ABOUT 'BEAT YOUR A-FIB'...


"This book is incredibly complete and easy-to-understand for anybody. I certainly recommend it for patients who want to know more about atrial fibrillation than what they will learn from doctors...."

Pierre Jaïs, M.D. Professor of Cardiology, Haut-Lévêque Hospital, Bordeaux, France

"Dear Steve, I saw a patient this morning with your book [in hand] and highlights throughout. She loves it and finds it very useful to help her in dealing with atrial fibrillation."

Dr. Wilber Su Cavanaugh Heart Center, Phoenix, AZ

"Your book [Beat Your A-Fib] is the quintessential most important guide not only for the individual experiencing atrial fibrillation and his family, but also for primary physicians, and cardiologists."

Jane-Alexandra Krehbiel, nurse, blogger and author "Rational Preparedness: A Primer to Preparedness"



ABOUT A-FIB.COM...


"Steve Ryan's summaries of the Boston A-Fib Symposium are terrific. Steve has the ability to synthesize and communicate accurately in clear and simple terms the essence of complex subjects. This is an exceptional skill and a great service to patients with atrial fibrillation."

Dr. Jeremy Ruskin of Mass. General Hospital and Harvard Medical School

"I love your [A-fib.com] website, Patti and Steve! An excellent resource for anybody seeking credible science on atrial fibrillation plus compelling real-life stories from others living with A-Fib. Congratulations…"

Carolyn Thomas, blogger and heart attack survivor; MyHeartSisters.org

"Steve, your website was so helpful. Thank you! After two ablations I am now A-fib free. You are a great help to a lot of people, keep up the good work."

Terry Traver, former A-Fib patient

"If you want to do some research on AF go to A-Fib.com by Steve Ryan, this site was a big help to me, and helped me be free of AF."

Roy Salmon Patient, A-Fib Free; pacemakerclub.com, Sept. 2013


hope

Our Worldwide A-Fib Support Volunteers

A few of our many A-Fib.com Support Volunteers; Learn about becoming a A-Fib Support Volunteer

Learn about becoming a A-Fib Support Volunteer

When diagnosed with Atrial Fibrillation, you have many questions. It helps to have someone who has “been there” and is there for you now. Our A-Fib Support Volunteers want to help and are just an email message away.

This list of worldwide A-Fib Support Volunteers is arranged by geographical region. Note: substitute an “@” symbol for the “(at)”.

Read the special poem A-Fib’s Demise
by support volunteer, Emmett Finch, The Malibu Poet

WORLDWIDE

A-Fib Support Volunteers

WESTERN EUROPE

Ira, Rome, Italy; (Fluent in English & Italian) E-mail: idl.sorbo(at)mclinknet.it  (Experience in overcoming heart problems—heart attacks, pericarditis, cardiac asthma, bradycardia, tachycardia, PVCs & PACs, A-Fib [cured 2004], and pacemakers. He wears an ICD.) (see his personal experience story, #31: Living With a Pacemaker/ICD).

AUSTRALIA

Allan, Brisbane, Australia; Email: a-fibfriendallan(at)live.com.au

Ian, Sydney, Australia; E-mail: vagalman(at)optusnet.com.au

Roy, Adelaide, Australia; E-mail: roys1(at)tpg.com.au

Warren, Melbourne, Victoria, Australia; E-mail: redolent(at)bigpond.com (see his personal experience story, #34: A-Fib Free After Two Ablations Down Under)

EASTERN CANADA

Mark G., Barrie, Ontario; E-mail: stoneabba007(at)gmail.com

WESTERN CANADA

Darrell, Alberta, Canada; E-mail: bronc9239(at)hotmail.com

UNITED KINGDOM (ENGLAND)

David W., Norwich, Norfolk, England; E-mail: david(at)dandrhomesltd.co.uk

SOUTHERN AFRICA

Leon, South Africa, Johannesburg, Cape Town; E-mail: leon(at)mbanet.co.za

SOUTHEAST ASIA

Lee, Malaysia; E-mail: amirlee2(at)yahoo.com

Max, Shanghai, China; E-mail: max.jussila(at)gmail.com (see his personal experience story, #34: “From Shanghai to Bordeaux—a very difficult case requiring two ablations”)

For more information about our A-Fib Support Volunteers and how to volunteer, see my article: ‘Want to become a A-Fib Support Volunteer?’

