Why You Need an A-Fib Notebook and 3-Ring Binder (and a Patient Portal?)
As you search for your Atrial Fibrillation cure, you will want to organize the research and medical treatment information you are collecting. Start with a notebook and a three-ring binder or a file folder.
What to Include in Your A-Fib Binder
Your A-Fib binder is where you should file and organize all your A-Fib-related treatment information, such as:
• contact list of all health care providers and facilities
• lab test results, EKG strips and other medical records
• office visit notes and phone calls
• list of all medications
• health insurance claims and records
• records of any major medical event from the past two years
• completed worksheets and blanks ready for use
• research from the internet or medical center library
Our available free worksheets: 10 Questions to Ask Before Taking Any Drug; 10 Questions to Ask When Interviewing Any Cardiologist; Keep an Inventory List of Your Medications
Make Medical Record-Keeping a Habit

Make Medical Record-Keeping a Habit
We strongly encourage you to get in the habit of keeping a copy of every test result you get in your three-ring binder. Don’t leave your doctor’s office, medical center or hospital without a copy of every test or procedure they perform.
If the test result isn’t immediately available, have them email you a copy. (For another option, see my comment below about using Patient Portals.)
If you are missing some records, read our article, How to Request Copies of your Medical Records. We give you three ways to request your medical records from your doctors and medical providers.
Does Your Healthcare Provider Offer a Patient Portal?
A patient portal is a secure website that gives you direct access to your medical information, including lab and procedure results, immunizations, prescribed medications, doctor visit summaries and upcoming scheduled appointments. (You can download lab results and imaging reports, etc. to your laptop or send to yourself via e-mail.)If you’re not yet connected, it’s easy to sign up. Just ask your healthcare provider.
Add Your Personal A-Fib Summary
Doctors appreciate knowledgeable, informed, and prepared patients. Each doctor will probably ask you many of the same questions, such as:
• What particular symptoms are bothering you?
• When did you first begin to experience these symptoms?
• Are these symptoms occasional or intermittent or persistent?
• Is there anything that appears to worsen or lessen your symptoms?
For efficiency, prepare your Personal A-Fib Medical Summary (see How to Create Your Personal A-Fib Medical Summary) and include a copy with each packet of medical records you send to doctors. Store the original and copies in your binder.
Prepare a Packet for Each New Doctor
When consulting a new doctor (or interviewing a prospective one), create a packet of your medical records including test results and any applicable images/X-rays.
Your A-Fib Binder holds all the information you will need.
Consider sending your packet ahead of time. (But bring an extra copy with you. Don’t be surprised if some doctors didn’t have time to read it beforehand.)
Remember: Keep Your A-Fib Binder Up-to-Date
After each doctor visit, add your handwritten notes from your notebook, such as changes or additions of prescription medications or supplements and copies of any tests, referrals to other medical professionals, etc. Also, update your ‘Personal A-Fib Medical Summary’ when necessary.
Your A-Fib Binder is a Valuable Resource.
It will help you find your A-Fib cure!

Updated: What is Your Portable Medical Information Kit?
I’ve updated this page with the newest examples (with links to each) of how to carry your personal medical information with you, but it all starts with knowing what information you should compile.
When you have A-Fib and you’re taking a blood thinner or other medication, you may wonder if you should carry an emergency I.D. card or wear a medical bracelet.
According to a paramedic with 25 years of experience, emergency measures to stop bleeding such as compresses, tourniquets, etc. will be used whether or not the paramedic knows one has A-Fib and is taking a blood thinner like Coumadin or the newer Direct Oral Anticoagulants (DOACs) like Eliquis and Xarelto.
But, in general, it’s a great help to emergency personnel if you carry one or more forms of emergency medical ID.
Dr. Todd Cohen, the author of the book, The Patient’s Guide to Heart Rhythm Problems, calls it a “portable medical information kit”. …Continue reading to learn what to include in your “portable medical information kit”…-and the various ways you can carry the information with you…->
2024 AF Symposium: In Memoriam Dr. David Haines and Dr. Albert Waldo
This past year the Atrial Fibrillation community lost two pioneers in the field of cardiac electrophysiology and innovative research. They will be missed.
Dr. David Haines Passed Away Suddenly February 10, 2024

