ABOUT 'BEAT YOUR A-FIB'...


"This book is incredibly complete and easy-to-understand for anybody. I certainly recommend it for patients who want to know more about atrial fibrillation than what they will learn from doctors...."

Pierre Jaïs, M.D. Professor of Cardiology, Haut-Lévêque Hospital, Bordeaux, France

"Dear Steve, I saw a patient this morning with your book [in hand] and highlights throughout. She loves it and finds it very useful to help her in dealing with atrial fibrillation."

Dr. Wilber Su Cavanaugh Heart Center, Phoenix, AZ

"Your book [Beat Your A-Fib] is the quintessential most important guide not only for the individual experiencing atrial fibrillation and his family, but also for primary physicians, and cardiologists."

Jane-Alexandra Krehbiel, nurse, blogger and author "Rational Preparedness: A Primer to Preparedness"



ABOUT A-FIB.COM...


"Steve Ryan's summaries of the Boston A-Fib Symposium are terrific. Steve has the ability to synthesize and communicate accurately in clear and simple terms the essence of complex subjects. This is an exceptional skill and a great service to patients with atrial fibrillation."

Dr. Jeremy Ruskin of Mass. General Hospital and Harvard Medical School

"I love your [A-fib.com] website, Patti and Steve! An excellent resource for anybody seeking credible science on atrial fibrillation plus compelling real-life stories from others living with A-Fib. Congratulations…"

Carolyn Thomas, blogger and heart attack survivor; MyHeartSisters.org

"Steve, your website was so helpful. Thank you! After two ablations I am now A-fib free. You are a great help to a lot of people, keep up the good work."

Terry Traver, former A-Fib patient

"If you want to do some research on AF go to A-Fib.com by Steve Ryan, this site was a big help to me, and helped me be free of AF."

Roy Salmon Patient, A-Fib Free; pacemakerclub.com, Sept. 2013


Resources

Pinterest: My Best A-Fib.com Posts

A-Fib.com on Pinerest

A-Fib.com

I’m traveling for a few days, so this post has to be short, but not necessarily brief! Did you know I’ve listed my Best A-Fib News posts from 2015 on Pinterest? Each year Patti and I write about 150 posts, so we selected the best ‘evergreen’ posts for you.

To browse through our hand-picked selections, just click the Pinterest logo and click on a few picks.  You may find something you have missed or want to reread.

Ellen Degeneres on A-Fib.com

Ellen D.

Just For Fun

What do Mother Theresa, Ellen Degeneres and Vice President Dick Cheney have in common? If you guessed Atrial Fibrillation, you’re right! For fun, look at our board with 50 Celebs with A-Fib!

Don’t Take Any Medication Without Asking These 10 Questions

Before taking any prescription drug to treat your Atrial Fibrillation, you should educate yourself about the drug. We’ve prepared the top 10 questions you should ask your doctor. As a service to our readers, we offer the questions as a free PDF worksheet you can Download. It has convenient spaces to write down your doctor’s replies for later review.

Print as many as you need and take a copy to every doctor appointment (you never know when you’ll need one). Download our worksheet (and don’t forget to save to your hard drive).

Before Starting a Prescription Drug, Ask These Questions

Use our worksheet as a guide as you ask these questions of your doctor or healthcare professional, and note their responses:

Download our Free Worksheet

1. Why am I being prescribed this medication?
2. What are the side effects of this drug?
3. Are there any precautions or special dietary instructions I should follow?
4. Can it interfere with my other medications?
5. What should I do if I forget a dose?
6. How long before I know if this drug is working?
7. How will I be monitored on this drug? How often?
8. What happens if this drug doesn’t work?
9. What if my A-Fib symptoms become worse?
10. If I don’t respond to medications, will you consider non-pharmaceutical treatments (such as a Pulmonary Vein Isolation procedure)?

Keep your medical records in a binder or folder. at A-Fib.com

Keep your medical records in a binder or folder.

Your A-Fib Binder or Folder

When completed, file the worksheet in your A-Fib binder or file folder to use for future reference and follow-up.

Your A-Fib binder is where you should file and organize all your A-Fib-related treatment information: printouts of information from the internet and your local public library or medical center library, notes from phone calls with doctors’ offices, and answers to “interview” questions during doctor consultations.

Research Any Prescription Drug 

To determine if the prescription is the right one for you, do your research. An excellent prescription database is the U.S. National Library of Medicine Drug Information Portal. (For an example, see the page on Warfarin [Coumadin].)

