Doctors & patients are saying about 'A-Fib.com'...


"A-Fib.com is a great web site for patients, that is unequaled by anything else out there."

Dr. Douglas L. Packer, MD, FHRS, Mayo Clinic, Rochester, MN

"Jill and I put you and your work in our prayers every night. What you do to help people through this [A-Fib] process is really incredible."

Jill and Steve Douglas, East Troy, WI 

“I really appreciate all the information on your website as it allows me to be a better informed patient and to know what questions to ask my EP. 

Faye Spencer, Boise, ID, April 2017

“I think your site has helped a lot of patients.”

Dr. Hugh G. Calkins, MD  Johns Hopkins,
Baltimore, MD


Doctors & patients are saying about 'Beat Your A-Fib'...


"If I had [your book] 10 years ago, it would have saved me 8 years of hell.”

Roy Salmon, Patient, A-Fib Free,
Adelaide, Australia

"This book is incredibly complete and easy-to-understand for anybody. I certainly recommend it for patients who want to know more about atrial fibrillation than what they will learn from doctors...."

Pierre Jaïs, M.D. Professor of Cardiology, Haut-Lévêque Hospital, Bordeaux, France

"Dear Steve, I saw a patient this morning with your book [in hand] and highlights throughout. She loves it and finds it very useful to help her in dealing with atrial fibrillation."

Dr. Wilber Su,
Cavanaugh Heart Center, 
Phoenix, AZ

"...masterful. You managed to combine an encyclopedic compilation of information with the simplicity of presentation that enhances the delivery of the information to the reader. This is not an easy thing to do, but you have been very, very successful at it."

Ira David Levin, heart patient, 
Rome, Italy

"Within the pages of Beat Your A-Fib, Dr. Steve Ryan, PhD, provides a comprehensive guide for persons seeking to find a cure for their Atrial Fibrillation."

Walter Kerwin, MD, Cedars-Sinai Medical Center, Los Angeles, CA


General or one use

Why You Need an A-Fib Notebook and 3-Ring Binder (and a Patient Portal?)

As you search for your Atrial Fibrillation cure, you will want to organize the research and medical treatment information you are collecting. Start with a notebook and a three-ring binder or a file folder.

What to Include in Your A-Fib Binder

Your A-Fib binder is where you should file and organize all your A-Fib-related treatment information, such as:

• contact list of all health care providers and facilities
• lab test results, EKG strips and other medical records
• office visit notes and phone calls
• list of all medications
• health insurance claims and records
• records of any major medical event from the past two years
• completed worksheets and blanks ready for use
• research from the internet or medical center library

Our available free worksheets: 10 Questions to Ask Before Taking Any Drug; 10 Questions to Ask When Interviewing Any Cardiologist; Keep an Inventory List of Your Medications

Make Medical Record-Keeping a Habit

Make Medical Record-Keeping a Habit Graphic at A-Fib.com

Make Medical Record-Keeping a Habit

We strongly encourage you to get in the habit of keeping a copy of every test result you get in your three-ring binder. Don’t leave your doctor’s office, medical center or hospital without a copy of every test or procedure they perform.

If the test result isn’t immediately available, have them email you a copy. (For another option, see my comment below about using Patient Portals.)

If you are missing some records, read our article, How to Request Copies of your Medical Records. We give you three ways to request your medical records from your doctors and medical providers.

Does Your Healthcare Provider Offer a Patient Portal?
A patient portal is a secure website that gives you direct access to your medical information, including lab and procedure results, immunizations, prescribed medications, doctor visit summaries and upcoming scheduled appointments. (You can download lab results and imaging reports, etc. to your laptop or send to yourself via e-mail.)

If you’re not yet connected, it’s easy to sign up. Just ask your healthcare provider.

Add Your Personal A-Fib Summary

My personal A-Fib Medical summary at A-Fib.com

Doctors appreciate knowledgeable, informed, and prepared patients. Each doctor will probably ask you many of the same questions, such as:

• What particular symptoms are bothering you?
• When did you first begin to experience these symptoms?
• Are these symptoms occasional or intermittent or persistent?
• Is there anything that appears to worsen or lessen your symptoms?

For efficiency, prepare your Personal A-Fib Medical Summary (see How to Create Your Personal A-Fib Medical Summary) and include a copy with each packet of medical records you send to doctors. Store the original and copies in your binder.

When I was first diagnosed with A-Fib back in 1997, I consulted doctors from various U.S. cities (and Bordeaux, France) by telephone by first sending each a packet of my medical records.