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Return to A-Fib Support Volunteers

If you find any errors on this page, email us.  Last updated: Tuesday, October 6, 2015

DISCLAIMER: A-Fib.com Support Volunteers are not medical doctors and are not affiliated with any medical school or organization. Any communication with A-Fib.com Support Volunteers is not intended nor implied to be a substitute for professional medical advice. Always seek the advice of your physician or other qualified health professional prior to starting any new treatment or with any questions you may have regarding a medical condition. Nothing communicated by A-Fib.com Support Volunteers is intended to be for medical diagnosis or treatment. Their opinions are their own.

 

Our U.S. A-Fib Support Volunteers

A few of our many A-Fib.com Support Volunteers; Learn about becoming a A-Fib Support Volunteer.

Learn about becoming a A-Fib Support Volunteer.

When diagnosed with Atrial Fibrillation, you have many questions. It helps to have someone who has “been there” and is there for you now. Our A-Fib Support Volunteers want to help and are just an email message away.

This list of U.S. A-Fib Support Volunteers is arranged by geographical region. Note: substitute an “@” symbol for the “(at)”.

Read the special poem A-Fib’s Demise
by support volunteer, Emmett Finch, The Malibu Poet

UNITED STATES

A-Fib Support Volunteers

New England, USA
Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island, Vermont

David H., Lexington, Massachusetts, Email: dholzman1776(at)gmail.com

Fred, Boston, Massachusetts; E-mail: fredfan1(at)aol.com

Mark S., New Hampshire; E-mail: seagullsnest(at)comcast.net

Rich, Boston, Massachusetts; E-mail: celtic8586(at)aol.com

Northeast, USA
Delaware, Indiana, New Jersey, New York, Pennsylvania, Ohio, West Virginia

Jerry, Long Island, New York; E-mail: Jerrynmn1(at)aol.com

Joe B., Greater New York City area; (E-mail: NG; needs updating as of 6-29-2014)

Ken, Loveland, OH; E-mail: closeks(at)fuse.net (expertise: Dr. Sirak’s Five Box Mini-Maze operation)

Scott, Montrose, NY (North of New York City): E:mail: Matrix058(at)yahoo.com. (expertise: Dealing with the ablation process)

Southeast, USA
Alabama, Florida, Georgia, Kentucky, Maryland, North Carolina,
South Carolina, Tennessee, Virginia

Ed W., Fort Lauderdale, Florida; E-mail: edwebbfl(at)gmail.com (Athlete, Heart Rate Monitor expertise) (see his personal experience story, #15: Cyclist/Triathlete with Persistent A-Fib)

Alan A., Richmond, Virginia; E-mail: adanet56(at)gmail.com

Alvin, Delray Beach, Florida; E-mail: adrelich(at)bellsouth.net (Medicines keep Alvin A-Fib free)

Bob, Palm Coast, Florida (Veteran); E-mail: bobwhitehurst(at)gmail.com

Jay, Atlanta, Georgia; E-mail: jjteresi(at)yahoo.com (see his personal experience story, #55: In A-Fib at age 25!—A guy deals with the anxiety. A-Fib free after two ablations at Texas Cardiac Arrhythmia Institute)

Michael, Raleigh, North Carolina; E-mail: halfmooncorp(at)hotmail.com

Sheri, Winchester, Virginia; E-mail: sheriweber47(at)yahoo.com. (Cox-Maze IV experience) Read Sheri’s story in our book Beat Your A-Fib: The Essential Guide to Finding Your Cure, A Life on Meds Wasn’t Good Enough—Selects a Minimally Invasive Cox-Maze IV, p. 105.

Stuart, Virginia; E-mail: ssutphin(at)vt.edu

Northwest, USA
Alaska, Idaho, Montana, Oregon, Washington, Wyoming

Dick, Walla Walla, Washington. (E-mail: NG; needs updating as of 6-29-2014) (had both a Mini-Maze, then Catheter Ablation) (see his personal experience story, #62)

Karl, Salem, Oregon. Telephone: (503) 949-1162—Karl prefers to talk over the phone after 4:00 pm PST. E-mail: karlgranat(at)msn.com. (Two ablations by Dr. Natale in San Francisco).

Todd F., Spokane, Washington. Email: cco2coug(at)gmail.com. (Three failed ablations in the Pacific Northwest, then successful ablation by Dr. Natale in San Francisco.)