Also see the free worksheet: Keep an Inventory List of Your Medications


Worksheet from Chapter 6 of Beat Your A-Fib: The Essential Guide to Finding Your Cure, by Steve S. Ryan, PhD

Are You Shopping for Back-to-School (or College)? Use our Amazon.com Link

A-Fib.com portal link to Amazon.com

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Whether you’re shopping for your kids or grand-kids, did you know you can shop and support A-Fib.com at the same time?

How? Just shop online at Amazon.com using the A-Fib.com Amazon portal link.

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Each of your purchases generates a small commission for A-Fib.com—at no extra cost to you. We apply those proceeds toward the monthly costs of publishing A-Fib.com.

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A-Fib.com portal link to Amazon.com

Your Support is Needed and Appreciated

Our goal is to make A-Fib.com a self-sustaining site but maintain our “no advertising” policy, i.e. without third-party advertising like Google or Yahoo ads. We appreciate your support.

My Top 7 Picks: Books for A-Fib Patients and Their Families

By Steve S. Ryan, PhD

Knowledge is power. Educate yourself about Atrial Fibrillation. Empower yourself as a patient. Learn to see through the hype of healthcare websites!
My top 7 A-Fib reference books and guides at A-Fib.com

My Top 7 Recommendations for A-Fib Patients and Their Families

For patients and their families, these are our favorite books about A-Fib as well as patient empowerment, unmasking the facts behind health statistics, the importance of Magnesium supplements and insights into the pharmaceutical industry. And a Bonus: the best medical dictionary for A-Fib patients.

These books and guides are available from many online sources, but to make it easy for you (and to read my other recommendations), see my ‘Wish List’ on Amazon.com. (Note: Use our Amazon portal link, and your purchases help support A-Fib.com.) 

Beat Your A-Fib book cover at A-Fib.com1. Beat Your A-Fib: The Essential Guide to Finding Your Cure: Written in everyday language for patients with Atrial Fibrillation

A-Fib can be cured! That’s the theme of this book written by a former A-Fib patient and publisher of the patient education website, A-Fib.com. Empowers patients to seek their cure. Written in plain language for A-Fib patients and their families.

Practice Guide to Heart Rhythm Problems at A-Fib.com2. A Patient’s Guide to Heart Rhythm Problems (A Johns Hopkins Press Health Book)

Up-to-date resource on heart arrhythmias. Good overview of the heart and its functions. Several good chapters on Atrial Flutter and Atrial Fibrillation. Also a very good chapter entitled ‘Defensive Patienting’.

Medifocus Guide to Atrial Fibrillation report cover at A-Fib.com3. Medifocus Guidebook on: Atrial Fibrillation

Updated annually. Categories of research studies, drug therapies and non-drug therapies. Synopis only. Must find full-length documents online or at a library. For current issue go to: http://tinyurl.com/MedifocusGuide-AFIB

The Magnesium Miracle book cover at A-Fib.com4. The Magnesium Miracle (Revised and Updated Edition)

Comprehensive book on the importance and helpful benefits of magnesium as well as just what a magnesium deficiency causes. Easy-to-read with organized sections and easy-to-use dosing recommendations. Best seller on Amazon.com

Know Your Chances book cover at A-Fib.com5. Know Your Chances: Understanding Health Statistics

Do you question the facts behind today’s barrage of health risk messages? Unmask the truth. Learn to see through the hype in medical news, TV drug ads and pitches from advocacy groups.

The Empowered Patient book cover at A-Fib.com6. The Empowered Patient: How to Get the Right Diagnosis, Buy the Cheapest Drugs, Beat Your Insurance Company, and Get the Best Medical Care Every Time

Excellent resource. Learn about the times when we need to be a ‘bad patient’. It’s okay to ‘rock the boat’ or be a ‘nuisance’. When it comes to medicine, trust no one completely. Everyone should read this book.

Bad Pharma book cover at A-Fib.com7. Bad Pharma: How Drug Companies Mislead Doctors and Harm Patients

A real eye-opener to the decades-long goals and tactics of the pharmaceutical industry to create and maintain demand for their products. A must read for anyone taking prescription meds for the long-term (i.e. hypertension, high cholesterol, etc.).

Oxford Concise Medical Dictionary book cover at A-Fib.comBONUS: Concise Medical Dictionary (Oxford Quick Reference)

An  excellent medical dictionary, the best I’ve found for patients with Atrial Fibrillation who are conducting research into their best treatment options. Includes occasional illustrations (for fun check p. 276 for the types of fingerprint patterns).

Read More, Learn More

Knowledge is power. Educate yourself and become your own best patient advocate!

