Doctors & patients are saying about 'A-Fib.com'...


"A-Fib.com is a great web site for patients, that is unequaled by anything else out there."

Dr. Douglas L. Packer, MD, FHRS, Mayo Clinic, Rochester, MN

"Jill and I put you and your work in our prayers every night. What you do to help people through this [A-Fib] process is really incredible."

Jill and Steve Douglas, East Troy, WI 

“I really appreciate all the information on your website as it allows me to be a better informed patient and to know what questions to ask my EP. 

Faye Spencer, Boise, ID, April 2017

“I think your site has helped a lot of patients.”

Dr. Hugh G. Calkins, MD  Johns Hopkins,
Baltimore, MD


Doctors & patients are saying about 'Beat Your A-Fib'...


"If I had [your book] 10 years ago, it would have saved me 8 years of hell.”

Roy Salmon, Patient, A-Fib Free,
Adelaide, Australia

"This book is incredibly complete and easy-to-understand for anybody. I certainly recommend it for patients who want to know more about atrial fibrillation than what they will learn from doctors...."

Pierre Jaïs, M.D. Professor of Cardiology, Haut-Lévêque Hospital, Bordeaux, France

"Dear Steve, I saw a patient this morning with your book [in hand] and highlights throughout. She loves it and finds it very useful to help her in dealing with atrial fibrillation."

Dr. Wilber Su,
Cavanaugh Heart Center, 
Phoenix, AZ

"...masterful. You managed to combine an encyclopedic compilation of information with the simplicity of presentation that enhances the delivery of the information to the reader. This is not an easy thing to do, but you have been very, very successful at it."

Ira David Levin, heart patient, 
Rome, Italy

"Within the pages of Beat Your A-Fib, Dr. Steve Ryan, PhD, provides a comprehensive guide for persons seeking to find a cure for their Atrial Fibrillation."

Walter Kerwin, MD, Cedars-Sinai Medical Center, Los Angeles, CA


Inspiration

Don’t Let Your Doctor Leave You in A-Fib


Don’t live in A-Fib!

“Treating patients with drugs but leaving them in A-Fib, overworks the heart, leads to fibrosis and increases the risk of stroke and dementia. Seek your Cure.”


Leaving the Patient in A-Fib—No! No! No!
The goal of today’s A-Fib treatment guidelines is to get A-Fib patients back into normal sinus rhythm (NSR). Unless too feeble, there’s no good reason to just leave someone in A-Fib. Read more.

Don’t let your doctor leave you in A-Fib. Educate yourself. Learn your treatment options. And always aim for a Cure!

Learn more about all treatments for Atrial Fibrillation.

 

The Longer You Have A-Fib, the Greater the Risk


“A-Fib begets A-Fib. Don’t delay. It’s important to treat your A-Fib as soon as practical.” 

From Beat Your A-Fib: The Essential Guide to Finding Your Cure.


The longer you have A-Fib, the greater the risk of your A-Fib episodes becoming more frequent and longer, often leading to continuous (Chronic) A-Fib. (However, some people never progress to more serious A-Fib stages.) Unless too feeble, there’s no good reason to just leave someone in A-Fib.

Leaving patients in A-Fib overworks the heart, leads to fibrosis and increases the risk of stroke.

Any treatment plan for A-Fib must try to prevent or stop remodeling and fibrosis. Educate Yourself. And always aim for a Cure!

To learn more, see Leaving the Patient in A-Fib—No! No! No!

Don’t Just ‘Manage’ Your A-Fib. Learn All Your Treatment Options. Aim for a Cure.


“Get your A-Fib taken care of. It won’t go away. It may seem to get better, but it will return. Don’t think that the medication is long term solution.”

Danel Doane, A-Fib free after Mini-Maze surgery


Don’t Expect Miracles from Current Medications

Antiarrhythmic drugs are only effective for about 40% of patients. Many patients can’t tolerate the bad side effects. When drugs do work, over time, they become less effective or stop working. According to Drs. Savelieva and Camm:

“The plethora of antiarrhythmic drugs currently available for the treatment of A-Fib is a reflection that none is wholly satisfactory, each having limited efficacy combined with poor safety and tolerability.”

Drugs don’t cure A-Fib but merely keep it at bay.