Dr. David Haines
A global pioneer in cardiac ablation, Dr. David Haines passed away suddenly on February 10, 2024. He served as the Director of the Heart Rhythm Center, Corewell Health Beaumont in Michigan since 2003.
As an internationally acclaimed cardiac electrophysiologist and innovative researcher, he is credited for numerous medical developments, academic programs, and leadership in his 44 years of practice. He was actively involved in a multi-center clinical trial investigating a revolutionary Pulse Field Ablation system for pulmonary vein isolation as a treatment for atrial fibrillation.
Personally, I will miss Dr. Haines who was a great help to me when we started our website, A-Fib.com. His advice and encouragement were very appreciated.
And of course, he was an important contributor to the annual AF Symposium over many years.

Dr. Albert Waldo
Dr. Albert Waldo Passed Away August 17, 2023
A world-renowned cardiologist and researcher at Case Western Reserve University, Dr. Waldo was a pioneer in the field of electrophysiology.
He published over 500 scientific articles and numerous books. He was the first electrophysiologist elected to be the President of the North American Society of Electrophysiology in 1984.
His research and writing for over fifty years helped map and describe cardiac entrainment, which led to a revolution in the pacemaker industry and the modern treatment of Atrial Fibrillation and Atrial Flutter.
A master teacher, he was acclaimed worldwide for his commitment to education and training in the field. He is a physician to whom the field of modern medicine owes a great debt of gratitude and respect.
He was an important contributor to the annual AF Symposium for many years.
More of my reports are coming next week To read earlier reports, see 2024 Symposium My Summary Reports
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2024 AF Symposium: In Memoriam Dr. David Haines and Dr. Albert Waldo
2024 AF Symposium
In Memoriam Dr. David Haines and Dr. Albert Waldo
This past year the Atrial Fibrillation community lost two pioneers in the field of cardiac electrophysiology and innovative research. They will be missed.
Dr. David Haines Passed Away Suddenly February 10, 2024

Dr. David Haines
A global pioneer in cardiac ablation, Dr. David Haines passed away suddenly on February 10, 2024. He served as the Director of the Heart Rhythm Center, Corewell Health Beaumont in Michigan since 2003.
As an internationally acclaimed cardiac electrophysiologist and innovative researcher, he is credited for numerous medical developments, academic programs, and leadership in his 44 years of practice. He was actively involved in a multi-center clinical trial investigating a revolutionary Pulse Field Ablation system for pulmonary vein isolation as a treatment for atrial fibrillation.
Personally, I will miss Dr. Haines who was a great help to me when we started our website, A-Fib.com. His advice and encouragement were very appreciated.
And of course, he was an important contributor to the annual AF Symposium over many years.

