ABOUT 'BEAT YOUR A-FIB'...


"This book is incredibly complete and easy-to-understand for anybody. I certainly recommend it for patients who want to know more about atrial fibrillation than what they will learn from doctors...."

Pierre Jaïs, M.D. Professor of Cardiology, Haut-Lévêque Hospital, Bordeaux, France

"Dear Steve, I saw a patient this morning with your book [in hand] and highlights throughout. She loves it and finds it very useful to help her in dealing with atrial fibrillation."

Dr. Wilber Su Cavanaugh Heart Center, Phoenix, AZ

"Your book [Beat Your A-Fib] is the quintessential most important guide not only for the individual experiencing atrial fibrillation and his family, but also for primary physicians, and cardiologists."

Jane-Alexandra Krehbiel, nurse, blogger and author "Rational Preparedness: A Primer to Preparedness"



ABOUT A-FIB.COM...


"Steve Ryan's summaries of the Boston A-Fib Symposium are terrific. Steve has the ability to synthesize and communicate accurately in clear and simple terms the essence of complex subjects. This is an exceptional skill and a great service to patients with atrial fibrillation."

Dr. Jeremy Ruskin of Mass. General Hospital and Harvard Medical School

"I love your [A-fib.com] website, Patti and Steve! An excellent resource for anybody seeking credible science on atrial fibrillation plus compelling real-life stories from others living with A-Fib. Congratulations…"

Carolyn Thomas, blogger and heart attack survivor; MyHeartSisters.org

"Steve, your website was so helpful. Thank you! After two ablations I am now A-fib free. You are a great help to a lot of people, keep up the good work."

Terry Traver, former A-Fib patient

"If you want to do some research on AF go to A-Fib.com by Steve Ryan, this site was a big help to me, and helped me be free of AF."

Roy Salmon Patient, A-Fib Free; pacemakerclub.com, Sept. 2013


Inspirational Quotes

Inspiration: Get Your A-Fib Fixed Advises Ex-A-Fib Patient Daniel Doane

DANIEL DOANE cloud quote 600 x 750 pix at 300 resBe inspired by Daniel Doane and his first-person account of his journey to a life free of A-Fib. Read his story and many others in our book, Beat Your A-Fib. Or visit A-Fib.com’s Personal A-Fib Stories of Hope for over 80 narratives by patients dealing with the burden of Atrial Fibrillation.

Patients’ Best Advice #3: Don’t Believe Everything You’re Told About A-Fib

Top 10 List #3

‘Don’t let anyone tell you A-Fib isn’t that serious,
or just learn to live with it’.

 THE A-FIB PATIENTS’ BEST ADVICE

From Beat Your A-Fib: The Essential Guide to Finding Your Cure, Chapter 12: Your Journey to a Cure. Advice from patients now free from the burden of Atrial Fibrillation:

ken hungerford on A-Fib.com

Ken H.

Ken Hungerford from New South Wales, Australia, shared:

During this period I asked three cardiologists about these episodes, and they all basically told me to simply put up with them. (pp.125-128)

Sheri Weber from Boyce, Virginia, was dissatisfied with the answers from her doctor:

Sheri Weber on A-fib.com

Sheri W.

“I questioned the cardio doctor about my future with A-Fib thinking there must be a cure and knowing absolutely nothing about the disease. His response was to tell me many people live with A-Fib and did not suggest any treatment aside from medication. (pp. 106-109)

Warren Welsh, Melbourne, Australia, talks about the years he needlessly endured A-Fib, in part, based on one doctor’s advice:

Warren Welsh on A-Fib.com

Warren W.

I would urge any A-Fib sufferers not to make the same mistakes I did by not researching their treatment options. …I experienced several years of unnecessary suffering by accepting an opinion of one specialist who said I would have to live in A-Fib.
I believe that unless there are special circumstances…any advice on treatment that is not directed towards a possible cure should be questioned.”  (pp.116-118)

VIDEO: Buyer Beware: Misleading or Inaccurate A-Fib Info Abounds

Steve Ryan video Freeze frame400 x 360 at 300 resAlways Question the Source

In a short video, Steve S. Ryan, PhD, warns to beware of misleading and incorrect A-Fib information published by reputable sources on the internet and in print media.

Talking with host Skip E. Lowe, Steve gives three specific examples of why you need to be on the lookout for inaccurate statements about Atrial Fibrillation. 3:59 min. Watch video now.