Learn All Your Treatment Options

Educate yourself about all your treatment options, see: Treatments for Atrial Fibrillation and Which of the A-Fib Treatment Options is Best for Me? Finally, discuss these treatment options with your doctor. This should be a ‘team effort’, a decision you and your doctor will make together.

Don’t just ‘manage’ your A-Fib. Seek your Cure.

Atrial Fibrillation…Like a Thief in the Night


“‘Don’t let A-Fib rob you of your joy of living.
Don’t just take your meds and get used to it.’
Seek your cure.”

Robert Dell, patient quote from
Beat Your A-Fib: The Essential Guide to Finding Your Cure.


Now A-Fib-free, Robert Dell shares:

“I no longer live in the A-Fib shadow and no longer take the drugs. My life is back. I no longer have to be content with less. All is now quiet. The ablations have given me my life back. I no longer have to worry about what pills, foods, or attitudes I should have to avoid A-Fib. I no longer go to sleep at night wondering if I will wake up with A-Fib.”

To read Robert Dell’s A-Fib story, see: Daddy is always tired.” Daddy needed his life back.

A-Fib Patients’ Best Advice #10: Strive to be Your Own Healthcare Champion


‘Become your own
best patient advocate.’


John Thorton from Sioux Falls, SD, about ignoring the bad advice: “The local MDs, cardiologists, EPs, and other local specialists, all told me stuff like: “It is just anxiety,” and “You just need to learn to live with it”. Which was completely WRONG.

Michele Straub, Salt Lake City, Utah, encourages you to be more active in your own treatment plan: “Do not take ‘this is as good as it gets’ as an answer—do your own research about what’s possible. Take a co-leadership role with your doctor.”

Joan Schneider, Ann Arbor, MI: “I was so desperate for answers I started searching on-line. My jaw hit the table. [I said to myelf…] ‘How could my physicians not explain these things to me?’ Once I was able to really comprehend my future, I was able to make things happen.

Seek Support—Our A-Fib Support VolunteersTo become your own best patient advocate, it helps to have someone you can turn to for advice, emotional support, and a sense of hope that you can be cured. Our volunteers are just an email away, see our article, Our A-Fib Support Volunteers.

Make Things Happen: Become Your Own Best Patient Advocate!


‘The Top 10 List of A-Fib Patients’ Best Advice” is a consensus of valuable advice from fellow patients who are now free from the burden of Atrial Fibrillation. From Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD.

Mineral Deficiencies Can Force Fatal Arrhythmia


“Anyone in A-Fib is almost certainly magnesium deficient.

An imbalance or deficiency in minerals like magnesium, potassium, and calcium can force the heart into fatal arrhythmias.”

Steve Ryan, former A-Fib patient, cured since 1998.


Deficiencies in Magnesium and Potassium can force the heart into fatal arrhythmias. Most A-Fib patients are lacking in both minerals.

Magnesium (Mg) is needed for proper muscle, nerve, and enzyme function. Lacking in most diets, it’s often necessary to take a magnesium supplement over several months to restore levels.

To learn more about mineral deficiencies, see Cardiovascular Benefits of Magnesium: Insights for Atrial Fibrillation Patients.

A-Fib Patients’ Best Advice #9: Learn All Your Options Before Making Treatments Choices


‘Educate Yourself on All Treatment Options Before Making Decisions.’


Sheri Weber, Boyce, Virginia: “I questioned my cardio doctor about treatment options other than medication; He told me surgical procedures had very low success rates (WRONG!). Anger and determination led me to research my options .”

Daniel Doane, Sonora, California: “I have gotten a lot of bad advice from various GPs: ‘I think that all of these tests your EP is requesting are just a waste of money.’ and ‘Don’t worry about a little A-Fib. It won’t kill you.’ ”

Joan Schneider, Ann Arbor, MI: “I found everything I needed to know when I came across A-Fib.com, Stopafib.org, and the best support from the A-Fib support group. It was a true experience of input, input, input!”

A-Fib.com, your unbiased source on treatments for Atrial Fibrillation: Check our Treatments section covering diagnostic tests, common mineral deficiencies, drug therapies, cardioversion, catheter ablations and surgery and more.

Don’t Believe Everything You’re Told About A-Fib.