Prepare a Packet for Each New Doctor

When consulting a new doctor (or interviewing a prospective one), create a packet of your medical records including test results and any applicable images/X-rays.

Your A-Fib Binder holds all the information you will need.

Consider sending your packet ahead of time. (But bring an extra copy with you. Don’t be surprised if some doctors didn’t have time to read it beforehand.)

Remember: Keep Your A-Fib Binder Up-to-Date

After each doctor visit, add your handwritten notes from your notebook, such as changes or additions of prescription medications or supplements and copies of any tests, referrals to other medical professionals, etc. Also, update your ‘Personal A-Fib Medical Summary’ when necessary.

Your A-Fib Binder is a Valuable Resource.
It will help you find your A-Fib cure!

Updated: What is Your Portable Medical Information Kit?

I’ve updated this page with the newest examples (with links to each) of how to carry your personal medical information with you, but it all starts with knowing what information you should compile.

When you have A-Fib and you’re taking a blood thinner or other medication, you may wonder if you should carry an emergency I.D. card or wear a medical bracelet.

According to a paramedic with 25 years of experience, emergency measures to stop bleeding such as compresses, tourniquets, etc. will be used whether or not the paramedic knows one has A-Fib and is taking a blood thinner like Coumadin or the newer Direct Oral Anticoagulants (DOACs) like Eliquis and Xarelto.

But, in general, it’s a great help to emergency personnel if you carry one or more forms of emergency medical ID.

Dr. Todd Cohen, the author of the book, The Patient’s Guide to Heart Rhythm Problems, calls it a “portable medical information kit”. …Continue reading to learn what to include in your “portable medical information kit”…-and the various ways you can carry the information with you…->

OneLifeAid Medical Alert and Emergency ID Card

Responder QR EMC Medical Alert Keychain with QR Code – Emergency Medical ID Tag

QR EMC Emergency Medical Card Sport Medical Alert Bracelet

2024 AF Symposium: In Memoriam Dr. David Haines and Dr. Albert Waldo

This past year the Atrial Fibrillation community lost two pioneers in the field of cardiac electrophysiology and innovative research. They will be missed.

Dr. David Haines Passed Away Suddenly February 10, 2024

Dr. David Haines

A global pioneer in cardiac ablation, Dr. David Haines passed away suddenly on February 10, 2024. He served as the Director of the Heart Rhythm Center, Corewell Health Beaumont in Michigan since 2003.

As an internationally acclaimed cardiac electrophysiologist and innovative researcher, he is credited for numerous medical developments, academic programs, and leadership in his 44 years of practice. He was actively involved in a multi-center clinical trial investigating a revolutionary Pulse Field Ablation system for pulmonary vein isolation as a treatment for atrial fibrillation.

Personally, I will miss Dr. Haines who was a great help to me when we started our website, A-Fib.com. His advice and encouragement were very appreciated.

And of course, he was an important contributor to the annual AF Symposium over many years.

Dr. Albert Waldo

Dr. Albert Waldo Passed Away August 17, 2023

A world-renowned cardiologist and researcher at Case Western Reserve University, Dr. Waldo was a pioneer in the field of electrophysiology.

He published over 500 scientific articles and numerous books. He was the first electrophysiologist elected to be the President of the North American Society of Electrophysiology in 1984.

His research and writing for over fifty years helped map and describe cardiac entrainment, which led to a revolution in the pacemaker industry and the modern treatment of Atrial Fibrillation and Atrial Flutter.

A master teacher, he was acclaimed worldwide for his commitment to education and training in the field. He is a physician to whom the field of modern medicine owes a great debt of gratitude and respect.

He was an important contributor to the annual AF Symposium for many years.

More of my reports are coming next week To read earlier reports, see 2024 Symposium My Summary Reports

 

2024 AF Symposium: In Memoriam Dr. David Haines and Dr. Albert Waldo

2024 AF Symposium

In Memoriam Dr. David Haines and Dr. Albert Waldo

This past year the Atrial Fibrillation community lost two pioneers in the field of cardiac electrophysiology and innovative research. They will be missed.

Dr. David Haines Passed Away Suddenly February 10, 2024

Dr. David Haines

A global pioneer in cardiac ablation, Dr. David Haines passed away suddenly on February 10, 2024. He served as the Director of the Heart Rhythm Center, Corewell Health Beaumont in Michigan since 2003.

As an internationally acclaimed cardiac electrophysiologist and innovative researcher, he is credited for numerous medical developments, academic programs, and leadership in his 44 years of practice. He was actively involved in a multi-center clinical trial investigating a revolutionary Pulse Field Ablation system for pulmonary vein isolation as a treatment for atrial fibrillation.