‘The Top 10 List of A-Fib Patients’ Best Advice’ is a a consensus of valuable advice from fellow patients who are now free from the burden of Atrial Fibrillation. From Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD (beatyoura-fib.com)

Next, look for #4 on the
Top 10 List of A-Fib Patients’ Best Advice
Please, share the advice ♥ 

‘A-Fib’s Demise’, a Poem by Emmett Finch, The Malibu Poet

Photo - Emmett Finch, The Malibu Poet

Emmett Finch, The Malibu Poet

We met Emmett Finch, The Malibu Poet, when we researched his personal A-Fib story for our book, Beat Your A-Fib. (“40-Year Battle With A-Fib Includes AV Node Ablation With Pacemaker” on pp. 166-169.) Now in his 90s, Emmett’s story illustrates the evolution of A-Fib treatments from drug therapy to PVIs, and from AV Node ablation/Pacemaker to the Watchman device.

Emmett honored us with a special poem ‘A-Fib’s Demise’. It’s for people of faith who look for hope and help from the Divine but also see doctors, medicines, supplements, etc. as manifestations of the “creative power we call God.”

We hope ‘A-Fib’s Demise’ will inspire you to Seek Your Cure!

Note: Want a hard copy? Download and print the PDF.

Emmett's Poem - A-Fib_s Demise

 

Patients’ Best Advice #2: Dump Your Doctor?

Top 10 List #2 Don't be afraid to fire your doctor at A-Fib.com

Top 10 List #2

‘Don’t be afraid to fire your doctor’.

 THE A-FIB PATIENTS’ BEST ADVICE

Sheri Weber

Sheri Weber

From Beat Your A-Fib: The Essential Guide to Finding Your Cure, Chapter 12: Your Journey to a Cure:

Sheri Weber, from Boyce, VA, shared this advice about finding the right doctor for your treatment goals:

“I wish I had realized that the first doctor you see is not necessarily the right one for you. I fooled around way too long, believing what my cardio doctor said. I should have been thinking outside the box. 

Run―don’t walk―to the best specialist you can find in your area.” (pp. 106-109) 

Michele Straube

Michele Straube

Michele Straube, Salt Lake City, UT, chimed in with similar advice about changing doctors. She wrote:

“My experiences with cardiologists were hit and miss.

Early on I was told that they had never seen someone so young with A-Fib (at the time, I was in my mid 20s), and some told me the best they could do was medicate me so I could walk from the bed to the window and back. …I changed doctors.” (pp. 88-91)

How to Find the Best Doctor for You

To be cured of your A-Fib, you may need to ‘fire’ your current doctor. Seek a heart rhythm specialist, an electrophysiologist (EP), who will partner with you to create a treatment plan—a path to finding your cure or best outcome. To make this happen, see Finding the Right Doctor for You and Your A-Fib.

The first doctor you see is not necessarily
the right one for you.


‘The Top 10 List of A-Fib Patients’ Best Advice’ is a a consensus of valuable advice from fellow patients who are now free from the burden of Atrial Fibrillation. From Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD (beatyoura-fib.com)

Next, look for #3 on the
Top 10 List of A-Fib Patients’ Best Advice
Please, share the advice ♥ 

Top 10 List of A-Fib Patients’ Best Advice: #1

Top 10 List #1 Find the best EP your can afford - A-Fib.com

THE TOP 10 LIST #1

‘Find the best heart rhythm specialist (EP) you can afford.’

A-FIB PATIENTS’ BEST ADVICE

From Beat Your A-Fib: The Essential Guide to Finding Your Cure, Chapter 12: Your Journey to a Cure:

Michele Straube

Michele S.

Michele Straube, cured after 30 years in A-Fib, wrote in her personal A-Fib story:

Go to an electrophysiologist, an A-Fib expert, right away, one with a high success rate at getting patients back into normal rhythm—you deserve nothing less.” (pp. 88-90)

Terry DeWitt, cured in 2007 from a clinical trial for CryoBalloon ablation, offered his best advice:

Terry Dewitt at A-Fib.com

Terry D.

“Spend the time to find the best Electrophysiologist (arrhythmia specialist) you can find. It makes a big difference in treatment and in the success of the ablation procedure.” (pp. 138-143)

Keep in Mind: “For many A-Fib patients, their best outcome came about only when they told their doctor,I want to cure my A-Fib, not just manage it.’ (And, if needed, they also changed doctors.)” (p. 171)

How to Find the Best Doctor for You

To be cured of your A-Fib, you may need to ‘fire’ your current doctor. Seek a heart rhythm specialist, an electrophysiologist (EP), who will partner with you to create a treatment plan—a path to finding your cure or best outcome. To make this happen, see Finding the Right Doctor for You and Your A-Fib.

Run―don’t walk―to the best specialist
you can find in your area.