To see my complete list of all items I recommend for A-Fib patients and their families, see my list on Amazon.com: By a Former A-Fib Patient: My Recommended Products.

What's working for you? Share your tips at A-Fib.com

Email us what’s working for you.

Share Your Tip

Do you have a favorite book that has helped you with your Atrial Fibrillation? Email me about it.

Is a specific treatment working for you? Have lifestyle changes helped? Or, perhaps, an alternative or homeopathic remedy?

Won’t you email us and share your tip?

June 14th is World Blood Donor Day: Blood Connects Us All!

World Blood donor day sign at A-Fib.comAs a former A-Fib patient, I’m very much aware of blood as the most precious gift that anyone can give to another person — the gift of life.

I regularly donate blood (just donated last week). It’s invigorating to help others, and it doesn’t cost you anything but your time. (But be advised that certain A-Fib medications such as some blood thinners may preclude you from giving blood.)

Every year, on June 14th, countries around the world celebrate World Blood Donor Day. There is a constant need for regular blood supply because blood can be stored for only a limited time before use.

Regular blood donations by healthy people ensure that safe blood will be available whenever and wherever it is needed. A decision to donate your blood can save a life. For more, read Why should I donate blood?

Where Can I Donate Blood?

Quiz: How Much Do You Know About Blood Donation? At A-Fib.com

Quiz: How Much Do You Know About Donating Blood?

In the U.S. check The American National Red Cross website. In Canada, go to the Canadian Blood Service. In Australia, go the the Australia Red Cross. For 29 countries in the EU, go to the European Commission/Become a blood donor website. In other countries, check with your national health services.

Quiz: How Much Do You Know About Donating Blood?

Test your knowledge with this online quiz at the World Health Organization (WHO), sponsor of World Blood Donor Day.

Remember: Blood Connects Us All!

 

Your Nearest ‘Certified Stroke Center’ Could Save Your Life

A Certified Stroke Center could save your life or avert the debilitating effects of an A-Fib stroke. But only if you get there within four hours.

What is a Certified Stroke Center?

A certified or ‘Advanced Comprehensive Stroke Center’ is typically the largest and best-equipped hospital in a given geographical area that can treat any kind of stroke or stroke complication.

Only a fraction of the 5,800 acute-care hospitals in the U.S are certified as providing state-of-the-art stroke care.

Why Do I Need to Know the Closest?

If you have a stroke and get yourself to a Certified Stroke Center within four hours, there is a good chance specialists can dissolve the clot, and you won’t have any lasting damage. (Hurray, you dodged a bullet.)

A Certified Stroke Center will have drugs such as Tissue Plasminogen Activator (tPA) to dissolve the clot. They can use Clopidogrel or acetylsalicylic acid (ASA) to stop platelets from clumping together to form clots. Or use anticoagulants to keep existing blood clots from getting larger.

Be Prepared for a Stroke Emergency: Do Your Homework

We offer you two sources to look up the nearest certified or ‘Advanced Comprehensive Stroke Center’. Just enter your zip code or other parameter to see a map and list of centers:

Find A Certified U.S. Stroke Center Near You/NPR News
Find a Certified Comprehensive Stroke Center

How about your workplace? Find and post the closest ‘Advanced Comprehensive Stroke Center’.

Graphic: Keep your medical records in a binder or folder. A-Fib.com

Print the name, address and phone number of the closest Certified Stroke Center. Store extras in your A-Fib Records binder or folder.

Post at home for easy access during a medical emergency.

If EMT responders come to your home, tell them where to take you and give them a handout (insist they take you there).

For more tips on preparing your family in the event you have a stroke, see our FAQ and answer: In Case of Stroke, What Your Family Should Know Now.

Your Records: Will You be Charged for Copies?

Before meeting with a new electrophysiologist (or surgeon), you’ll want to send (or take along) a packet with your medical records, test results and any images/X-rays, but you may be missing some medical records.

HIPAA stands for the U.S. Health Insurance Portability and Accountability Act of 1996.

What They Can and Can’t Charge You

When requesting copies of your medical records, expect to pay duplication costs for hard copies. In the U.S., HIPAA regulations allows doctors/practices to charge a “reasonable, cost-based fee.”  They can charge for supplies, staff time for copying and processing, and mailing costs, if applicable.

However, they may not charge for the time a staff member spends searching for the record. In addition, they should not adopt a policy of charging a flat fee or charging a patient to view a record.

Pill-shaped USB flash drive

Copy digital files to a USB flash drive

No-Cost Copies?

To save money, ask your doctors or medical center if they will copy electronic files to your USB Flash drive or to a disc/CD you supply.