Personally, I will miss Dr. Haines who was a great help to me when we started our website, A-Fib.com. His advice and encouragement were very appreciated.

And of course, he was an important contributor to the annual AF Symposium over many years.

Dr. Albert Waldo

Dr. Albert Waldo Passed Away August 17, 2023

A world-renowned cardiologist and researcher at Case Western Reserve University, Dr. Waldo was a pioneer in the field of electrophysiology.

He published over 500 scientific articles and numerous books. He was the first electrophysiologist elected to be the President of the North American Society of Electrophysiology in 1984.

His research and writing for over fifty years helped map and describe cardiac entrainment, which led to a revolution in the pacemaker industry and the modern treatment of Atrial Fibrillation and Atrial Flutter.

A master teacher, he was acclaimed worldwide for his commitment to education and training in the field. He is a physician to whom the field of modern medicine owes a great debt of gratitude and respect.

He was an important contributor to the annual AF Symposium for many years.

Return to 2024 AF Symposium Reports
If you find any errors on this page, email us. Y  Last updated: Thursday, July 18, 2024

A-Fib Patients with Sleep Apnea: Philips Respironics Recall of CPAP Devices

Background: A-Fib patients often have obstructive sleep apnea as well. Many use a Continuous Positive Airway Pressure (CPAP) device when sleeping to keep their air way open and unobstructed.

The FDA Safety Commission and NST Attorneys-at-Law report that Philips has recalled their CPAP devices because of “identified potential health risks related to the polyester-based polyurethane sound abatement foam component of these devices.” The foam in the machine can break down and then be swallowed or inhaled by the user.

According to Philips’ lab results, degraded polyurethane foam produced potentially harmful chemicals. These chemicals may then enter one’s body, reach the bloodstream, and travel to any body tissue and organ. Most of these harmful chemicals from the degraded foam can cause cancer.

All CPAP Users

If you use a different brand of CPAP device, check the tubing. Or talk to your supplier about how safe your device is in light of the Phillips recall.

If You Have a Philips CPAP Device

For detailed information about this recall, go the NST Attorneys-at-Law web site or Philips Voluntary Recall Information to:

  • Determine if your product is listed in the Philips recall notification
  • Learn how to Register Your Device For Recall and What To Expect Next

Talk to Your Doctor: The U.S. Food and Drug Administration (FDA) advises consumers to talk to their doctor to weigh the risks of continued use and decide on a suitable way to move forward.

A-Fib, Sleep Apnea and CPAP: What You Need to Know

If you have a Phillips CPAP device, learn if you have a model that has been recalled. If so, stop using it and talk with your doctor on how to proceed.

If you model has been officially recalled, Philips should give you a new one. But you may be safer switching to another CPAP manufacturer.

Visit the Philips Voluntary Recall Information website to stay current on your claim.

References
• UPDATE: Certain Philips Respironics Ventilators, BiPAP Machines, and CPAP Machines Recalled Due to Potential Health Risks: FDA Safety Communication. https://www.fda.gov/medical-devices/safety-communications/update-certain-philips-respironics-ventilators-bipap-machines-and-cpap-machines-recalled-due

• Voluntary Recall Information: Philips Respironics Sleep and Respiratory Care devices. https://www.usa.philips.com/healthcare/e/sleep/communications/src-update/information-for-patients-and-caregivers

• CPAP and Cancer. NST Attorneys-at-Law. https://www.nstlaw.com/cpap-and-cancer/

Invitation: The Association Between Atrial Fibrillation and Anxiety Survey

The Association Between Atrial Fibrillation and Anxiety Survey

This survey is for research conducted by Sevinc Erdas Uzumcu as partial completion of the Doctor of Health Sciences degree at A. T. Still University. The purpose of this research is to understand of the association between atrial fibrillation and anxiety. Your participation is voluntary and will only involve completing the anonymous, 7–minute questionnaire. The researcher will not place any codes on the questionnaire that could directly identify you. The results of this research might be published, but any research reports or publications will not reveal your name or identity. Your survey completion serves as consent to participate in this research. While there are no direct benefits to you for completing this questionnaire, the results may help improve understanding of prevalence of anxiety among patients with AF and the association between AF symptom severity and anxiety that could contribute to current treatment options and improved patient outcomes.