Dr. Albert Waldo
Dr. Albert Waldo Passed Away August 17, 2023
A world-renowned cardiologist and researcher at Case Western Reserve University, Dr. Waldo was a pioneer in the field of electrophysiology.
He published over 500 scientific articles and numerous books. He was the first electrophysiologist elected to be the President of the North American Society of Electrophysiology in 1984.
His research and writing for over fifty years helped map and describe cardiac entrainment, which led to a revolution in the pacemaker industry and the modern treatment of Atrial Fibrillation and Atrial Flutter.
A master teacher, he was acclaimed worldwide for his commitment to education and training in the field. He is a physician to whom the field of modern medicine owes a great debt of gratitude and respect.
He was an important contributor to the annual AF Symposium for many years.
Return to 2024 AF Symposium Reports
If you find any errors on this page, email us. Y
Last updated: Thursday, July 18, 2024
A-Fib Patients with Sleep Apnea: Philips Respironics Recall of CPAP Devices
Background: A-Fib patients often have obstructive sleep apnea as well. Many use a Continuous Positive Airway Pressure (CPAP) device when sleeping to keep their air way open and unobstructed.
The FDA Safety Commission and NST Attorneys-at-Law report that Philips has recalled their CPAP devices because of “identified potential health risks related to the polyester-based polyurethane sound abatement foam component of these devices.” The foam in the machine can break down and then be swallowed or inhaled by the user.
According to Philips’ lab results, degraded polyurethane foam produced potentially harmful chemicals. These chemicals may then enter one’s body, reach the bloodstream, and travel to any body tissue and organ. Most of these harmful chemicals from the degraded foam can cause cancer.
All CPAP Users
If you use a different brand of CPAP device, check the tubing. Or talk to your supplier about how safe your device is in light of the Phillips recall.
If You Have a Philips CPAP Device
For detailed information about this recall, go the NST Attorneys-at-Law web site or Philips Voluntary Recall Information to:
- Determine if your product is listed in the Philips recall notification
- Learn how to Register Your Device For Recall and What To Expect Next
Talk to Your Doctor: The U.S. Food and Drug Administration (FDA) advises consumers to talk to their doctor to weigh the risks of continued use and decide on a suitable way to move forward.
A-Fib, Sleep Apnea and CPAP: What You Need to Know
If you have a Phillips CPAP device, learn if you have a model that has been recalled. If so, stop using it and talk with your doctor on how to proceed.
If you model has been officially recalled, Philips should give you a new one. But you may be safer switching to another CPAP manufacturer.
Visit the Philips Voluntary Recall Information website to stay current on your claim.