‘The Top 10 List of A-Fib Patients’ Best Advice” is a consensus of valuable advice from fellow patients who are now free from the burden of Atrial Fibrillation. From Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD.

Don’t let anyone tell you that A-Fib isn’t that serious


“Don’t let anyone—especially your doctor—tell you that A-Fib isn’t that serious…or you should just learn to live with it…or to  just take your meds.”

From Beat Your A-Fib: The Essential Guide to Finding Your Cure


The longer you have Atrial Fibrillation, the harder it can be to cure it. A-Fib patient Daniel Doane, Sonora, CA, shares:

“I didn’t realize how continued A-Fib so drastically remodels your heart. ‘A-FIB BEGETS A-FIB’ was the phrase that brought it home to me. Every instance of A-Fib changed my heart, remodeled the substrate, and made it more likely to happen again. Get your A-Fib taken care of. It won’t go away. It may seem to get better, but it will return.”

To be cured of your A-Fib, you may need to ‘fire’ your current doctor, see Finding the Right Doctor for You and Your A-Fib.

A-Fib Patients’ Best Advice #8: Acknowledge the Stress and Anxiety—Seek Emotional Support


Get emotional support for the stress and anxiety, and to keep up your spirits.’


Jay Teresi, Atlanta, GA: “Of the entire experience, anxiety has been the greatest challenge. Be honest with the doctors about it and get help. And help your family to understand as they are your greatest support system.” 

Kelly Teresi, wife of Jay Teresi: “This disease is so far beyond what a non-A-Fib person can comprehend—many times I found myself frustrated, not understanding what was going on with Jay’s thoughts and heart.

Max Jussila, Shanghai, China: “I have never been mentally so incapable. I had become totally obnoxious towards my wife and colleagues. I was only 52 years old…but mentally I was reduced to a six–year-old child with constant tantrums.”

A-Fib Wreaks Havoc with Your Head as Well as Your Heart: Your psyche is just as important as your physical heart. For a step-by-step guide, see our article: Seven Ways to Cope with Your A-Fib Fear and Anxiety.

Recognize the Stress and Anxiety. Seek Emotional Support.


‘The Top 10 List of A-Fib Patients’ Best Advice” is a consensus of valuable advice from fellow patients who are now free from the burden of Atrial Fibrillation. From Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD.

Caution: Some A-Fib-Related Resources are Biased


“Caution: Some A-Fib-related resources may be biased toward a particular treatment techniques, pharmaceutical, or medical device (often for financial gain).

A-Fib Websites: When searching sites on the web, always ask yourself: “Who is paying for this website” And what is their agenda?”.

From Beat Your A-Fib: The Essential Guide to Finding Your Cure.


Our Recommended Resources and Links: We evaluated hundreds of online sites to narrow down our choices for these lists.

We value the information these sites offer or share and they may be useful as you continue your education and expand your knowledge of Atrial Fibrillation. Go to our A-Fib.com Resources and Links.

 

A-Fib Patients’ Best Advice #7: Persevere—Multiple Treatments May be Needed


Persevere-Try More Than One Treatment if Necessary’


Joan Schneider, Ann Arbor, MI, USA, tells about starting with drug therapy: “The Pill-in-the-Pocket (PIP) [drug therapy] served me well prior to my [catheter ablation] procedure.”

Jay Teresi, Atlanta, GA, describes his second ablation after being A-Fib free for three-years: “[My EP] explained that my first procedure was a success. However, during the healing process a tiny spot did not scar [completely] and this allowed the A-Fib to trip again. He ablated that portion and touched up all the other areas. I have now been free of A-Fib [since 2007].”

A-Fib is Not a One-size-fits-all Disease: You may need to address concurrent medical conditions (i.e, hypertension, diabetes, obesity, sleep apnea). Likewise, you may need to make lifestyle changes (e.g., diet, exercise, caffeine, alcohol, smoking).

Be tenacious: Your heart is a resilient muscle that tends to heal itself. You may need multiple treatments (drugs, cardioversion, etc.) and repeated procedures (cardioversion, ablation).

Try More Than One Treatment if Necessary.


‘The Top 10 List of A-Fib Patients’ Best Advice” is a consensus of valuable advice from fellow patients who are now free from the burden of Atrial Fibrillation. From Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD.