Thank you for your time,

Sincerely,
Sevinc E. Uzumcu
Doctorate Student
Doctor of Health Sciences Program
T. Still University
Arizona School of Health Science Mesa, Arizona
Email: serdasuzumcu@atsu.edu

AF and Anxiety Survey Link:
https://www.surveymonkey.com/r/8LFN3BJ

Podcast: The Double Whammy? Sleep Apnea and Atrial Fibrillation

Open in a new window: Podcast The Double Whammy? Sleep Apnea and Atrial Fibrillation

Note: If you prefer to read instead of listen, click the transcript graphic bar below for the printed version.

Podcast: The Double Whammy? Sleep Apnea and Atrial Fibrillation

Obstructive Sleep Apnea (OSA), aside from causing or triggering A-Fib, if untreated it can cause many other serious health threats. That’s the topic of this podcast between Steve and our friend, Travis Van Slooten, publisher of LivingWithAtrialFibrillation.com. We discuss the strong connection between sleep apnea and A-Fib, and why it’s so important to have a sleep study if you have atrial fibrillation. (21:33 min)

Highlights from this Podcast

 Over 40% of A-Fib patients also have sleep apnea
Sleep apnea can cause atrial fibrillation
 Anyone can have Sleep Apnea (thin, average or overweight)
If you have A-Fib, you should definitely have a sleep study
Sleep studies: in-lab test vs. in-home test

To Learn More

See our posts: Sleep Apnea: When Snoring Can Be Lethal and Sleep Apnea: Home Testing with WatchPAT Device and the Philips Respironics.

On Livingwithatrialfibrillation.com, see Travis’ post: My In-Lab Sleep Study Experience.

Transcript of this podcast
Travis Van Slooten: Now, I’ve mentioned in previous blog posts on my site and in previous podcasts, about the strong connection between sleep apnea and A-Fib.

And, Steve, before we really dive into that topic specifically, and again, the connection between sleep apnea and A-Fib, I just want to take a step back, and first talk about sleep apnea in general, for those listening to this that aren’t familiar with it.

Because I’m sure everyone’s heard of sleep apnea, but I think, at the end of the day, a lot of people don’t really know what it is. So, with that, Steve, let’s talk about, what is sleep apnea?

Steve Ryan: Yeah, Travis, the technical name is obstructive sleep apnea. Now, what that means is, basically, somehow, the airways are being blocked, when you’re trying to sleep. Your sleep starts, and starts, and you gasp, and… The other one, which we’ll just mention, and then skip over, is central sleep apnea, where the brain is simply not sending signals, the proper signals, for the muscles to control breathing. That’s something we don’t get into very much. Usually, what we have to worry about is obstructive sleep apnea.

Travis Van Slooten: Okay.

Steve Ryan: Now, let me give you an example of what it’s like. My wife has sleep apnea, Patti.

Travis Van Slooten: Oh, she does?

Steve Ryan: Yes. Before she was treated, I’d be sleeping with her, and I’d listen, and she would actually stop breathing. I mean, actually stopped breathing for what seemed like a long time. Then, all of a sudden she’d gasp and start breathing again. And this would go on and on, and this would happen over and over again. And, obviously, she wasn’t sleeping well, and she’d be very sleepy the next day. And, of course, I wasn’t sleeping either, listening to this.

But once she got a CPAP machine, which is simply a medical device, like a breathing apparatus that keeps the airways open, once she started using that, she sleeps like a baby now, and has no more problems. But that’s an example of how sleep apnea can affect you. It disrupts your breathing and your sleeping patterns.

Travis Van Slooten: And for a lot of people that have it, they don’t even probably know they have it, unless they have a sleep partner that is witnessing it. [chuckle] And the other thing is, it’s not just… I think a lot of people have the misconception that it’s all about snoring… It might not be snoring. Like in your case, it sounds like Patty wasn’t snoring. She was literally…

Steve Ryan: Oh, yes, she was.

Travis Van Slooten: Oh, okay, she was snoring too. But the primary symptoms are snoring, and just, like you said, gasping for air. It’s very obvious, if you are sleeping with someone with sleep apnea, and you’re awake, and you witness it, right? It’s pretty obvious.

Steve Ryan: Yes, yes. 43% of patients with A-Fib have sleep apnea. And I’ll tell you, let’s say you’re a guy, and you’re sleeping with your wife, and you get up in the morning, and you’ve got all these bruises on your side. That’s probably because your wife is elbowing you, trying to keep you from snoring. That’s a pretty good sign that you have sleep apnea.

Travis Van Slooten: Yeah.

Steve Ryan: And the good thing about sleep apnea is it’s easily fixed. There’s a number… You can have this mask or you can have these dental devices that can help keep those airways open. It’s relatively easy to fix. Thank God.

