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"This book is incredibly complete and easy-to-understand for anybody. I certainly recommend it for patients who want to know more about atrial fibrillation than what they will learn from doctors...."

Pierre Jaïs, M.D. Professor of Cardiology, Haut-Lévêque Hospital, Bordeaux, France

"Dear Steve, I saw a patient this morning with your book [in hand] and highlights throughout. She loves it and finds it very useful to help her in dealing with atrial fibrillation."

Dr. Wilber Su Cavanaugh Heart Center, Phoenix, AZ

"Your book [Beat Your A-Fib] is the quintessential most important guide not only for the individual experiencing atrial fibrillation and his family, but also for primary physicians, and cardiologists."

Jane-Alexandra Krehbiel, nurse, blogger and author "Rational Preparedness: A Primer to Preparedness"



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"Steve Ryan's summaries of the Boston A-Fib Symposium are terrific. Steve has the ability to synthesize and communicate accurately in clear and simple terms the essence of complex subjects. This is an exceptional skill and a great service to patients with atrial fibrillation."

Dr. Jeremy Ruskin of Mass. General Hospital and Harvard Medical School

"I love your [A-fib.com] website, Patti and Steve! An excellent resource for anybody seeking credible science on atrial fibrillation plus compelling real-life stories from others living with A-Fib. Congratulations…"

Carolyn Thomas, blogger and heart attack survivor; MyHeartSisters.org

"Steve, your website was so helpful. Thank you! After two ablations I am now A-fib free. You are a great help to a lot of people, keep up the good work."

Terry Traver, former A-Fib patient

"If you want to do some research on AF go to A-Fib.com by Steve Ryan, this site was a big help to me, and helped me be free of AF."

Roy Salmon Patient, A-Fib Free; pacemakerclub.com, Sept. 2013


Patients’ Best Advice #10: Become Your Own Best Patient Advocate

THE TOP 10 LIST #10

Become Your Own Best Patient Advocate.

A-FIB PATIENTS’ BEST ADVICE

From Beat Your A-Fib: The Essential Guide to Finding Your Cure, Chapter 12: Your Journey to a Cure, and personal stories from A-Fib.com. Advice from patients now free from the burden of Atrial Fibrillation:

Joan Schneider at A-Fib.com

Joan S.,

Joan Schneider, Ann Arbor, MI, tells of her astonishment how little her doctors told her about A-Fib:

“I was so desperate for answers I started searching on-line. My jaw hit the table. [She said to herself…] ‘How could my physicians not explain these things to me?’ Once I was able to really comprehend my future, I was able to make things happen.
Best advice: Don’t be afraid to fire your physician, and be your own advocate.” (pp. 119-124)
Michele Straube

Michele S.

Michele Straub, Salt Lake City, Utah, encourages you to be more active in your own treatment plan:

“Do not take ‘this is as good as it gets’ as an answer—do your own research about what’s possible. Take a co-leadership role with your doctor.” (pp. 88-90)

John Thorton from Sioux Falls, SD, wrote about his PVCs and ignoring the bad advice from his doctors:

John and Marcia Thornton

John & Marcia T.

“The local MDs (about a half dozen different ones), cardiologists, EPs, and other local specialists, all told me stuff like: “Everyone has PVCs” and “PVCs are benign,” and “It is just anxiety,” and “You just need to learn to live with it”. Which was completely WRONG.
Be Assertive, Even Aggressive: I had to set up my own appointment at Mayo Clinic to get evaluated there. It was a lot of work, by me alone, to get in to see the doctors at Mayo, but it was worth it.
I honestly believe that had I not gone to Mayo I would have suffered some major heart event, or possibly death.”

Our A-Fib Support Volunteers: Just an Email Away

A-Fib.com supporters

To become your own best patient advocate, it helps to have someone who has ‘been there’ and is there for you now—someone you can turn to for advice, emotional support, and a sense of hope that you can be cured. Someone who can share their own story or just ‘listen’ to yours.

Our A-Fib Support Volunteers are just an email message away. Note: Not all Support Volunteers are ‘cured’ of their A-Fib, but have found the best outcome for their situation.

Our volunteers are listed by U.S. state and worldwide by geographical region. Learn more at: Our A-Fib Support Volunteers

Make Things Happen:
Become Your Own Best Patient Advocate!

♥ ♥ ♥


‘The Top 10 List of A-Fib Patients’ Best Advice’ is a a consensus of valuable advice from fellow patients who are now free from the burden of Atrial Fibrillation. From Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD (beatyoura-fib.com)

Coming soon: a .PDF of the
Top 10 List of A-Fib Patients’ Best Advice
Please, share the advice ♥ 

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