It Takes a Team: Build a Support System

Realize there are others who have been through A-Fib. Find them, use them as part of your A-Fib support system. at A-Fib.com


“Realize that there are others who have been through A-Fib. Find them. Use them as part of your A-Fib support system.”

Joy Gray, Manchester, NH, USA from Beat Your A-Fib: The Essential Guide to Finding Your Cure


You are not alone. Many, many others are dealing with Atrial Fibrillation.

A-Fib Online Discussion Groups: One-to-one support and online support groups can be very helpful to patients and others interested in Atrial Fibrillation.

Reading the discussion can offer information, recommendations and perhaps a new perspective. But don’t stay on the sideline, participate! Join in. You’ll feel better.

To learn more, go to our list of Online Discussion Groups.

 

A-Fib Patients’ Best Advice #6: Take an Aggressive Approach to Treatment


Don’t settle. Be Courageous. Be Aggressive.’


Joy Gray, Manchester, New Hampshire: “A-Fib tends to be a progressive disease, so taking an aggressive approach to treatment early on may be your best option.”

Michele Straub, Salt Lake City, Utah: “Do not take ‘this is as good as it gets’ as an answer— do your own research about what’s possible and take a co-leadership role with your doctor.” 

Sheri Weber, Boyce, Virginia: “A-Fib hardly ever gets better. Be aggressive. Anger and determination led me to researching options. Find the solution that fits you best. Every case is different.

Read A-Fib Patient Stories of Hope and Courage: Other A-Fib patients have been where you are right now.Each author tells their story to offer you hope, to encourage you, and to bolster your determination to seek a life free of A-Fib. Go to: Personal A-Fib Stories of Hope and Encouragement.

Read how others found the courage to seek their A-Fib cure.


‘The Top 10 List of A-Fib Patients’ Best Advice” is a consensus of valuable advice from fellow patients who are now free from the burden of Atrial Fibrillation. From Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD.

Don’t Settle. Learn Your Treatment Options


“Don’t Settle…for a lifetime on medication. Seek your A-Fib cure!”

From Beat Your A-Fib: The Essential Guide to Finding Your Cure


Treating patients with drugs but leaving them in A-Fib, overworks the heart, leads to fibrosis and increases the risk of stroke and dementia.

Don’t let your doctor leave you in A-Fib. Educate yourself. Learn your treatment options, see Which of the A-Fib Treatment Options is Best for Me? And always aim for a Cure!

 

A-Fib Patients’ Best Advice #5: Get Treatment Sooner Rather Than Later


Don’t wait. Don’t delay. Get Treatment as soon as practical.


Daniel Doane, Sonora, California, USA: “I didn’t realize how continued A-Fib so drastically remodels your heart. Get your A-Fib taken care of. It won’t go away. It may seem to get better, but it will return.

Roger Meyer, Columbus, Ohio: “I can now say, first hand, that there ARE bad effects from A-Fib and especially from A-Fib that is not treated early. My best advice: Don’t let A-Fib wreak its havoc untreated!”

Joan Schneider, Ann Arbor, M: “Know that paroxysmal AF becomes chronic. Drugs only work for so long. Heart modification will occur, and options will become few. Get with a great EP  and/or AF clinic and find your cure.”

Don’t Delay—Seek Your A-Fib Cure.


‘The Top 10 List of A-Fib Patients’ Best Advice” is a consensus of valuable advice from fellow patients who are now free from the burden of Atrial Fibrillation. From Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD.

A-Fib Patients: Seek to Cure Your A-Fib —Not Just Manage It


For many A-Fib patients their best outcome came about only when they told their doctors, “I want to cure my A-Fib not just manage it.”

From Beat Your A-Fib: The Essential Guide to Finding Your Cure


Don’t Settle for a Life on Meds

You don’t have to live a life on medications. Seek your cure. For encouragement, browse our library of over 90 first-person stories by patients, many now A-Fib-free. Go to our Personal A-Fib Stories of Hope.

Learn All Your Treatment Options

To start, educate yourself about Atrial Fibrillation and review all your treatment options on our page: Treatments for Atrial Fibrillation.