Travis Van Slooten: Yeah, absolutely. And you mentioned that the connection, as perfect transition now, into the actual connection here between sleep apnea and A-Fib. Now, you said, what, 43% of people with A-Fib have some form of sleep apnea?

Steve Ryan: Yeah. It’s so prevalent, that I went to a A-Fib center in Louisville, Kentucky, and I was talking with the doctors there. And then I noticed that when a patient comes in, and they have A-Fib, they send ’em down to the next door, and they get a sleep apnea study then and there.

Travis Van Slooten: Oh, wow. Now, that’s…

Steve Ryan: They are so attuned to everyone coming in with A-Fib. Most, well, many people who come in with A-Fib have sleep apnea, that they make it part of their center. They won’t treat a patient, unless they go to the center, and have a sleep apnea study done then and there. And a lot of centers will not do a catheter ablation on you, if you have sleep apnea that you don’t take care of.

Why? Because it recurs. It tends to…you tend to have recurrence because you have the same condition that created the atrial fibrillation in the first place is still there. Because basically any time you’re gasping for breath like that, and any time you’re not breathing properly, that’s a tremendous strain on your heart, and on your lungs, and that irritates the pulmonary veins. And that’s what probably brought on the A-Fib in the first place, so you really need to take care… If you have sleep apnea, you really need to take care of it.

Travis Van Slooten: So sleep apnea… Are you saying then, that sleep apnea can cause A-Fib?

Steve Ryan: Yes. Yes, indeed.

Travis Van Slooten: Okay.

Steve Ryan: There’s been a study done, where they studied 1,000 patients, so seven different studies. And all these patients were treated with Continuous Positive Airway Pressure, that’s CPAP, which is a mask worn. And CPAP cut the risk of A-Fib episodes in half.

Travis Van Slooten: Oh, wow.

Steve Ryan: And people using CPAP were 42% less likely to experience an abnormal heart rhythm, than those not receiving such treatment. Now, we’re not saying that you got to use a CPAP machine. You can maybe change your lifestyle. You could, if you’re overweight, losing that weight would help, quitting smoking. Sometimes, lifestyle choices can get rid of A-Fib, but it’s not necessarily…

Unfortunately, once A-Fib starts, it’s usually pretty hard to stop without something more radical. But some people, just from eliminating A-Fib, are lucky enough that that also gets rid of their… Just by getting rid of their sleep apnea, they also get rid of their A-Fib. But don’t bank the farm on that. It’s something that could happen. And it does happen to some people, but more often than not, you need more radical treatments to get rid of the A-Fib.

Travis Van Slooten: Absolutely. And so I think the key takeaway here, as far as this connection is, if you have A-Fib now, just because you’re a skinny guy or gal doesn’t mean you don’t have sleep apnea. And I made that assumption. I assumed, ’cause I’m not really skinny, and I’m not really obese, or anything either, I’m a normal, average guy weight-wise, but I was like, “There’s no way I have sleep apnea.” And my doctor told me that anybody can get sleep apnea. It’s not necessarily overweight people. Although, that is definitely one of the risk factors, but skinny people can get it as well, right?

Steve Ryan: Yes.

Travis Van Slooten: So, if you’re a skinny guy or gal, and you have A-Fib, don’t just assume, if you’re listening to this, that, “Oh, that’s not me. I can’t possibly have sleep apnea.” Yeah, you definitely could, especially if you have A-Fib.

Steve Ryan: Yeah. We have a story on our website by Kevin Sullivan, age 46, and he describes what happened to him: “My A-Fib seemed to start at night, while I was sleeping. One night, when I woke up, my heart was racing and I felt sweaty. When I asked my doctor about it, he told me that it was unlikely, because I was not overweight and I did not feel tired during the day.” That’s him saying, that’s why he didn’t think he had sleep apnea. “But I went to a sleep lab anyway and it turned out I did have sleep apnea.” And that’s, unfortunately, what happens to a lot of people. Just because you’re thin doesn’t necessarily mean you may not have sleep apnea, or you may not snore, and you may still have sleep apnea.

Travis Van Slooten: Or like you said, that this gentleman wasn’t tired either, which is another common symptom of sleep apnea. Okay, and it’s not common, is it, Steve, for A-Fib centers or clinics to automatically have A-Fib people have a sleep study? I mean, we’re not at that point yet, where it’s part of the protocol.