“But I Live Outside the U.S.”

If you live outside the US, know that over 89 countries have adopted Data Privacy Laws that apply to patient records. For example, Canada has the Personal Information Protection and Electronic Documents Act (PIPEDA) and in Europe there’s the EU Data Protection Reform. To learn more, research your country’s data privacy laws.

Continued Reading: 3 Ways to Request Copies of Your Medical Records.

A-Fib.com HON Certified Again for ‘Health Information You Can Trust’

January 2016: A-Fib.com has again earned the Health On the Net Foundation (HON) Certification for quality and trustworthiness of medical and health online information. We applied and were first certified in 2009.

The Health On the Net Foundation (HON) Code of Conduct helps protect citizens from misleading health information.

The voluntary HONcode accreditation program sets out a standardized criterion of eight principles of good practice for health information web sites. Each applicant is checked for compliance by a review committee including medical professionals.

Our 2016 Active Certification & Dynamic Seal

The A-Fib.com HON seal is displayed in the footer of our web page and is directly linked to the A-Fib.com HONcode certificate located on the HON website.

Read more about the A-Fib.com HON Certificate on our website. Or learn about the criterion of eight principles of good practice at Health On the Net Foundation (HON) Certification.

Last updated: Monday, January 18, 2016

Return to A-Fib.com home

We’ve got it! Largest Glossary of Atrial Fibrillation Medical Terms

Atrial Fibrillation: Resources for Patients Glossary of Terms

Atrial Fibrillation: Resources for Patients Glossary of Terms

Check it out. Bookmark it! Refer to it often!

The A-Fib.com Glossary of Medical Terms and Phrases is the most complete online glossary devoted exclusively to Atrial Fibrillation and is the largest single source online. Each definition is written in everyday language—a great resource for patients and their families.

Bookmark this page and refer to it when reading and studying A-Fib research and literature. (if you have a medical dictionary, make a note of our web address for those terms you don’t find in your dictionary.)

If you don’t find the term you are looking for—email us and we’ll add it to the Glossary.

Got A-Fib? Add ICE to Your Cell Phone

Cell phone with ICE contact

Cell phone with ICE contact

Emergency personnel often look at your cell phone contacts list for an ‘ICE’ contact, that is, an “In Case of Emergency“ entry.

With the proliferation of cell phones, it makes sense and it’s easy to do. Just set up a contact named ‘ICE’ and enter your emergency contact’s name, phone numbers, email address, etc.

In the notes field, you can add your vital medical information such as medications, allergies or medical conditions.

Tips:

• Be sure your all family members add ICE to their cell phones including teenagers, college students and grandparents.

• Don’t forget to review and update your ICE info when you change doctors, start (or stop) medications or have a medical procedure.

Warning: If you join A-Fib Online Discussion Groups

Realize there are others who have been through A-Fib. Find them, use them as part of your A-Fib support system.

Realize there are others who have been through A-Fib. Find them, use them as part of your A-Fib support system.

Online support groups can be very helpful to patients and others interested in A-Fib. It’s helpful to know you are not alone. Many, many others are dealing with Atrial Fibrillation.

These groups are free, but usually require registration before you can post messages or even read the messages. All are good for posting messages and searching for responses. But each is unique. Membership numbers vary greatly.

For a list of A-Fib Online Discussion Groups and Message Boards, go to Resources and Links.

Warning: Guard your privacy! If you join any of the online A-Fib Discussion Groups or Forums. you may want to not use your real name, address, etc.

Why?

Because insurance companies, employers, mortgage lenders, credit card companies, etc. may put your name into a search engine, i.e., ‘Google’. They may find you belong to an Atrial Fibrillation discussion site, forum, or that you have Atrial Fibrillation.

This information may be used against you or may influence their decision-making about you.

 

We Make it Easy to Request Your Medical Records

How to Request Copies of Your Medical Records

Seeing a new doctor or specialist? You’ll want to supply them with a copy of all your relevant A-Fib related medical records. This may involve requesting files from current and former physicians and medical centers.

In the US, under the HIPAA legislation, you have a right to copies of your records.

To start the process you need to submit a written request to each doctor or medical practice.

To make this easy, use the sample letter provided by the Privacy Rights Clearinghouse, a non-profit patients advocacy group.

Download the free PDF file from their website and print or save the PDF file to your hard drive. 

HIPAA stands for the Health Insurance Portability and Accountability Act of 1996.

Using their sample letter as a template, replace the sample patient information with your own and create a letter for each doctor or practice. Then print and hand-deliver your request to your doctor’s office or mail or fax it.