‘The Top 10 List of A-Fib Patients’ Best Advice’ is a a consensus of valuable advice from fellow patients who are now free from the burden of Atrial Fibrillation. From Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD (beatyoura-fib.com)

Next, look for #2 on the
Top 10 List of A-Fib Patients’ Best Advice
Please, share the advice ♥ 

Be Cautious: Some A-Fib-related Sites are Biased

Be cautious when surfing the net. Some A-Fib-related resources may be biased toward a particular treatment technique, pharmaceutical, or medical device (often for financial gain). Always ask yourself: Who is paying for this website? And what is their agenda?

Caution - when searching A-Fib websites always ask: who is paying for this site and what is their agenda?

Always consult your healthcare professional before acting on any information you find on the internet.

PLEASE SHARE THIS MESSAGE!

Why & How to Create Your ‘A-Fib Episode Action Plan’

Do your loved ones know how to help you during an A-Fib episode? That’s the topic of this email we received from the spouse of an A-Fib patient:

“My husband’s A-Fib is getting worse. When should I call Emergency and/or take him to the hospital? I’m petrified with fear for him. Our doctors say don’t worry unless he shows signs of a heart attack or stroke.”

For your family’s peace of mind, you need to create an ‘A-Fib Action Plan’. During an A-Fib episode, having an action plan is reassuring to you and your loved ones, and helps everyone stay calm.

Your A-Fib Action Plan

To develop your A-Fib Action Plan, you need to team up with your doctor. Discuss the following. You should know:

• When to contact your doctor’s office
• Your doctor’s cell number and email address for emergencies
• What symptoms or criteria should send you to the emergency room
• When at the ER, if you should call your doctor
• When at the ER, if your doctor will call and talk with the ER staff
• When you should “just ride out” the episode
• How to recognize the signs of stroke

Keep Calm and Follow Your A-Fib Action Plan - A-Fib.comWrite Up and Post Your Plan

Write up the answers to these questions. Add other helpful information, i.e., name of your local Emergency Room, directions, map, and phone numbers, etc. Store the original of your A-Fib Action Plan in your A-Fib binder or folder.

Post a copy in a prominent place your family can find easily. Discuss your A-Fib Action Plan with your loved ones and answer their questions.

Consider: What about your workplace? Should you discuss your Action Plan with your co-workers as well? Should you post a copy at work?

Be Confident & Stay Calm

During an A-Fib attack, an A-Fib Action Plan with specific steps is reassuring and helps everyone stay calm. Your family will be confident they’re supporting you in taking the right action at the right time.

Note: If your doctor is reluctant to develop a specific action plan or your Atrial Fibrillation is getting worse, it may be time to change doctors.

Have a Contribution to Make?

Do you have ideas for other content that should be included in an A-Fib Action Plan? I welcome your input. Send me an email with your thoughts.

Inspiring Patients: Seek Your Cure, a Life Without A-Fib

Pass on this heart to encourage others with Atrial Fibrillation.

You don’t have to live a life on medications. Seek your cure. For encouragement, browse our library of over 80 first-person stories by patients, many now A-Fib-free. Go to our Personal A-Fib Stories of Hope.

You can be free of the burden of Atrial Fibrillation.

Graphic by Patti J. Ryan, A-Fib.com. #afib A-Fib.com Heart: Seek Your Cure, A Life Without A-Fib #afib

Inspirational Quote: Anyone in A-Fib is Almost Certainly Mg Deficient

“Anyone in A-Fib is almost certainly magnesium deficient. An imbalance or deficiency in minerals like magnesium, potassium, and calcium can force the heart into fatal arrhythmias.”

Quote by Steve S. Ryan, former A-Fib patient, from his book, Beat Your A-Fib: The Essential Guide to Finding Your Cure (BeatYourA-fib.com). A-Fib-free since 1998 after focal point catheter ablation in Bordeaux, France.

Most US adults ingest only about 270 mg of magnesium a day, well below the modest magnesium RDAs of 420 mg for adult males and 320 mg for adult females. This creates a substantial cumulative deficiency over months and years. Read more about magnesium and other minerals on our page: Mineral Deficiencies.Anyone in A-Fib Mg deficient - Lighter poster - 400 pix wide at 300 res

Inspirational Quote: Realize there are others who have been through A-Fib…

“Realize there are others who have been through A-Fib. Find them, use them as part of your A-Fib support system.”

Quote by Joy Gray, Manchester, NH, A-Fib free after Mini-maze including occlusion of the left atrial appendage (AtriClip).  From the book, Beat Your A-Fib: The Essential Guide to Finding Your Cure (BeatYourA-fib.com).

Online support groups can be very helpful to patients and others interested in A-Fib. It’s helpful to know you are not alone. For our list on online groups, read more at: A-Fib Online Discussion Groups and Message Boards

Realize there are others who have been through A-Fib. Find them, use them as part of your A-Fib support system.

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