Steve Ryan: We’re getting there, to the point, where most A-Fib centers now, will not even consider you for a catheter ablation, if you don’t have a sleep study, sleep apnea study. Why? Because A-Fib tends to recur after an ablation, if you still have sleep apnea. Yeah, a lot of centers still don’t have sleep apnea studies connected with them, but they all are referring people for sleep apnea studies to other centers. So it’s becoming much more… Doctors are much more aware of how important sleep apnea is in A-Fib… And they’re making sure that people get treated for it.

Travis Van Slooten: So, if you have A-Fib, and your doctor hasn’t suggested or recommended a sleep study, are you saying it’s probably a good idea to demand one?

Steve Ryan: Yes, indeed. And I know there’s an expense involved. If you go to the overnight sleep study, yeah, that’s… We’re talking $1,100 to $2,000. But they have home testing kits now, that do almost as well. For $200, you can get one of these home things and do a sleep study to, at least, get you in the right ball park, where people can figure out whether you actually have something that needs more work.

Travis Van Slooten: Yeah. And with the sleep, or with the home sleep tests, or the in-home sleep tests, are those… And you may not know this, Steve, but are they as reliable as the in-lab sleep studies?

Here’s why I ask, because I had a sleep study a couple of years ago. And my doctor said, “You can have one or the other. You can do the in-lab or you can do the at-home.” And he told me that the unfortunate thing with the in-home studies or tests, is that you get a lot of false positives with them, particularly if you have mild to moderate sleep apnea. He said, “They’re most accurate or they’re most useful, if you have moderate to severe sleep apnea.”

He looked at me, and like I mentioned, I was not overweight. I don’t have a thick neck. These are common things that doctors look at, when they’re assessing if someone may have sleep apnea. So he said, “I don’t think you have sleep apnea. If you do, it’s probably a mild, maybe a moderate form of it.” So he said, “I wouldn’t recommend for you the in-home sleep study because there’s a chance it’ll say you have it, and then we have to do a in-lab to confirm it anyway.” So he said, “You might as well skip it and do the in-lab,” and that’s what I did. Do you know anything about this? Have you heard any other kinds of thoughts on the in-home versus the in-lab, or not?

Steve Ryan: I haven’t read any definitive studies saying one is worse than the other or one doesn’t work. I know there’s a number of different devices out there. And let’s say you get a false positive, big deal, that means that you get it checked out more thoroughly from your doctor, or maybe from going for a home study test.

Travis Van Slooten: Yes.

Steve Ryan: That’s a good thing. There’s two that I know of. One is Itamar Medical’s WatchPAT, P-A-T. This looks like a watch you put on your wrist, and then there’s also something that goes over your index finger, to measure like pulse oximetry, and it detects sleep apnea by measuring volume changes in peripheral arteries. Now, you’re gonna say, “Well, is that the same thing?” No, it isn’t, but it’s an indication.

Another one is the Philips Alice NightOne. And this also is FDA-cleared. You put a belt around your chest, and it has a nasal cannula that you put… It’s a two pronged thing that you put into your nose, and you put it in your nostrils. And you also have a pulse oximeter, which you wear on your finger. There’s many other different HSTs: ARES by Watermark, ResMed, and others. There’s a lot of different things, and the main thing is, $200, you can get a test. Heck, $200 is not that big a deal for most people to determine whether they have sleep apnea.

Travis Van Slooten: Now, do you know what the…sorry, I don’t mean to interrupt you, but with these HSTs, again, we’re talking home sleep tests. Do you have to… You can’t just get those direct, right? Do you still need to get a prescription form? Do you know how it actually logistically works? Do you know?

Steve Ryan: You got me on that. I’d have to…

Travis Van Slooten: Because, well, just the only reason I point it out is because I think, and I could be wrong, I do think you need to have it prescribed, because I was going to do…because remember, when I talked to my doctor, and he said, “You could do the home sleep test?” And I had looked into it at home, because I was looking at some of these devices. And I think on one of the websites, it might’ve been the WatchPAT website, they had mentioned, “You have to have your doctor call it in.”

Steve Ryan: They have a doctor who specializes in this, Dr Joseph Krainin, and he founded singularsleep.com, and he’s like one of the experts on HST. And if you call him, or get in touch with him, I’m certain he can work out whatever you need, to get you hooked up to a HST. Travis Van Slooten: Oh, perfect.

Travis Van Slooten: Yeah, and the only reason I bring it up, Steve, is just if someone’s listening to this, you may not… It might not be as easy as just going to their website and ordering the device.

Steve Ryan: Right. Exactly.