Invitation: The Association Between Atrial Fibrillation and Anxiety Survey
The Association Between Atrial Fibrillation and Anxiety Survey
This survey is for research conducted by Sevinc Erdas Uzumcu as partial completion of the Doctor of Health Sciences degree at A. T. Still University. The purpose of this research is to understand of the association between atrial fibrillation and anxiety. Your participation is voluntary and will only involve completing the anonymous, 7–minute questionnaire. The researcher will not place any codes on the questionnaire that could directly identify you. The results of this research might be published, but any research reports or publications will not reveal your name or identity. Your survey completion serves as consent to participate in this research. While there are no direct benefits to you for completing this questionnaire, the results may help improve understanding of prevalence of anxiety among patients with AF and the association between AF symptom severity and anxiety that could contribute to current treatment options and improved patient outcomes.
Thank you for your time,
Sincerely,
Sevinc E. Uzumcu
Doctorate Student
Doctor of Health Sciences Program
T. Still University
Arizona School of Health Science Mesa, Arizona
Email: serdasuzumcu@atsu.edu
AF and Anxiety Survey Link:
https://www.surveymonkey.com/r/8LFN3BJ
Podcast: The Double Whammy? Sleep Apnea and Atrial Fibrillation
Open in a new window: Podcast The Double Whammy? Sleep Apnea and Atrial Fibrillation
Note: If you prefer to read instead of listen, click the transcript graphic bar below for the printed version.
Podcast: The Double Whammy? Sleep Apnea and Atrial Fibrillation
Obstructive Sleep Apnea (OSA), aside from causing or triggering A-Fib, if untreated it can cause many other serious health threats. That’s the topic of this podcast between Steve and our friend, Travis Van Slooten, publisher of LivingWithAtrialFibrillation.com. We discuss the strong connection between sleep apnea and A-Fib, and why it’s so important to have a sleep study if you have atrial fibrillation. (21:33 min)
Highlights from this Podcast
♥ Over 40% of A-Fib patients also have sleep apnea
♥ Sleep apnea can cause atrial fibrillation
♥ Anyone can have Sleep Apnea (thin, average or overweight)
♥ If you have A-Fib, you should definitely have a sleep study
♥ Sleep studies: in-lab test vs. in-home test
To Learn More
See our posts: Sleep Apnea: When Snoring Can Be Lethal and Sleep Apnea: Home Testing with WatchPAT Device and the Philips Respironics.
On Livingwithatrialfibrillation.com, see Travis’ post: My In-Lab Sleep Study Experience.
AF 2018: New Report on the CASTLE AF Clinical Trial—Most Important Study for Patients
Most people who’ve had a successful catheter ablation can tell you how wonderful it feels to have a heart that beats normally again. Thanks to Dr. Marrouche and his colleagues, we now have hard data that a catheter ablation doesn’t just feel good but lets us live a healthier, longer life.
Dr. Nassir Marrouche & CASTLE AF Clinical Trial
At the 2018 AF Symposium, Dr. Nassir Marrouche presented results of the full CASTLE-AF study. (I reported briefly on initial findings last October (see CASTLE AF Study: Live Longer―Have a Catheter Ablation).
The 9-year, multicenter CASTLE-AF trial started in 2008 and focused on patients with A-Fib and systolic heart failure. The 398 participants were at 31 sites in 9 countries across Europe, Australia and the U.S.
Study participants had A-Fib and advanced heart failure (i.e. low ejection fraction less than 35%) and were randomized to receive either radiofrequency catheter ablation or conventional drug treatment. The median follow-up period was 37.8 months.
Results―Ablation Improves Quantity and Quality of Life
Dr. Marrouche listed key results of the CASTLE-AF Clinical Trial:
▪ Catheter ablation lowered the death rate by 47% vs conventional drug therapy..
▪ Even though 94% of the patients were taking Coumadin, the catheter ablation group’s stroke rate was ½ of the conventional drug treatment group.
▪ Heart failure hospital admissions improved immediately…continue reading Dr. Marrouche’s findings…
2018: A-Fib.com Again Earns HON Certificate for Quality and Trustworthiness of Health Information
A-Fib.com has again earned the Health On the Net Foundation (HON) Certification for quality and trustworthiness of medical and health online information. (We were first certified in 2009.)
The voluntary HONcode accreditation program sets out a standardized criterion of eight principles of good practice for health information websites. Each applicant is checked for compliance by a review committee including medical professionals.
The Health On the Net Foundation (HON) Code of Conduct helps protect citizens from misleading health information.
Our 2018-2019 Active Certification & Dynamic Seal
Our HON seal is displayed in the footer of our web page and is directly linked to the A-Fib.com HONcode certificate located on the HON website.
Read more about the A-Fib.com HON Certificate on our website. Or learn about the criterion of eight principles of good practice at Health On the Net Foundation (HON) Certification.
When visiting other health-related websites, look for the HON Code of Conduct badge to be assured of the site’s quality and trustworthiness of medical and health online information.
Updated: Print a free Medical Alert I.D. Wallet Card
Last updated: January 13, 2022 Websites change every day. So it’s no surprise when reader Debbie L. emailed us about a non-working link. Thanks to her alert, I’ve updated my links to print your own emergency medical ID wallet cards.
To help you make your medical ID, we have Free online sources for printing your own wallet cards. Here are three sources:

• Wallet size medicine ID Card (online form) from CVS Pharmacy
• Printable Emergency Medical ID Card (online form) by AllFreePrintable.com
• American Red Cross Emergency Contact Card link on PDFfiller.com site or go directly to PDF form.
Use the PDF form to enter your information. Then, print, trim, fold and add to your wallet or purse. Or print the blank form and fill-in by hand.
Tips to Consider
• Laminate your wallet card to prolong its use (an office supply store can help you)
• Print a card for each member of your family
• If you choose a medic alert bracelet with limited space, add the message “See wallet card,” and carry a wallet card with all your medical details.
Beyond Wallet Cards: Medic Alert IDs

Shoe pocket by Vital ID
There are many styles of Medic Alert ID bracelets, necklace pendants, USB-based devices and sports equipment using different materials like waterproof foam, leather and stainless steel. (see Your Portable Medical Information Kit.)
Whichever method(s) you use to carry your emergency medical information, don’t forget to review and update the contents regularly especially when you change doctors, or start (or stop) medications or have a medical procedure. Knowing you have up-to-date medical information gives you a little bit more peace of mind.
For more about how to carry all your medical information in case of emergency, see our article: Your Portable Medical Information Kit.
