Next, move on to the guidelines we’ve posted: Which of the A-Fib Treatment Options is Best for Me? Then, discuss these treatment options with your doctor. This should be a ‘team effort’, a decision you and your doctor will make together.

You can be free of the burden of Atrial Fibrillation. Don’t just manage your A-Fib. Seek your Cure.

 

A-Fib Patients’ Best Advice #4: Don’t Just Manage Your A-Fib with Drugs. Seek your Cure.


Drugs have a role, but other treatment options target a cure.


Daniel Doane, Sonora, California, USA, shares his mistake: “Don’t think that the medication is a long term solution. Don’t put up with nasty side effects. That was the mistake I made. I thought I could tough out the medication as long as I stayed out of A-Fib.”

Terry DeWitt, Massachusetts, USA, advises act sooner than later: “I knew I could continue on medication for several years, but I was concerned about the remodeling of my heart. …I would need an ablation…and sooner seemed better when my heart was still strong.” 

Max Jussila, Shanghai, China, says meds are for the short term: “Do not listen to your doctors if they suggests medication as a long-term solution! The doctors who see medication as a solution commit serious negligence and are ignorant of the terrible nature and consequences of Atrial Fibrillation.”

Don’t Just Manage Your A-Fib with Meds. Seek your Cure.


‘The Top 10 List of A-Fib Patients’ Best Advice” is a consensus of valuable advice from fellow patients who are now free from the burden of Atrial Fibrillation. From Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD.

A-Fib Patients’ Best Advice #3: Don’t Believe Everything You’re Told About A-Fib


Don’t let anyone tell you A-Fib isn’t that serious, or just learn to live with it’.


Ken Hungerford, New South Wales, Australia: “During this period I asked three cardiologists about these episodes, and they all basically told me to simply put up with them.” 

Sheri Weber, Boyce, Virginia: “I questioned the cardio doctor about my future with A-Fib. His response was to tell me many people live with A-Fib and did not suggest any treatment aside from medication.

Warren Welsh, Melbourne, Australia“I experienced several years of unnecessary suffering by accepting an opinion of one specialist who said I would have to live in A-Fib.

I believe that unless there are special circumstances…any advice on treatment that is not directed towards a possible cure should be questioned.” 

Don’t Believe Everything You’re Told About A-Fib.


‘The Top 10 List of A-Fib Patients’ Best Advice” is a consensus of valuable advice from fellow patients who are now free from the burden of Atrial Fibrillation. From Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD.

Which Doctor for Your A-Fib? The Plumber vs. The Electrician


The Plumber vs. the Electrician

“Cardiologists focus on the vascular function of the heart—think ‘plumber’. Electrologists specialize in the electrical function— think ‘electrician’.

Atrial Fibrillation is an electrical problem. Don’t hire a plumber to fix an electrical problem.”


Finding the Right Doctor for You: When diagnosed with Atrial Fibrillation, you need to find the best heart rhythm specialist, a Cardiac Electrophysiologist (EP), you can afford. An EP is a cardiologist who specializes in the electrical activity of the heart and in the diagnosis and treatment of heart rhythm disorders.

See our article to learn how to find the right doctor for you and your treatment goals.

 

A-Fib Patients’ Best Advice #2: Should You Dump Your Doctor?


‘Don’t be afraid to fire your doctor’.


Sheri Weber, from Boyce, VA: “I wish I had realized that the first doctor you see is not necessarily the right one for you. I fooled around way too long, believing what my cardio doctor said. I should have been thinking outside the box.  Run―don’t walk―to the best specialist you can find in your area.”

Michele Straube, Salt Lake City, UT: “My experiences with cardiologists were hit and miss. Some told me the best they could do was medicate me so I could walk from the bed to the window and back. …I changed doctors.”

To be cured of your A-Fib: You may need to ‘fire’ your current doctor. Seek a heart rhythm specialist, an electrophysiologist (EP), who will partner with you to create a treatment plan—a path to finding your cure or best outcome. To make this happen, see Finding the Right Doctor for You and Your A-Fib.

The first doctor you see is not necessarily the right one for you.


‘The Top 10 List of A-Fib Patients’ Best Advice” is a consensus of valuable advice from fellow patients who are now free from the burden of Atrial Fibrillation. From Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure  by Steve S. Ryan, PhD.

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