The doctor’s office is required to respond in a specific number of days. To learn how long they have to respond and what they are allowed to charge you for copies, see our article, “How to Request Copies of Your Medical Records”.

Pinterest: Profiles of Over 40 Celebs with A-Fib

Ellen Degeners, TV host and comedian

Ellen Degeneres, TV host and comedian

Atrial Fibrillation doesn’t discriminate. Our Pinterest board has over 40 celebs who have dealt with A-Fib. You might be surprised to learn of the many celebrities with A-Fib. From the NBA, NFL, MLB, NHL to track & field athletes and Olympic champions. Political leaders and public servants to musicians, actors and performers.

For example, ELLEN DEGENERES, Talk show host, comedian, KEVIN NEALON, comedian-actor-writer and Saturday Night Live alumni and HERB ALBERT (and the Tijuana Brass), the king of easy listening in the 1960s; Co-founder of A&M Records.

Billie Jean King

Billie Jean King, Tennis legend

BILLIE JEAN KING, Tennis legend (Wimbledon champ 20 times) and advocate for gender equality, MARIO LEMIEUX, Canadian American NHL/AHL Hockey Hall of Fame and LARRY BIRD, NBA star and coach.

See many, many more Celebs with A-Fib on our Pinterest page: “Celebs With A-Fib“. #afib. Visit all our A-Fib-related Pinterest boards at https://www.pinterest.com/stevesryan/

How to Write Your Personal A-Fib Medical Summary

Doctors appreciate knowledgeable, informed, and prepared patients. Since each doctor will probably ask you much the same medical history questions, for efficiency, why not prepare your ‘Personal A-Fib Medical Summary’?

Make a list of all health care providers, emergency rooms, labs and facilities who have provided you with A-Fib-related medical services. Add names and contact information for doctors and specialists you see regularly and why. List medications you take and why (include minerals and supplements also).

Lastly, add relevant medical information from the past two years (surgeries, medical emergencies, allergic reactions, etc.)

Type up your ‘Personal A-Fib Medical Summary’ and print copies. Include with each packet of medical records you send to doctors.

For a list of questions for drafting your summary, see our article, Your Personal A-Fib Medical Summary.

Print a free Medical Alert I.D. Wallet Card

Do you carry an emergency medical alert I.D. card? When you have A-Fib and you’re taking a blood thinner or other medications, you may want to carry your medical information.

Free Online Medical ID Wallet Card Generator

MedIDs.com offers a free online generator tool for a fully customized medical info wallet card. Go to Free Printable Medical ID Cards, type in your information and print. (Note: none of your personal information is stored on their website.) Trim the paper and fold to fit your wallet or purse. Add a label, “In Case of Emergency” (ICE). A Few More Tips:

• Laminate your wallet card to prolong its use (an office supply store can help you).
• Why not print a card for each member of your family?
• If you also wear a medic alert bracelet, inscribe it with the message “See wallet card”.

Money clip from Universal Medical Data

Money clip from Universal Medical Data

Additional Ways to Carry Your Emergency Medical Alert ID Information

There are many new styles of Medic Alert IDs bracelets and necklace pendants using different materials like waterproof foam, leather and stainless steel. Don’t carry a wallet? Consider a Money clip with compartment to slide in your emergency contact info.

USB bracelet from Medical Alert Drives

USB bracelet from Medical Alert Drives

Or, if you carry a paper-based day planner or calendar, add the same information to your address book.

For much more information about what and how to carry your emergency medical information, see our A-Fib.com article, Your Portable Medical Information Kit. 

Tip: Search A-Fib.com by Keyword, Name or Phrase

Searching Tip: Besides our topic menus (the subjects on the left side and top of the page), another way to surf A-Fib.com is by keyword, name or phrase. Use the ‘Search’ box found in the upper right corner of every web page.

Graphic of Search box at A-Fib.com

Search box at A-Fib.com

For example, you can search for a specific medical center, doctor or electrophysiologist.

The ‘Search’ feature is very handy because it will also look through all the answers to our Frequently Asked Questions as well as all our Personal A-Fib Stories of Hope written by patients and even our Glossary of Terms.

To use, enter a word or phrase in the ‘Search’ box—just like in your favorite web search engine. (Put quotes around a phrase to keep the words together.) When you click on ‘search’, a list of results will appear. Review the results, then just click on any entry of interest.

Hint: To retain your search results page, use your mouse ‘right click’ and select “Open in a New Tab’ to view a specific search item.

What Emergency Medical Info Should You Carry With You?

