Doctors & patients are saying about 'A-Fib.com'...
"A-Fib.com is a great web site for patients, that is unequaled by anything else out there."
Dr. Douglas L. Packer, MD, FHRS, Mayo Clinic, Rochester, MN
"Jill and I put you and your work in our prayers every night. What you do to help people through this [A-Fib] process is really incredible."
Jill and Steve Douglas, East Troy, WI
“I really appreciate all the information on your website as it allows me to be a better informed patient and to know what questions to ask my EP.
Faye Spencer, Boise, ID, April 2017
“I think your site has helped a lot of patients.”Dr. Hugh G. Calkins, MD Johns Hopkins,
Baltimore, MD
Patients’ Best Advice #10: Become Your Own Best Patient Advocate
THE TOP 10 LIST #10
Become Your Own Best Patient Advocate.
A-FIB PATIENTS’ BEST ADVICE
From Beat Your A-Fib: The Essential Guide to Finding Your Cure, Chapter 12: Your Journey to a Cure, and personal stories from A-Fib.com. Advice from patients now free from the burden of Atrial Fibrillation:
Joan S.,
Joan Schneider, Ann Arbor, MI, tells of her astonishment how little her doctors told her about A-Fib:
“I was so desperate for answers I started searching on-line. My jaw hit the table. [She said to herself…] ‘How could my physicians not explain these things to me?’ Once I was able to really comprehend my future, I was able to make things happen.
Best advice: Don’t be afraid to fire your physician, and be your own advocate.” (pp. 119-124)
Michele S.
Michele Straub, Salt Lake City, Utah, encourages you to be more active in your own treatment plan:
“Do not take ‘this is as good as it gets’ as an answer—do your own research about what’s possible. Take a co-leadership role with your doctor.” (pp. 88-90)
John Thorton from Sioux Falls, SD, wrote about his PVCs and ignoring the bad advice from his doctors:
“The local MDs (about a half dozen different ones), cardiologists, EPs, and other local specialists, all told me stuff like: “Everyone has PVCs” and “PVCs are benign,” and “It is just anxiety,” and “You just need to learn to live with it”. Which was completely WRONG.
Be Assertive, Even Aggressive: I had to set up my own appointment at Mayo Clinic to get evaluated there. It was a lot of work, by me alone, to get in to see the doctors at Mayo, but it was worth it.
I honestly believe that had I not gone to Mayo I would have suffered some major heart event, or possibly death.”
Our A-Fib Support Volunteers: Just an Email Away
To become your own best patient advocate, it helps to have someone who has ‘been there’ and is there for you now—someone you can turn to for advice, emotional support, and a sense of hope that you can be cured. Someone who can share their own story or just ‘listen’ to yours.
Our A-Fib Support Volunteers are just an email message away. Note: Not all Support Volunteers are ‘cured’ of their A-Fib, but have found the best outcome for their situation.
Our volunteers are listed by U.S. state and worldwide by geographical region. Learn more at: Our A-Fib Support Volunteers
Make Things Happen:
Become Your Own Best Patient Advocate!
♥ ♥ ♥
‘The Top 10 List of A-Fib Patients’ Best Advice’ is a a consensus of valuable advice from fellow patients who are now free from the burden of Atrial Fibrillation. From Chapter 12, Beat Your A-Fib: The Essential Guide to Finding Your Cure by Steve S. Ryan, PhD (beatyoura-fib.com)
Top 10 List of A-Fib Patients’ Best Advice
♥ Please, share the advice ♥