Southwest, USA
Arizona, California, Colorado, Nevada, New Mexico, Utah

Beverly, Los Angeles, CA; E-mail: beverlywelsh(at)msn.com (expertise: Living with A-Fib, Drug Therapies)

Ed N., Monterey Peninsula, CA; E-mail: trigeeked(at)gmail.com

Joyce, Los Angeles, CA; E-mail: JET7700(at)aol.com (Joyce coordinates our Southern CA A-Fib Support Group)

Kathy, Oceanside, CA. E-mail: Katbuda(at)aol.com

Michele, Salt Lake City, Utah; Email: mstraube(at)mindspring.com (see her personal experience story, #42: Cured After 30 Years in A-Fib by Dr. Marrouche)

Monique, Irvine, CA; E-mail: mvancansun(at)yahoo.com (expertise: Women who exercise )

Bob Muenckler, Santa Monica, CA; By phone only 310-613-5413 (Expect an enthusiastic but long conversation. If you leave Bob your phone number, he will call you back on his own dime.) (expertise: Dr. Sirak’s Five-Box Thoracoscopic operation).

Mike Jones, Redding (Sacramento Valley), CA; E-mail: mjonesrdg(at)gmail.com (expertise: A-Fib drugs, amiodarone, Finding the Right Doctor) (see his personal experience story, #64: Triathlete 18 years in A-Fib, on Amiodarone for eight years—then A-Fib free after ablation by Dr. Padriag O’Neill)

Emmett Finch (The Malibu Poet; read his poem “A-Fib’s-Demise“): Malibu, CA; Phone: 310-457-7895. E-mail: sunbro(at)mindspring.com. Expertise: Watchman Device, AV Node Ablation and Pacemaker. (Read Emmett’s story “40-Year Battle With A-Fib Includes AV Node Ablation With Pacemaker” on page 161 of Beat Your A-Fib. Emmett celebrated his 94th birthday in 2015.)

Hawaii, USA

Joe L., Honolulu, Hawaii; E-mail: jleonardo98(at)yahoo.com

North Central, USA
Illinois, Iowa, Kansas, Michigan, Minnesota, Missouri, Nebraska, 
North Dakota, South Dakota, Wisconsin

Chris, Jackson, MI (South Central Michigan); Email: daddyzegar(at)gmail.com  (Expertise: young people with A-Fib);(see his personal experience story, #56: A-Fib Started at Age 23!—Ablation by Dr. Eric Good at Un. of Michigan)

Greg, Carbondale, Illinois; E-mail: ga2607(at)cba.siu.edu.  (see his personal experience story, #32: Not Necessary To Go To Top-Name A-Fib Centers To Have Excellent Care and Good Results)

Howard, Highland Park, Illinois; E-mail: howard.felix(at)comcast.net

Linda, Grand Junction, Michigan; E-mail: linda-seaman(at)btc-bci.com

Marilyn, Commerce Township, MI (near Detroit);  E-mail: nmshook(at)sbcglobal.net. (expertise: Pill-In-The-Pocket); (see her personal experience story, #25: Two Different “Pill-In-The-Pocket” Approaches—Both Turn to Catheter Ablation for a Cure)

Steven (17-year-old) & Steven’s Mother Sue (Teenager with A-Fib & Parent ready to help others), Michigan.  Email: suegaston(at)gmail.com.

Kathy R. Hollister, Missouri. (Expertise: Natural Remedies for A-Fib) Email: katheemarie77(at)yahoo.com. See Kathy’s personal experience story #73: A-Fib Success with Naturopathic Assistance—Over 10 Months A-Fib Free

 South Central, USA
Arkansas, Louisiana, Mississippi, Oklahoma, Texas

Steve P, Dallas, TX: Email: sjpully(at)yahoo.com (Expertise: A-Fib & Flutter Ablations, Finding the Best EPs, 20+ Years in A-Fib). Phone: 214-587-6133.

Mike M. Friendswood, TX. E-mail: mmmontz(at)aol.com. (Expertise: Living with A-Fib after Heart Surgeries and Years of Chronic A-Fib)

For more information about our A-Fib Support Volunteers and how to volunteer, see my article: Want to become a A-Fib Support Volunteer?’

Back to the Top
Return to Resources and Links
Return to A-Fib Support Volunteers

If you find any errors on this page, email us.  Last updated: Wednesday, June 15, 2016

DISCLAIMER: A-Fib.com Support Volunteers are not medical doctors and are not affiliated with any medical school or organization. Any communication with A-Fib.com Support Volunteers is not intended nor implied to be a substitute for professional medical advice. Always seek the advice of your physician or other qualified health professional prior to starting any new treatment or with any questions you may have regarding a medical condition. Nothing communicated by A-Fib.com Support Volunteers is intended to be for medical diagnosis or treatment. Their opinions are their own.

A-Fib Patients Stories of Hope and Encouragement – Personal Experiences

A-Fib Patient Stories of Hope, Encouragement and Lessons Learned

Personal Experiences: A-Fib Patients Share Stories of Hope and Encoragement

Personal Experiences: A-Fib Patients Share Stories of Hope and Encouragement

By category:

Other A-Fib patients have been where you are right now. Dozens have agreed to share their personal experience (starting with the Steve Ryan’s story in 1998). Each story is told in their own words. Many stories span years, even decades. Symptoms will vary, and treatments choices run the full gamut.