MedicTag.org free id wallet card

MedicTag.org free id wallet card

As someone with A-Fib, you may want to carry certain medical information about your condition with you at all times. But what information should you include?

In his book, The Patient’s Guide to Heart Rhythm Problems, Dr. Todd Cohen recommends carrying a “portable medical information kit”.  Here’s the information he recommends you carry with you:

1. Full name and date of birth
2. Medical conditions
3. Implantable devices and materials
4. Allergies
5. Medications (and dosages)
6. A copy of a recent ECG
7. Contact information (family, your doctor, and your Health Care Proxy agent)

Type up the information (or use a free wallet card ID generator app such as the one at MedicTag.org). Size and print to fit in your wallet.

Add a copy of your most recent ECG, then fold to fit your wallet or purse.

Medical Alert USB Flash Drive Silicone Bracelet

Medical Alert USB Flash Drive Silicone Bracelet

To make it easier for emergency personnel to find your medical information, add a label, “In Case of Emergency” (ICE).

For a more extensive discussion of what information to include and an array of options for carrying your information with you, see our article: Your Portable Medical Information Kit.

 

Browse our Subject Index of A-Fib.com Articles

Want more information on a specific treatment? Interested in the most recent research on a specific symptom or procedure?

Subject Index to A-Fib.com Articles

Subject Index to A-Fib.com Articles

Subject Index to A-Fib.com Articles

Our Subject Index to A-Fib.com articles is a growing list of articles found throughout the A-Fib.com site. (Look for the tab in the left menu.)

These are articles that augment or supplement the major topics of the website. They are arranged into these major subject areas.

♥  Dealing with Atrial Fibrillation
♥  Diagnosis & Testing
♥  Minerals Deficiencies & Supplements
♥  Drug Therapies & Medications
♥  Catheter Ablation, CyroBalloon and Pulmonary Veins Isolation
♥  Surgeries: Maze/Mini-Maze, Convergent, LAA Closure
  AF Symposium Articles by Year: Steve’s Summary Reports
♥  Research and Innovations

We invite you to browse our articles arranged by topics. NOTE: You can also search by keyword or term. Just use the ‘Search’ box in the upper right of every page.

Our Worldwide A-Fib Support Volunteers

A few of our many A-Fib.com Support Volunteers; Learn about becoming a A-Fib Support Volunteer

Learn about becoming a A-Fib Support Volunteer

When diagnosed with Atrial Fibrillation, you have many questions. It helps to have someone who has “been there” and is there for you now. Our A-Fib Support Volunteers want to help and are just an email message away.

This list of worldwide A-Fib Support Volunteers is arranged by geographical region. Note: substitute an “@” symbol for the “(at)”.

Read the special poem A-Fib’s Demise
by support volunteer, Emmett Finch, The Malibu Poet

WORLDWIDE

A-Fib Support Volunteers

WESTERN EUROPE

Ira, Rome, Italy; (Fluent in English & Italian) E-mail: idl.sorbo(at)mclinknet.it  (Experience in overcoming heart problems—heart attacks, pericarditis, cardiac asthma, bradycardia, tachycardia, PVCs & PACs, A-Fib [cured 2004], and pacemakers. He wears an ICD.) (see his personal experience story, #31: Living With a Pacemaker/ICD).

AUSTRALIA

Allan, Brisbane, Australia; Email: a-fibfriendallan(at)live.com.au

Ian, Sydney, Australia; E-mail: vagalman(at)optusnet.com.au

Roy, Adelaide, Australia; E-mail: roys1(at)tpg.com.au

Warren, Melbourne, Victoria, Australia; E-mail: redolent(at)bigpond.com (see his personal experience story, #34: A-Fib Free After Two Ablations Down Under)

EASTERN CANADA

Mark G., Barrie, Ontario; E-mail: stoneabba007(at)gmail.com

WESTERN CANADA

Darrell, Alberta, Canada; E-mail: bronc9239(at)hotmail.com

UNITED KINGDOM (ENGLAND)

David W., Norwich, Norfolk, England; E-mail: david(at)dandrhomesltd.co.uk

SOUTHERN AFRICA

Leon, South Africa, Johannesburg, Cape Town; E-mail: leon(at)mbanet.co.za

SOUTHEAST ASIA

Lee, Malaysia; E-mail: amirlee2(at)yahoo.com

Max, Shanghai, China; E-mail: max.jussila(at)gmail.com (see his personal experience story, #34: “From Shanghai to Bordeaux—a very difficult case requiring two ablations”)

For more information about our A-Fib Support Volunteers and how to volunteer, see my article: ‘Want to become a A-Fib Support Volunteer?’