Travis Van Slooten: And I think you still need to get your doctor involved. But I think, again, this was a couple of years ago, when I was looking into it. I could’ve just called my family doctor and said to him, “Hey, I wanna do this home sleep test, but I need you to call it in.” So it’s not that big of a deal, but it isn’t… You don’t just… It’s not like buying something on Amazon.com. There’s some steps involved.

Steve Ryan: Yeah, right.

Travis Van Slooten: But you’re right, though. For $200 and $300, at the most, you can have the initial test done at home, in the comfort of your home. I went through an in-lab sleep study and it was not fun at all. You’ve got wires all over the place. And I’ll link to my sleep study experience. It’s not painful or anything, but it’s very uncomfortable. So you might actually have a hard time sleeping, which was the case for me. You might actually get a more accurate result, in the sense that, when you’re at your… In the comfort of your own home, in your own bed, you might actually be yourself and sleep better. And so to get a more accurate look, at exactly what goes on when you’re sleeping. So the sleep…

Steve Ryan: It’s more comfortable at home, but even with all those wires and those technicians, they still can get a pretty good reading of whether or not you have sleep apnea. It may sound very… It may feel very uncomfortable, but they still do get good readings…

Travis Van Slooten: Oh, absolutely.

Steve Ryan: In spite of it.

Travis Van Slooten: Yeah, which was the case for me, because I didn’t sleep very well, and I was actually surprised, because when he woke me up, I felt like I didn’t even really sleep. That was the first question I had to him was, “Did I sleep enough for you to get what you needed?” And he said, “Oh, yeah. Yup, we got what we needed.” So yeah, you’re right. The in-lab, it’s like NASA. They’ve got…the technology they have in these labs, they can pick up anything. And so, if you don’t mind going that route, and you have the money, it might be better just to skip the home test, and go right to the in-lab. But, yeah, if you’re tight on money, or you just don’t want to go through that complex of a situation, start with the home sleep test, for sure.

Steve Ryan: Yeah.

Travis Van Slooten: Now, you had mentioned, Steve, earlier, there are some easy ways to treat apnea. What are some of the common treatments, again, for sleep apnea?

Steve Ryan: Well, they have dental appliances that dentists can make for you, to make sure your airways stay open. I’m not saying that that’s gonna be…work for everybody. But it is an option, and it’s certainly a little bit less cumbersome than wearing a CPAP device. And also, there are various CPAP configurations. My wife uses a half one; it just goes over her nostrils. Some people use a full mask that goes over both the nose and the mouth. There’s lots of different variations, and most centers will work with you to find something that’s comfortable for you, that will help you sleep well without being bothered by it.

Travis Van Slooten: And there’s also a third option, and I’ve heard that it’s not a very good option, but there is surgery as well. If you have a real…

Steve Ryan: Oh, yes.

Travis Van Slooten: If you have a really bad form of it, or you just can’t tolerate the CPAP machines, or the dental devices don’t work, surgery is an option, but again, based on my admittedly limited research on it, the success rates of that surgery aren’t that great. But that is also a possibility, because I also… I hear from a lot of people that have sleep apnea, and they just say, “I can’t do the CPAP machines.” And then, I’ll just mention to them, surgery is an option. It’s not something I probably would go for, but that is always an option as well.

Steve Ryan: Yeah. It’s usually considered an option of last resort because they actually go in there, and cut out the muscle or tissue that is blocking the airway.

Travis Van Slooten: Yup.

Steve Ryan: And like you said, it’s major surgery. There’s no doubt about it, it’s major surgery. And it isn’t always as successful as they’d like it to be, but it is an option.

Travis Van Slooten: Yup, yup. Now, and I think you touched on this as well, Steve, but can treating sleep apnea cure A-Fib?

Steve Ryan: In some instances, some lucky people can get rid of their A-Fib and have no more… Can get rid of their sleep apnea and be cured of A-Fib.

Travis Van Slooten: Wow.

Steve Ryan: But those people are few and far between, unfortunately. But for some people, getting rid of sleep apnea does cure A-Fib. But, unfortunately, for most people, once A-Fib starts, it takes a more radical… Something more radical to get it cured. However, you still need to… Even after you’ve… Let’s say you’ve had a catheter ablation and your A-Fib is cured, you still can’t ignore sleep apnea. You still have to keep treating it, keep using the CPAP machine, or whatever device you use. Because if you don’t, that A-Fib can recur.

Travis Van Slooten: Well, and not to mention, just the other health issues that might come, as a result of your untreated sleep apnea.

Steve Ryan: Oh, yes.

Travis Van Slooten: Absolutely. Perfect. Any other wrapping thoughts here on this topic?