Each author tells their story to offer you hope, to encourage you, and to bolster your determination to seek a life free of A-Fib. Many writers have included their email address if you want to contact them directly. Note: You’ll need to replace the ‘(at)’ with the ‘@’ (this helps protect from spamming).

Note: Patients sharing their personal experiences are often quite frank about the treatments received, their doctors and medical centers; their opinions are their own.

HOW TO SELECT A STORY

Listed by Posting Order: With over sixty stories, you probably won’t want to read them all. So, if you wish to read the most recent stories see the Listed by Posting Orderpage. Personal experiences are posted in descending (reverse) order by date written (or received). You’ll see my own story at the bottom of the list (#1 from 2002). Click on the title of the story you want to read to jump directly to the page with that personal experience.

Have an A-Fib story to share? It can be your own story or perhaps your spouse, parent or sibling. Read how to write and submit your A-Fib story

Listed by Subject: If you wish to read stories on a specific subject see the page titled Listed by Subject’. We have a few major categories: by Cause, by Risk Factor, by Symptom, by Age group/Years with A-Fib, and by Treatment. Each category has several subcategories. (Stories have many facets; therefore a story may appear in more than one category.) Browse the categories to select a story, then click on a story number to jump directly to the page with that personal experience.

HAVE A STORY TO SHARE?

How about you!? Do you have a personal A-Fib experience to share with other patients? It can be your own story or perhaps your spouse, parent or sibling. Just tell the story from your point-of-view. If you are interesting in offering your insights and ‘lessons learned’, read how to write and submit your A-Fib story, then email us!

A POEM BY EMMETT FINCH

Emmett Finch - Personal experience with Atrial Fibrillation

Emmett Finch
The Malibu Poet

We are happy and honored to include a poem written for A-Fib patients by Emmett Finch, the Malibu Poet. We hope it will inspire you as it did us. Thank you, Emmett. (Print a copy.)

♦♦♦

Last updated: Tuesday, October 6, 2015

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A-Fib Support Volunteers: Just an Email Away

  Our A-Fib Support Volunteers: Just an Email Away

A few of our many A-Fib.com Support Volunteers

A few of our many A-Fib.com Support Volunteers

Your first experiences with A-Fib has changed your life in a number of ways. In addition to the emotional impact you may have had after being diagnosed, you now have important decisions to make about your treatment and about how you may need to adjust to life with your A-Fib symptoms and new medications.

It helps to have someone who has “been there” and is there for you now.

Our A-Fib Support Volunteers

Having someone you can turn to for advice, emotional support, and a sense of hope that you can be cured, may bring you peace of mind. (Click on title to jump to that list.)

List of U.S. Volunteers
List of Worldwide Volunteers

Our A-Fib Positive Thoughts/Prayer Group

At A-Fib.com we believe—in healing through hope, belief, prayer—and in the power of positive thoughts. Learn more at The Healing Power of Hope, Belief and Expectations.

Got A-Fib - Revised Oct 6 2015 550 deep pix wide at 96 resBlessed by our World-Wide Volunteers

We are blessed to have many generous people who have volunteered to help others get through their A-Fib ordeal.

Most A-Fib Support Volunteers are not medical personnel. They can’t be expected to have every medical A-Fib fact at their fingertips. They are not paid. They come from widely different backgrounds. But you can be sure they care about you and understand what you are going through.

These volunteers have gone through a lot while seeking their A-Fib cure. They have been helped along the way and want to return the favor. They offer you support and hope through exchanging emails and sharing their stories. (Not all Support Volunteers are ‘cured’ of their A-Fib, but have found the best outcome for their situation.) Some have special skills which are listed in parentheses.

For more information about our A-Fib Support Volunteers and how to volunteer, see my article: ‘Want to become a A-Fib Support Volunteer?’

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Return to Resources and Links

If you find any errors on this page, email us. ♥ Last updated: Thursday, October 13, 2016

DISCLAIMER: A-Fib.com Support Volunteers are not medical doctors and are not affiliated with any medical school or organization. Any communication with A-Fib.com Support Volunteers is not intended nor implied to be a substitute for professional medical advice. Always seek the advice of your physician or other qualified health professional prior to starting any new treatment or with any questions you may have regarding a medical condition. Nothing communicated by A-Fib.com Support Volunteers is intended to be for medical diagnosis or treatment. Their opinions are their own.

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