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Return to Resources and Links
Return to A-Fib Support Volunteers

If you find any errors on this page, email us.  Last updated: Tuesday, October 6, 2015

DISCLAIMER: A-Fib.com Support Volunteers are not medical doctors and are not affiliated with any medical school or organization. Any communication with A-Fib.com Support Volunteers is not intended nor implied to be a substitute for professional medical advice. Always seek the advice of your physician or other qualified health professional prior to starting any new treatment or with any questions you may have regarding a medical condition. Nothing communicated by A-Fib.com Support Volunteers is intended to be for medical diagnosis or treatment. Their opinions are their own.

 

Our U.S. A-Fib Support Volunteers

A few of our many A-Fib.com Support Volunteers; Learn about becoming a A-Fib Support Volunteer.

Learn about becoming a A-Fib Support Volunteer.

When diagnosed with Atrial Fibrillation, you have many questions. It helps to have someone who has “been there” and is there for you now. Our A-Fib Support Volunteers want to help and are just an email message away.

This list of U.S. A-Fib Support Volunteers is arranged by geographical region. Note: substitute an “@” symbol for the “(at)”.

Read the special poem A-Fib’s Demise
by support volunteer, Emmett Finch, The Malibu Poet

UNITED STATES

A-Fib Support Volunteers

New England, USA
Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, Vermont

David H., Lexington, Massachusetts, Email: dholzman1776(at)gmail.com

Fred, Boston, Massachusetts; E-mail: fredfan1(at)aol.com

Mark S., New Hampshire; E-mail: seagullsnest(at)comcast.net

Rich, Boston, Massachusetts; E-mail: celtic8586(at)aol.com

Northeast, USA
Delaware, Indiana, New Jersey, New York, Pennsylvania, Ohio, West Virginia

Jerry, Long Island, New York; E-mail: Jerrynmn1(at)aol.com

Joe B., Greater New York City area; (E-mail: NG; needs updating as of 6-29-2014)

Ken, Loveland, OH; E-mail: closeks(at)fuse.net (expertise: Dr. Sirak’s Five Box Mini-Maze operation)

Scott, Montrose, NY (North of New York City): E:mail: Matrix058(at)yahoo.com. (expertise: Dealing with the ablation process)

Southeast, USA
Alabama, Florida, Georgia, Kentucky, Maryland, North Carolina,
South Carolina, Tennessee, Virginia

Ed W., Fort Lauderdale, Florida; E-mail: edwebbfl(at)gmail.com (Athlete, Heart Rate Monitor expertise) (see his personal experience story, #15: Cyclist/Triathlete with Persistent A-Fib)

Alan A., Richmond, Virginia; E-mail: adanet56(at)gmail.com

Alvin, Delray Beach, Florida; E-mail: adrelich(at)bellsouth.net (Medicines keep Alvin A-Fib free)

Bob, Palm Coast, Florida (Veteran); E-mail: bobwhitehurst(at)gmail.com

Jay, Atlanta, Georgia; E-mail: jjteresi(at)yahoo.com (see his personal experience story, #55: In A-Fib at age 25!—A guy deals with the anxiety. A-Fib free after two ablations at Texas Cardiac Arrhythmia Institute)

Michael, Raleigh, North Carolina; E-mail: halfmooncorp(at)hotmail.com

Sheri, Winchester, Virginia; E-mail: sheriweber47(at)yahoo.com. (Cox-Maze IV experience) Read Sheri’s story in our book Beat Your A-Fib: The Essential Guide to Finding Your Cure, A Life on Meds Wasn’t Good Enough—Selects a Minimally Invasive Cox-Maze IV, p. 105.

Stuart, Virginia; E-mail: ssutphin(at)vt.edu

Northwest, USA
Alaska, Idaho, Montana, Oregon, Washington, Wyoming

Dick, Walla Walla, Washington. (E-mail: NG; needs updating as of 6-29-2014) (had both a Mini-Maze, then Catheter Ablation) (see his personal experience story, #62)

Karl, Salem, Oregon. Telephone: (503) 949-1162—Karl prefers to talk over the phone after 4:00 pm PST. E-mail: karlgranat(at)msn.com. (Two ablations by Dr. Natale in San Francisco).

Todd F., Spokane, Washington. Email: cco2coug(at)gmail.com. (Three failed ablations in the Pacific Northwest, then successful ablation by Dr. Natale in San Francisco.)