Steve Ryan: No, I can’t think of anything. Thank you, Travis.

Travis Van Slooten: Alright, Steve, as always, it’s a pleasure and thanks for joining me today.

Steve Ryan: Glad to be here.

 

AF 2018: New Report on the CASTLE AF Clinical Trial—Most Important Study for Patients

Most people who’ve had a successful catheter ablation can tell you how wonderful it feels to have a heart that beats normally again. Thanks to Dr. Marrouche and his colleagues, we now have hard data that a catheter ablation doesn’t just feel good but lets us live a healthier, longer life.

CASTLE-AF stands for Catheter Ablation versus Standard conventional Treatment in patients with LEft ventricular dysfunction and Atrial Fibrillation.

Dr. Nassir Marrouche & CASTLE AF Clinical Trial

At the 2018 AF Symposium, Dr. Nassir Marrouche presented results of the full CASTLE-AF study. (I reported briefly on initial findings last October (see CASTLE AF Study: Live Longer―Have a Catheter Ablation).

The 9-year, multicenter CASTLE-AF trial started in 2008 and focused on patients with A-Fib and systolic heart failure. The 398 participants were at 31 sites in 9 countries across Europe, Australia and the U.S.

Study participants had A-Fib and advanced heart failure (i.e. low ejection fraction less than 35%) and were randomized to receive either radiofrequency catheter ablation or conventional drug treatment. The median follow-up period was 37.8 months.

Results―Ablation Improves Quantity and Quality of Life

Dr. Marrouche listed key results of the CASTLE-AF Clinical Trial:

▪ Catheter ablation lowered the death rate by 47% vs conventional drug therapy..
▪ Even though 94% of the patients were taking Coumadin, the catheter ablation group’s stroke rate was ½ of the conventional drug treatment group.
▪ Heart failure hospital admissions improved immediatelycontinue reading Dr. Marrouche’s findings

2018: A-Fib.com Again Earns HON Certificate for Quality and Trustworthiness of Health Information

A-Fib.com has again earned the Health On the Net Foundation (HON) Certification for quality and trustworthiness of medical and health online information. (We were first certified in 2009.)

The voluntary HONcode accreditation program sets out a standardized criterion of eight principles of good practice for health information websites. Each applicant is checked for compliance by a review committee including medical professionals.

The Health On the Net Foundation (HON) Code of Conduct helps protect citizens from misleading health information.

Our 2018-2019 Active Certification & Dynamic Seal

Our HON seal is displayed in the footer of our web page and is directly linked to the A-Fib.com HONcode certificate located on the HON website.

Read more about the A-Fib.com HON Certificate on our website. Or learn about the criterion of eight principles of good practice at Health On the Net Foundation (HON) Certification.

When visiting other health-related websites, look for the HON Code of Conduct badge to be assured of the site’s quality and trustworthiness of medical and health online information.

Updated: Print a free Medical Alert I.D. Wallet Card

Last updated: January 13, 2022 Websites change every day. So it’s no surprise when reader Debbie L. emailed us about a non-working link. Thanks to her alert, I’ve updated my links to print your own emergency medical ID wallet cards.

To help you make your medical ID, we have Free online sources for printing your own wallet cards. Here are three sources:

Free printable Med. ID Card at A-Fib.com

• Wallet size medicine ID Card (online form) from CVS Pharmacy
Printable Emergency Medical ID Card (online form) by AllFreePrintable.com
• American Red Cross Emergency Contact Card link on PDFfiller.com site or go directly to PDF form.

Use the PDF form to enter your information. Then, print, trim, fold and add to your wallet or purse. Or print the blank form and fill-in by hand.

Tips to Consider

• Laminate your wallet card to prolong its use (an office supply store can help you)
• Print a card for each member of your family
• If you choose a medic alert bracelet with limited space, add the message “See wallet card,” and carry a wallet card with all your medical details.

Beyond Wallet Cards: Medic Alert IDs

Shoe pocket by Vital ID

Shoe pocket by Vital ID

There are many styles of Medic Alert ID bracelets, necklace pendants, USB-based devices and sports equipment using different materials like waterproof foam, leather and stainless steel. (see Your Portable Medical Information Kit.)

Whichever method(s) you use to carry your emergency medical information, don’t forget to review and update the contents regularly especially when you change doctors, or start (or stop) medications or have a medical procedure. Knowing you have up-to-date medical information gives you a little bit more peace of mind.

For more about how to carry all your medical information in case of emergency, see our article: Your Portable Medical Information Kit.

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