hundreds of online sites to narrow down our choices for these lists.

We value the information these sites offer or share and they may be useful as you continue your education and expand your knowledge of Atrial Fibrillation. Go to our A-Fib.com Resources and Links.

 

A-Fib Patients’ Best Advice #7: Persevere—Multiple Treatments May be Needed


Persevere-Try More Than One Treatment if Necessary’


Joan Schneider, Ann Arbor, MI, USA, tells about starting with drug therapy: “The Pill-in-the-Pocket (PIP) [drug therapy] served me well prior to my [catheter ablation] procedure.”

Jay Teresi, Atlanta, GA, describes his second ablation after being A-Fib free for three-years: “[My EP] explained that my first procedure was a success. However, during the healing process a tiny spot did not scar [completely] and this allowed the A-Fib to trip again. He ablated that portion and touched up all the other areas. I have now been free of A-Fib [since 2007].”

A-Fib is Not a One-size-fits-all Disease: You may need to address concurrent medical conditions (i.e, hypertension, diabetes, obesity, sleep apnea). Likewise, you may need to make lifestyle changes (e.g., diet, exercise, caffeine, alcohol, smoking).

Be tenacious: Your heart is a resilient muscle that tends to heal itself. You may need multiple treatments (drugs, cardioversion, etc.) and repeated procedures (cardioversion, ablation).

Try More Than One Treatment if Necessary.


‘The Top 10 List of A-Fib Patients’ Best Advice” is a consensus of valuable advice from fellow patients who are now free from the burden of Atrial Fibrillation. From Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD.

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