Southwest, USA
Arizona, California, Colorado, Nevada, New Mexico, Utah

Beverly, Los Angeles, CA; E-mail: beverlywelsh(at)msn.com (expertise: Living with A-Fib, Drug Therapies)

Ed N., Monterey Peninsula, CA; E-mail: trigeeked(at)gmail.com

Joyce, Los Angeles, CA; E-mail: JET7700(at)aol.com (Joyce coordinates our Southern CA A-Fib Support Group)

Kathy, Oceanside, CA. E-mail: Katbuda(at)aol.com

Michele, Salt Lake City, Utah; Email: mstraube(at)mindspring.com (see her personal experience story, #42: Cured After 30 Years in A-Fib by Dr. Marrouche)

Monique, Irvine, CA; E-mail: mvancansun(at)yahoo.com (expertise: Women who exercise )

Bob Muenckler, Santa Monica, CA; By phone only 310-613-5413 (Expect an enthusiastic but long conversation. If you leave Bob your phone number, he will call you back on his own dime.) (expertise: Dr. Sirak’s Five-Box Thoracoscopic operation).

Mike Jones, Redding (Sacramento Valley), CA; E-mail: mjonesrdg(at)gmail.com (expertise: A-Fib drugs, amiodarone, Finding the Right Doctor) (see his personal experience story, #64: Triathlete 18 years in A-Fib, on Amiodarone for eight years—then A-Fib free after ablation by Dr. Padriag O’Neill)

Emmett Finch (The Malibu Poet; read his poem “A-Fib’s-Demise“): Malibu, CA; Phone: 310-457-7895. E-mail: sunbro(at)mindspring.com. Expertise: Watchman Device, AV Node Ablation and Pacemaker. (Read Emmett’s story “40-Year Battle With A-Fib Includes AV Node Ablation With Pacemaker” on page 161 of Beat Your A-Fib. Emmett celebrated his 94th birthday in 2015.)

Hawaii, USA

Joe L., Honolulu, Hawaii; E-mail: jleonardo98(at)yahoo.com

North Central, USA
Illinois, Iowa, Kansas, Michigan, Minnesota, Missouri, Nebraska, 
North Dakota, South Dakota, Wisconsin

Chris, Jackson, MI (South Central Michigan); Email: daddyzegar(at)gmail.com  (Expertise: young people with A-Fib);(see his personal experience story, #56: A-Fib Started at Age 23!—Ablation by Dr. Eric Good at Un. of Michigan)

Greg, Carbondale, Illinois; E-mail: ga2607(at)cba.siu.edu.  (see his personal experience story, #32: Not Necessary To Go To Top-Name A-Fib Centers To Have Excellent Care and Good Results)

Howard, Highland Park, Illinois; E-mail: howard.felix(at)comcast.net

Linda, Grand Junction, Michigan; E-mail: linda-seaman(at)btc-bci.com

Marilyn, Commerce Township, MI (near Detroit);  E-mail: nmshook(at)sbcglobal.net. (expertise: Pill-In-The-Pocket); (see her personal experience story, #25: Two Different “Pill-In-The-Pocket” Approaches—Both Turn to Catheter Ablation for a Cure)

Steven (17-year-old) & Steven’s Mother Sue (Teenager with A-Fib & Parent ready to help others), Michigan.  Email: suegaston(at)gmail.com.

Kathy R. Hollister, Missouri. (Expertise: Natural Remedies for A-Fib) Email: katheemarie77(at)yahoo.com. See Kathy’s personal experience story #73: A-Fib Success with Naturopathic Assistance—Over 10 Months A-Fib Free

 South Central, USA
Arkansas, Louisiana, Mississippi, Oklahoma, Texas

Steve P, Dallas, TX: Email: sjpully(at)yahoo.com (Expertise: A-Fib & Flutter Ablations, Finding the Best EPs, 20+ Years in A-Fib). Phone: 214-587-6133.

Mike M. Friendswood, TX. E-mail: mmmontz(at)aol.com. (Expertise: Living with A-Fib after Heart Surgeries and Years of Chronic A-Fib)

For more information about our A-Fib Support Volunteers and how to volunteer, see my article: Want to become a A-Fib Support Volunteer?’

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If you find any errors on this page, email us.  Last updated: Wednesday, June 15, 2016

DISCLAIMER: A-Fib.com Support Volunteers are not medical doctors and are not affiliated with any medical school or organization. Any communication with A-Fib.com Support Volunteers is not intended nor implied to be a substitute for professional medical advice. Always seek the advice of your physician or other qualified health professional prior to starting any new treatment or with any questions you may have regarding a medical condition. Nothing communicated by A-Fib.com Support Volunteers is intended to be for medical diagnosis or treatment. Their opinions are their own.

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